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@cureangelman
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Dedicated to finding a cure for Angelman syndrome, to bring practical treatment into current medical practice as quickly as possible.
Joined September 2009
📣 Are you new to the Angelman syndrome community? We’d love to meet you and share what resources we have to offer! 👉 Join our community today:
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🧑🤝🧑 While characteristics can be common among genotypes of Angelman syndrome, no one individual living with AS is the same, and should not be defined by their genotype! Learn more about traits & symptoms:
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❤️🩹 A journey to an Angelman syndrome diagnosis is unique for each family, in some cases receiving a misdiagnosis first. Learn more:
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💬 “Clément gives us a lot of love. With him, we learned what was really important in life.” 💙 Thank you, Laurence Terrise and Clément Fonteneau, for sharing your joy with us!
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Together, we can make sure our loved ones continue to receive the care and support they deserve.
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⏰ If you plan to join us in Washington, DC on March 4-5th for our annual AS Congressional Advocacy Day, be sure to book your hotel through our room block by Tuesday, February 11th. 💸 Book now: 🏛️ Register for the event:
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⏰ If you don’t yet have a plan for your participation in International Angelman Day on February 15th, now is the time to prepare! Find ways to get involved:
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