Jan Geissler
@jangeissler
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Patient activist and research patient advocate. Life is precious.
Munich, Germany
Joined April 2009
RT @patvocates: šāØ From all of us at @patvocates and @advocacyeu to you, hereās a little holiday cheer š! We had a blast making this and hā¦
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We truly love the #ASH24 Headshot Alley. Thatās how you feel after four days of meetings at the congress. :)
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RT @patvocates: #EHA2024 Highlights: @AEcaterina on behalf of @AnandaPlate on #cancer & #fertility, @Mechi93 on PROs in hematology trials &ā¦
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RT @patvocates: What a memorable #EHA2024 Congress! 15.5K on-site + 3K virtual attendees, top voices in #hematology on patient issues. Congā¦
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I still have some hope to develop some intelligence myself in this Artificial Intelligence session at #CMLHZ24. Hopeless, I know! :)
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Amazing session at #CMLHZ24 where we are discussing a truly global perspective on TFR in high, middle and low income countries, including perspectives from clinicians, nurses and patient advocates from different regions. A true 360 degree view we canāt see at any medical conf.
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Bahija Gouimi, our CML Queen of Africa and one of the best patient advocates I know, talking about what CML community has done to establish guardrails of therapy cessation in deep remission in low and middle income countries, and where the challenges with TFR are. #cmlhz24
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At this #CMLHZ24, be sparking not still! :) welcome to CML Horizons 2024 in Vilnius, dear advocates as clinicians!
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RT @PFMDwithPatient: @eupatientsforum @eupatients @jangeissler : "It is unlikely that many clinicians will attend this meeting. In the cancā¦
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RT @MyelomaEurope: @anandaplate speaking about cross border access to trials: The ultimate aim should be to bring trials to patients. Untilā¦
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RT @XgegenKrebs: āBei der Begutachtung von Fƶrderprojekten des @BMBF_Bund entscheiden #Patientenvertretende immer mit.ā Alexia Parsons, Leiā¦
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Suche great pleasure and honor to contribute to your important research project @TheaLalova @robbesaesen
4/ We are immensely grateful to all survey participants for their valuable time and insights. Thank you to my co-authors Robbe Saesen, Mitchell Silva, @jangeissler, Iryna Shakhnenko, Jenny Camaradou, and Isabelle Huys for the great collaboration.
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RT @XgegenKrebs: āIch bin sehr stolz, was in den ersten 5ā£ Jahren der #XgegenKrebs geschaffen wurde. #Patientenbeteiligung ist Ć¼berall dabeā¦
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Interesting presentation of @AndreasHochhaus at #ASH23 about 8 year Asciminib data of phase-I study of Asciminib. With median treatment of -6yrs, only 13% patients discontinued due to AEs. No increased risk of AEs with longer exposure, no new safety signals
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Look at these survival curves on CML as presented by @AndreasHochhaus at #ASH23. Who still remembers the 30% survival curves of the pre-TKI era?
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CML expert @AndreasHochhaus presenting data of the CML TIGER study at #ASH23. 95% 8year survival in this study of newly diagnosed CML patients. Amazing how far we have come in 2023, CML outcome and survival was still so different when I first attended ASH in 2008ā¦
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This is what it feels like on a typical #ASH23 evening after 13.49km and 18.012 steps at the San Diego Conference Center, chasing between meetings and sessions all day. The @AcuteLeuk team at the @ASH_hematologyās Annual Meeting calls it a day for today :)
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