Liza-Marie (Liza) Johnson
@lijohnson2000
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Pediatric bioethicist, heme/onc doc, researcher, and foodie. Tweets and ideas are my own.
Memphis, TN
Joined July 2011
Working with @AkshaySharmaMD to bring together experts and #sicklecelldisease patient stakeholders. #scdgene seeks to inform clinical trial communication around novel clinical trials, such as #geneediting. @ELSIhub for the funding #elsi #genomics #SCDAwareness . @StJudeResearch
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RT @StJudeResearch: Few #SickleCell disease patients feel knowledgeable about #GeneTherapy, and most feel neutral about its safety. Cultura…
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Bi-directional communication with patients involves understanding their "why". New paper on attitudes towards #Covid19 vaccine among pediatric families with #SCD. #sicklecell #bioethics #patientvoice #askthem
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Palliative Sedation Therapy (PST) a tool for symptom management in children with refractory suffering at the end of life. Updates to our PST algorithm and clinical practice led by colleague Dr. Andrea Cuviello. #mdpichildren via @MDPIOpenAccess
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Thinking a lot about personalized N-of-few Investigational Plans lately. How can we honor principles of #researchethics to gain knowledge and honor our duty to protect patients who are participants in investigational interventions.
After an experimental epilepsy drug caused acute side effects in 2 non-St. Jude patients, physician-ethicist @lijohnson2000 says researchers need to share data so other clinicians can make future treatment safer. @Erika_Check @NYTimes
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RT @mildredkcho: Fantastic session @asbh #asbh22 moderated by @abatemanhouse w/ Liza-Marie Johnson raising hard questions about rare diseas…
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Always a privilege to speak at national meetings! @AmerSocBioHum annual meeting, today on the Ethical implications of N-of-Few interventions. Fantastic co-panelists and great Q&A with the audience!
#asbh22 great panel w @ABatemanHouse @john_massarelli #rafaelescondon #LizaMarieJohnson individualized antisense oligonucleotides for n-of-few genetic conditions: ethical challenges
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#informedconsent should be more a thick stack of papers & #medicaljargon. What about multimodal approaches? #researchethics #decisionmaking. Thanks Pediatric Blood and Cancer to let me opine! How do you think outside the box to facilitate quality consent?
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Thank you to the @NHLBI for funding #PedsGeneRx. Partnering with families of kids with #sicklecelldisease and other #pediatric #raredisease to develop patient-centered #genethreapy education & #clinicaltrials. DM me for more information about upcoming focus groups. #ethics
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Looking for a nocturnist (or hybrid) to join our team. Open to physicians who are BE/BC in peds, med-peds, or peds EM. @StJudeResearch
#thisishowwehospitalist #stjudehospitalistprogram
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RT @AkshaySharmaMD: Thanks to @ELSIhub for highlighting our work on why #SickleCell stakeholders' voices are so important in the conversati…
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@jessjenk @VanessaGregson @jessjenk, very sorry this happened to you. So grateful your injuries weren’t more serious! Heal quickly. ❤️🩹
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💯!! Also, we need to #trust our patients. You can be on one of these Rx and still have pain crisis. #sicklecell
Pain medications are certainly an important part of #SickleCell care but it is essential that ALL patients also receive at least one disease modifying 💊 to prevent other inevitable complications We have a growing # of options Hydroxyurea, Oxbryta, Adakveo, transfusions
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Official guidance from Association of Bioethics Program Directors on obligations in the post Dobbs era. Read it here: #AbortionIsHealthcare
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1/ Tip, always take a photo of the valet tag #. I actually joked with the guy as I took the 📸,”it’s not like you’re going to lose this, but just in case” 🫣
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RT @AkshaySharmaMD: Had an amazing 2 days brainstorming with #SickleCell warriors & caregivers. We are developing educational content for…
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Great 2 days with #SCDWarriors brainstorming content for our tool on gene therapy and BMT for #scd. Thanks to the whole team, but especially @ELSIhub for funding part of this collaboration and @AkshaySharmaMD for co-leading these past 2 years! @StJudeResearch
The #scdgene study group chatting w/ @BoosterShotCmx abt how to approach the patient/caregiver info resource on gene therapy vs BMT, following the productive focus group discussions. Co-develop is truly in progress here in #chicago! @StJudeResearch
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