The Scientific Advisory Committee of the E.S.PKU invites submission of abstracts (from health professionals only) on research and developments in PKU for oral presentation at the E.S.PKU professional meeting on 26th Sept. 2025. Submit the abstract here:

Florentina shared her experience of how her friends react to her PKU, and it’s truly heartwarming! In her interview for #pkulifestories Florentina shared how her friends fully accept her PKU and always look for ways to prepare food suitable for her. #adultpkuawareness

Today is #WorldCancerDay. We strongly believe that access to the best possible medical care should be universal. People with PKU are not exempt from cancer. We know of PKUers who are fighting this battle or are in remission. Read more here:

In her #pkulifestories interview, Florentina shared her experiences of dining out with Phenylketonuria. For many people with PKU, eating at restaurants isn't just about choosing a meal – it's about navigating a menu where options can be very limited.🥗❌

In her #pkulifestories interview, Florentina shared how living with Phenylketonuria (PKU) has shaped her character and what it has taught her. #adultpkuawareness Do you feel the same way? How has PKU influenced your life and mindset? Share your thoughts in the comments!

Dear Delegates! We are happy to announce that the registration for the E.S.PKU Spring Meeting 2025 is now open until February 20th. To register and get more information please go to:

Living with PKU comes with its unique challenges, and Florentina knows this first-hand. In our interview, she talks about them at different stages of her life. #pkulifestories #adultpkuawareness

📷 The interview video is now live! If you missed the premiere or want to watch it again, you can find it here: Don’t miss Florentina Baričević’s inspiring story as part of the @official_espku #pkulifestories campaign. #adultpkuawareness

RT @ma_henek: Set a reminder now to be sure not to miss the interview with Florentina! #pkulifestories #adultpkuawareness

RT @GreXXL: Awesome video coming up. Hope the editing work was worth presenting you with a very interesting insight into PKU life! https:…

🎥 Here’s a sneak peek of today’s interview with Florentina Baričević as part of the E.S.PKU #pkulifestories campaign! #adultpkuawarenes Don’t miss out—click the link below +enable notifications to ensure YouTube alerts u when the interview premieres:

👉 Click the link below to set a reminder 🔔and be part of the premiere of the interview with Florentina Baričević! #pkulifestories #adultpkuawareness 🔗

We are excited to introduce Florentina Baricević as the first featured guest in our #pkulifestories Campaign! She`s is an adult with PKU from Croatia now living in the Netherlands. She works as an Occupational Therapist and is deeply involved in the Croatian PKU Association.

We are excited to announce The PKU Life Stories Campaign that through the stories of people with PKU and their families will raise awareness of #PKU offer advice and show that with proper care people with Phenylketonuria can live their life to the fullest! #pkulifestories

Are you a member of an organization that’s a member of @official_espku ? If so join E.S.PKU Delegates Platform? 📩 To gain access: ➡️ go to: ➡️ email us at espku@espku.org to receive the Invite Code.

This year, @LesFeuxFollets1 marks 30 yrs of supporting families & l individuals with PKU in France! 👏 Advocating for the best health & financial solutions, being a key member of @official_espku their impact is felt. 🌍 Let’s celebrate their incredible journey & dedication! 🥳

The @official_espku Executive Board and Scientific Advisory Committee met in Vienna to review 2024 and plan 2025. Advocacy, political, and research activities were key topics, paving the way for impactful initiatives for the #PKU community. Stay tuned for updates!

Maternal #PKU is another issue that will be discussed during this year`s ESPKU Conference by Dr. Elaine Murphy. You can still register and participate in #ESPKU2023 Go to:

This is the last moment to submit an abstract on research and developments in PKU for oral presentation at the ESPKU meeting for professionals, on Friday, 20th October 2023. The final deadline is 12th August 2023. To submit an abstract go to: #ESPKU2023

Metabolic Trade Fair, which is part of our every Conference, is a possibility for our participants to meet our sponsors, get to know their products and ask them questions. Register to participate in #ESPKU2023 to have this amazing opportunity: