IFSBH Profile
IFSBH

@ifsbh

Followers
3K
Following
12K
Statuses
14K

The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation for Spina Bifida and Hydrocephalus associations

Brussels, Belgium
Joined December 2009
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@ifsbh
IFSBH
2 months
๐Ÿ“ฃ #CallForTenders We are looking for EU-based web developers with #WebAccessibility knowledge to help us create a new website! Send us your offers by 15 December at info@ifglobal.org โ†ช๏ธMore info and requirements: #WebAccessibility #callforwebdevelopers
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@ifsbh
IFSBH
3 minutes
Be our Valentine - show us some โค๏ธ Donate monthly or just once ๐Ÿ‘‰ Your support can make a meaningful difference in the lives of people with Spina Bifida and Hydrocephalus and their families worldwide! ๐Ÿซถ #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
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@ifsbh
IFSBH
19 hours
๐Ÿ“ข IF supports Rare Diseases International with the proposed WHA Resolution on #RareDiseases to be adopted during #WHA78 in May: The resolution underscores IF's priorities as per the recent Kuala Lumpur Declaration:
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@ifsbh
IFSBH
2 days
๐Ÿ“ฃ Just launched: New guidelines to optimise urological care ๐Ÿฉบ๐Ÿ’ง providing tools to: โžก๏ธ Prevent renal damage โžก๏ธ Improve bladder function โžก๏ธ Improve the quality of life of children with #SBH and their families Read more๐Ÿ‘‰ #SpinaBifida #UrologyCare
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@ifsbh
IFSBH
8 days
IF welcomes the thematic pre-GDS summit webinar today organised by @IDA_CRPD_Forum @unprpd @iddcconsortium to promote #HealthEquity for #PWD. Check IF's work on #HealthEquity in the historical Kuala Lumpur Declaration and co-sign: @GDS_Disability #GDS2025
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@ifsbh
IFSBH
14 days
Join us next week for the EU-Ukraine webinar on spinal dysraphisms: Epidemiology of Spina Bifida in Ukraine and the prevention of #NTDs! ๐Ÿ‘ฅ Prof. Wladimir Wertelecki & Dr. Sylvia Roozen ๐Ÿ“… Thursday 6 February, 18:00 CET / 19:00 EE ๐Ÿ“ Online (Zoom) ๐Ÿ”—
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@ifsbh
IFSBH
21 days
On #EducationDay, IF calls for a rights-based approach to inclusive education for students with disabilities, such as #SpinaBifida & #Hydrocephalus #SBH #JournรฉeDeLร‰ducation #inclusion
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@ifsbh
IFSBH
1 month
โณ1 hour to go until the #WFAAW25 webinar. ๐Ÿ’ฌ Join the discussion and get or share expert advice on #FoodFortification policies for a healthier, stronger, and smarter future for all ๐Ÿ‘‰ #FolicAcid #SpinaBifida #Hydrocephalus #SBH
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@ifsbh
IFSBH
1 month
Looking forward to welcoming you to tomorrow'sย #WFAAW25ย webinar 'Prevention of Neural Tube Defects: Leaving No One Behind'! Whoever hasn't registered yet can still do it here ๐Ÿ‘‰ Not to be missed! โœจ #FolicAcid #FoodFortification #SBH #LeaveNoOneBehind
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@ifsbh
IFSBH
1 month
#WFAAW25 Mandatory #FoodFortification with #FolicAcid is a cost-effective measure to reduce this risk of #NTDs ๐Ÿ‘‰
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@ifsbh
IFSBH
1 month
#WFAAW25 @WHO Assembly adopted the WHA 76.19 Resolution pushing towards safe and effective #FoodFortification ๐Ÿ‘‰ #FolicAcid #Prevention #WHA76
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@ifsbh
IFSBH
1 month
#WFAAW25 On average 1 in 500 newborns are affected by #NTDs. Most NTDs, such as Spina Bifida, are preventable thanks to #FolicAcid and #FoodFortification. Learn more ๐Ÿ‘‰
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@ifsbh
IFSBH
1 month
#WFAAW25 #FolicAcid is essential for the proper closing of the neural tube of a foetus within 28 days after conception. Learn more and support IF in spreading awareness about folic acid ๐Ÿ‘‰
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@ifsbh
IFSBH
1 month
#WFAAW25 @WHO recommends taking a daily #FolicAcid supplementation of 400mcg for at least 12 weeks before conception. Why is this important? ๐Ÿ‘‡
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@ifsbh
IFSBH
1 month
๐Ÿ‘‡ Meet the speakers of the #WFAAW25 webinar on 7 January! Register to join the discussion on how we can build a healthier future for all through #FoodFortification implementation:
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@ifsbh
IFSBH
1 month
Happy 2025!๐Ÿ“ท Join us to raise awareness about the #WFAAW25 starting today! ๐Ÿ‘‰ Download WFAAW toolkit: ๐Ÿ‘‰ Register for WFAAW webinar: #FolicAcid #FoodFortification
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@ifsbh
IFSBH
2 months
โœจ IF would like to wish you a happy and prosperous 2025! Looking forward to continuing the good work together with you next year. ๐Ÿ—“๏ธ 2025 kicks off with the World Folic Acid Awareness Week #WFAAW25 webinar on 7 January ๐Ÿ‘‰
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@ifsbh
IFSBH
2 months
๐ŸคฉThe 2025 will kick off with our World Folic Acid Awareness Week (WFAAW) webinar. ๐Ÿ‘‰Join us online on 7 January: ๐Ÿ‘‰Download IF toolkit to promote the World Folic Acid Awareness Week on 1-8 January: #WFAAW25 #FolicAcid #Prevention
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@ifsbh
IFSBH
2 months
๐Ÿ—“๏ธ Join us on December 17 at 1:00 PM (CET) for our meeting dedicated to youth, focusing on advocacy and the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). ๐Ÿ“ฒ Registration is required by the link We canโ€™t wait to see you!
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@ifsbh
IFSBH
2 months
On #UHCDay, IF welcomes the @WHO Report on Health Equity for Persons with Disabilities and calls for urgent action to break down barriers and promote health equity for all ๐Ÿ‘‰ #SpinaBifida #Hydrocephalus #SBH #DisabilityRights #AccessToHealth
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@ifsbh
IFSBH
2 months
Happy #HumanRightsDay ๐Ÿ‘ This year's theme is #OurRightsOurFuture On this important day, IF calls for action on #MentalHealth support for persons with #SBH as a universal human right and a cornerstone of an inclusive, fulfilling life โžก๏ธ @UNHumanRights
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