FH Europe Foundation
@fhpatienteurope
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The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS
Europe
Joined April 2016
Only 3 weeks until #RareDiseaseDay! 💜 Let’s come together to raise awareness, share stories, and support the rare disease community. Every voice matters—let’s make an impact! #TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #HoFH #FCS #FHEuropeFoundation @eurordis
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5% of the world’s population lives with rare diseases, impacting patients and families. FCS and HoFH are rare inherited disorders with major health implications. On #RareDiseaseDay, let’s raise awareness and support those affected. #TheRareWeShare #MoreThanYouCanImagine @eurordis
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Rare diseases affect fewer than 1 in 2,000 people. Over 300M globally live with one, including HoFH & FCS. On #RareDiseaseDay, we emphasize awareness, early access to treatments. Support rare disease communities. #TheRareWeShare #MoreThanYouCanImagine #HoFH #FCS #FHEF @eurordis
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RT @FH_EARLY: 📷 Introducing FH-EARLY: A Game-Changer for Familial Hypercholesterolemia (FH) Care! Learn more about our mission and get to k…
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1 month until #RareDiseaseDay! 🌍 Join our Network Call today to learn how we’re advocating for HoFH & FCS and how you can get involved. 🕒 3:00 PM CET 🔗 #TheRareWeShare #MoreThanYouCanImagine @eurordis
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The Made with Patients Awards celebrates individuals and initiatives across healthcare who put patients at the center of innovation. Know someone who deserves this recognition? Nominate them by Feb 14! 🔗 #MadeWithPatients #PatientEngagement
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With our dedicated focus on #HoFH and #FCS, rare and severe familial hyperlipidaemias we are pleased to share our support of the #WHA Resolution on Rare Diseases led by the Rare Diseases International. 🌍 Read more here: #FHEuropeFoundation
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RT @ATH_Plus: Switching from lipoprotein apheresis to evolocumab lowers arachidonic acid and its pro-inflammatory metabolites, potentially…
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RT @BNordestgaard: Familial hypercholesterolemia was recorded in Danish registries since 1978, as the only country in the world. In both wo…
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We’re excited to join the iCARE4CVD Patient Advisory Board! 🫀🌍 This #IHI project focuses on personalised care for #CVD patients, using #biomarkers & #AI to improve treatments. Patients remain at the heart of the project. 💙 Learn more:
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#RareDiseaseDay is near! 🌟 Join our Network Call to explore how we’ll spotlight #HoFH & #FCS this year. 📅 January 28🕒 3:00 PM CET 🔗 Let’s raise awareness together. 💬 @eurordis
#fheuropefoundation
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📢 Starting January 12, 2025, the new EU HTA Regulation will: ✅ Speed up access to treatments ✅ Increase transparency ✅ Give patients a central role ✅ Harmonize assessments 💡Learn more: #EUHTA2025 #PatientAdvocacy #FHEuropeFoundation
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Exciting Start to 2025! Czechia has approved a National Cardiovascular Plan to address heart disease, its top killer—a big win for #CVH and prevention! Read more in Euractiv: #CardiovascularHealth #Prevention #FHScreening #LipoproteinA #PragueDeclaration
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🌟 Beau Rijken from The Netherlands stays active with hockey – a sport she shares with her father and their experience with Lp(a). ✨ "Hockey clears my mind & keeps me moving with friends." 💬 What’s your favorite team sport? #FHEuropeFoundation #BeActive #FHEFCommunity
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🌄 Joanna Ten-Kate from Global Heart Hub finds balance hiking Ireland’s stunning Diamond Hill. ✨ "Fresh air calms my mind – hiking helps body & soul." 💡 Get outside this holiday – explore trails, parks, or scenic walks to recharge! #FHEuropeFoundation #BeActive #FHEFCommunity
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🎆 As we welcome 2025, Joanna Lane, FH Europe Chair, shares: "I’m a composer – helping others unite, practice & perform beautifully." ✨ "Step to the music you hear, however distant." 💬 What inspires your path? #FHEuropeFoundation #SelfCare #FHEFCommunity
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🌟 Goodbye 2024 – thank you for all we achieved together! ❤️ Here’s to a 2025 filled with hope, progress, and new possibilities. Wishing you a bright and healthy New Year! 🎆 #HappyNewYear #FHEuropeFoundation
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✨ “Raja Yoga unites body, mind & spirit.” 🎄 David Antoniotti finds balance and peace in Raja Yoga, strengthening body and soul. 💡 Try Raja Yoga this season for well-being. 💬 How do you stay connected to mind & body? #FHEuropeFoundation #BeActive #FHEFCommunity
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🌟 Sisters Staying Active 🌟 🎄 Arwen & India Rijken stay active with skiing & dog walks! ⛷️ Arwen feels free skiing. 🐾 India walks her dog Mango during recovery. 💬 How do you stay active? #FHEuropeFoundation #BeActive #FHEFCommunity
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🥟 A Taste of Nepal 🎄 Athanasios Pallidis, living with HoFH in Greece, shares a Nepali chutney recipe – perfect with dumplings! 📋 Full recipe: #FHEuropeFoundation #EatHealthy #FHEFCommunity
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