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IFSBH
@ifsbh
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The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation for Spina Bifida and Hydrocephalus associations
Brussels, Belgium
Joined December 2009
๐ฃ #CallForTenders We are looking for EU-based web developers with #WebAccessibility knowledge to help us create a new website! Send us your offers by 15 December at info@ifglobal.org โช๏ธMore info and requirements: #WebAccessibility #callforwebdevelopers
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Be our Valentine - show us some โค๏ธ Donate monthly or just once ๐ Your support can make a meaningful difference in the lives of people with Spina Bifida and Hydrocephalus and their families worldwide! ๐ซถ #SpinaBifida #Hydrocephalus #SBH #DisabilityRights
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๐ข IF supports Rare Diseases International with the proposed WHA Resolution on #RareDiseases to be adopted during #WHA78 in May: The resolution underscores IF's priorities as per the recent Kuala Lumpur Declaration:
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๐ฃ Just launched: New guidelines to optimise urological care ๐ฉบ๐ง providing tools to: โก๏ธ Prevent renal damage โก๏ธ Improve bladder function โก๏ธ Improve the quality of life of children with #SBH and their families Read more๐ #SpinaBifida #UrologyCare
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IF welcomes the thematic pre-GDS summit webinar today organised by @IDA_CRPD_Forum @unprpd
@iddcconsortium to promote #HealthEquity for #PWD. Check IF's work on #HealthEquity in the historical Kuala Lumpur Declaration and co-sign: @GDS_Disability #GDS2025
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On #EducationDay, IF calls for a rights-based approach to inclusive education for students with disabilities, such as #SpinaBifida & #Hydrocephalus #SBH #JournรฉeDeLรducation #inclusion
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โณ1 hour to go until the #WFAAW25 webinar. ๐ฌ Join the discussion and get or share expert advice on #FoodFortification policies for a healthier, stronger, and smarter future for all ๐ #FolicAcid #SpinaBifida #Hydrocephalus #SBH
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Looking forward to welcoming you to tomorrow'sย #WFAAW25ย webinar 'Prevention of Neural Tube Defects: Leaving No One Behind'! Whoever hasn't registered yet can still do it here ๐ Not to be missed! โจ #FolicAcid #FoodFortification #SBH #LeaveNoOneBehind
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#WFAAW25 Mandatory #FoodFortification with #FolicAcid is a cost-effective measure to reduce this risk of #NTDs ๐
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#WFAAW25
@WHO Assembly adopted the WHA 76.19 Resolution pushing towards safe and effective #FoodFortification ๐ #FolicAcid #Prevention #WHA76
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#WFAAW25 On average 1 in 500 newborns are affected by #NTDs. Most NTDs, such as Spina Bifida, are preventable thanks to #FolicAcid and #FoodFortification. Learn more ๐
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#WFAAW25
#FolicAcid is essential for the proper closing of the neural tube of a foetus within 28 days after conception. Learn more and support IF in spreading awareness about folic acid ๐
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#WFAAW25
@WHO recommends taking a daily #FolicAcid supplementation of 400mcg for at least 12 weeks before conception. Why is this important? ๐
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๐ Meet the speakers of the #WFAAW25 webinar on 7 January! Register to join the discussion on how we can build a healthier future for all through #FoodFortification implementation:
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Happy 2025!๐ท Join us to raise awareness about the #WFAAW25 starting today! ๐ Download WFAAW toolkit: ๐ Register for WFAAW webinar: #FolicAcid #FoodFortification
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๐คฉThe 2025 will kick off with our World Folic Acid Awareness Week (WFAAW) webinar. ๐Join us online on 7 January: ๐Download IF toolkit to promote the World Folic Acid Awareness Week on 1-8 January: #WFAAW25 #FolicAcid #Prevention
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On #UHCDay, IF welcomes the @WHO Report on Health Equity for Persons with Disabilities and calls for urgent action to break down barriers and promote health equity for all ๐ #SpinaBifida #Hydrocephalus #SBH #DisabilityRights #AccessToHealth
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Happy #HumanRightsDay ๐ This year's theme is #OurRightsOurFuture On this important day, IF calls for action on #MentalHealth support for persons with #SBH as a universal human right and a cornerstone of an inclusive, fulfilling life โก๏ธ @UNHumanRights
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