MPN Ad&Ed Int'l
@mpnadvocacy
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MPN Advocacy & Education International provides resources to MPN patients, caregivers, physicians and health care teams. Founded by Brazeau & Associates, LLC
Joined August 2015
Ad hoc: MorphoSys’ Phase 3 Study of Pelabresib in Myelofibrosis Demonstrates Statistically Significant Improvement in Spleen Volume Reduction and Strong Positive Trend in Symptom Reduction
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By sharing their stories, patients show the importance of coming together and helping others living with #PolycythemiaVera feel empowered to advocate for themselves. We’re proud to partner with @PharmaEssentia on this important initiative! #MPNAwarenessDay
We are proud to announce PV&ME, an educational initiative in partnership with @mpnadvocacy. It is our hope that the stories of Buzz, Deb, Patti and Steven will help empower and support the #PolycythemiaVera (PV) community. #MPNAwarenessDay
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Ground-breaking research at @ASCO. We anticipate heading to The Hill this summer to support our #Veterans #mpnsm
Very important data from ASCO demonstrating an association between Agent Orange exposure and risk of MPN. To date MPN has not been considered a presumptive condition associated with AO and thus not compensated. Hopefully this will change. @mpnadvocacy @MPN_RF #mpnsm @doctorpemm
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Patients today heard from a current MPN patient and one who has had a successful stem cell transplant. Both stories are inspirational and real-world examples of the good, the bad, and the ugly of MPNs. However, they shared hope to the Community here today!
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Great group of MPN patients and physicians today. Cannot wait for the following presentations! Thank you for all you three do to advocate and educate the MPN Community 💕
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@RaajitRampal ,from Memorial Sloan Kettering, is now presenting on Myelofibrosis: What is on the Horizon Dr. Jamieson presented thought provoking research coming out of her lab and discussed therapies currently available for MPN patients. #mpnsm
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Dr. Catriona Jamieson, UC San Diego Moores Cancer Center, is starting our MPN Patient and Caregiver Program for the day by talking about Diagnosing and Treating MPNs: What’s New and What’s Working #mpnsm
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Space is still available at our upcoming in-person San Diego, CA program for MPN patients and caregivers on Thursday, May 25, 2023. Hear from Dr. Catriona Jamieson, Dr. James Mangan, @RaajitRampal, and @JustinGrinnell4 #mpnsm Learn more and register here:
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We had the chance to sit down with @MPNlab @kristenpettitmd @lauracmichaelis @JeannePalmerMD Dr. Gail Roboz, Dr. Linda Resar, and Dr. Saghi Ghaffari to discuss the ongoings in their respective labs #ASH22 #MPNSM
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He also likes to throw in a bit of humor in his presentations with Seinfeld references 😂
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@LindaResar is now presenting on Novel Therapy Targets/New Kids on the Block to Prevent Progression and discussing the work in her lab with HMGA1 #mpnsm
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@RaajitRampal is starting our conference today by talking about Diagnosis and Prognosis in MPN #mpnsm
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Our Boston MPN Patient and Caregiver Conference is starting! Stay tuned for updates throughout the day #mpnsm #boston #conference
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In case you missed it, we had another successful conversation with @GabyHobbs where she discussed how interferon therapy works in MPN patients. Watch now! #webinar #mpnsm #interferon
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