#IPIC2025 registration is officially open! Don’t miss your chance to secure early bird rates! 🐦 Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care. 🎟️Secure your ticket here: #IPIC2025 #EarlyBirdRates #PrimaryImmunodeficiency

🚀 IPOPI is now on @bluesky! 🌤️ We’re expanding our presence to #Bluesky, a new platform for discussions and updates on #PrimaryImmunodeficiencies. Follow us there to stay connected! 📲💙 🔗 #IPOPI #StayConnected

🌍A big thank you to all the NMO delegates who participated in IPOPI's latest NMO Webchat! We were thrilled to welcome all the 40 participants from 28 countries worldwide. 📜After the welcome remarks from @martinepergent, we were honored to hear from our guest, Dr Nahla Erwa from #Sudan, who provided valuable insights into "Understand PIDs - What every advocate should know". #NMO #Webchat #PID #GlobalHealth #ThankYou #InternationalDelegates #online

🌍 World Cancer Day 2025 IPOPI stands in solidarity with millions of patients worldwide fighting cancer and shines a spotlight on a lesser-known but critical connection: the link between Primary Immunodeficiencies (PIDs) and increased cancer risks. 🔬 Individuals with PIDs face unique challenges, including a higher risk of developing certain cancers due to compromised immune systems. Prevention is key. Appropriate screening for specific cancers associated with certain PIDs, along with a multidisciplinary approach, ensures optimal care. 📄 IPOPI Leaflet: 📹 IPOPI Mini-Doc: 💡 Together, we can: ✅ Raise awareness about PIDs and their connection to cancer. ✅ Advocate for equal access to diagnostics and treatments. ✅ Support advancements in research and therapies to combat these challenges. This World Cancer Day, IPOPI calls on policymakers, healthcare providers, and the global community to recognize and act on these priorities to ensure equitable cancer care for all. 📢 Share this message and help raise awareness! #WorldCancerDay #PIDsAndCancer #IPOPI #CancerCareEquity #AdvocacyMatters

🌍 IPOPI is at the #EUHealthSummit in Brussels today! Together, we’re exploring ways to keep our EU healthcare systems sustainable and ensure health remains a top priority at the EU level, especially for #RareDiseases. 📢 @JohanPrevot, IPOPI Executive Director, is spotlighting the need for more patient-centered research and stronger collaboration to drive innovation in Europe. Let’s work towards reshaping health for a stronger and healthier Europe! #HealthIsStrength #Innovation #PatientsFirst #IPOPI

RT @JohanPrevot: Glad to be participating in the #EUHealthSummit in Brussels today. How can we ensure our EU healthcare systems remain sust…

Big thanks to the patient advocates, experts, and policymakers for making this #PIDForum so impactful! Highlighting remaining challenges and opportunities to favour a patient-centred use of #AI in healthcare and improve the lives of patients living with PIDs in the #EU. Stay tuned for the recommendations and the report!

As #PIDForum concludes, our @Europarl_EN host, @AndrasjKulja, draw some key learnings from today’s discussion and reaffirm his intention of partnering with patients to ensure that #AI is fit for purpose and patient-centred. We are grateful for your help and eager to continue our work for the well-being of #PID patients and their families!

Representatives from #AEDIP, #ARPID, #IRIS and the #EstonianPID patient organisation are in the room sharing their perspectives on the challenges posed by #AI but also on the hopes that the implementation of this technology can have in the diagnosis, treatment and care of patients with #PIDs in the #EU. #PIDForum

IPOPI President, @martinepergent, wraps up this panel discussion by suggesting some recommendations on the basis of the opportunities and challenges voiced by our speakers. #PIDForum

Dr Jacques Riviere, from Vall d’Hebron University Hospital, shares the exciting projects he is involved in to improve #diagnostics as well as the challenges brought by the need to use algorithms as medical devices. #PIDForum

Dr Helen Leavis, from UMC Utrecht, provides participants with concrete examples of how she is bringing #AI into clinical practice and the challenges and potentials the implementation of the technology brings. #PIDForum

Time for our panel discussion with experts from different fields. @JohanPrevot, executive director at @ipopi_info, presents an innovative project #IPOPI is working on, which aims at improving the identification of patients that potentially have a #PID. #PIDForum

Nooshin Amirifaar, from CEN – CENELEC, dives into how the #EU committees working on standardization of #AI can help making technology more easily applicable throughout the EU. #PIDForum

Martin Ulbrich, European Commission representative from the AI Office, shares the European Commission’s perspective on #AI, what their current work is and their planned activities. #PIDForum #EU

Thank you, MEP @AndrasKulja, for your very incisive words on how the #EU is approaching #AI, the concerns that it poses and its potential benefits in healthcare. #PIDForum

IPOPI President, @martinepergent dives into the topic of AI from the perspective of @ipopi_info, by showing the potentials and challenges #AI poses in the field of #PIDs, rare and chronic diseases. #PIDForum