It's Rare Disease Month! Please help us spread awareness and support research efforts. Your involvement can make a significant difference! #leighsyndrome #mitochondrialdisease

RT @epsportsnet: 📣A Challenge to the Sports Teams for this Sept From the Boggs Family in Support of World Mito Week 2025 Will You Join US I…

Mitochondrial and Inherited Metabolic disease taskforce is led by Critical Path Institute and includes over 20 stakeholders. Learn more at: #leighsyndrome #mitochondrialdisease

🦓 "Think horses, not zebras," but in rare diseases, zebras are real. This Rare Disease Month, learn about Leigh syndrome, help us spread awareness and raise funds: #leighsyndrome #mitochondrialdisease

We hope our checklist can help those recently diagnosed or anyone else going through a hard time. To find more support visit: #leighsyndrome #mitochondrialdisease

🌟 This week is Feeding Tube Awareness Week: 45% of our registry participants rely on feeding tubes for nourishment. Share and join the registry to be counted: #leighsyndrome #mitochondrialdisease

Join a virtual screening of a documentary about the journey of a mother searching to help her child with a rare disease, sponsored by Know Rare. RSVP:

🌟 Donate $28 or more any time in February and get a chance to win one of five adorable Cure Mito monkeys! 🐵💚 Winners announced on Rare Disease Day, Feb 28. Let’s raise awareness together! Donate at: #RareDiseaseDay #CureMito #DonateToWin

💖 Valentine's Day is just around the corner! Have you ordered your shirts yet? 💌 Order today and support vital research efforts through the Cure Mito Foundation. Shop now: #Leighsyndrome #mitochondrialdisease

Welcome Dr. Jonathan R. Brestoff to our Medical & Scientific Advisory Board! Dr. Brestoff is renowned for his pioneering work in mitochondrial transfer, especially in treating metabolic diseases like Leigh Syndrome. #leighsyndrome #mitochondrialdisease

Thank you, El Paso Sports network, for an interview with our co-founders Courtney and Jacob Boggs, highlighting the story of their family and Cure Mito Foundation. Please listen at: ttps://youtu.be/J4Sm0V27JaQ #leighsyndrome #mitochondrialdisease

Patient involvement in medical research, spanning prevention to clinical trial design, is replacing outdated tokenistic paradigms with inclusive models like patient experts, who work closely with researchers and clinicians.

Recording from Mito Transfer talk with Dr. Jon Brestoff is available and can be found at: #leighsyndrome #mitochondrialdisease

Today, we honor Dr. Martin Luther King Jr., who showed us that courage and compassion have the power to change the world. 💙 #MLKDay

Thank you Dr. Jonathan Brestoff for an a truly inspiring and informative talk today! Thanks to all who joined for participation and great questions. Please stay tuned for recording! #leighsyndrome #mitochondrialdisease

📚 Does your child rely on long-term ventilator support? Explore this essential guide by Dr. Jeffrey Edwards from Columbia University Medical Center. #leighsyndrome #mitochondrialdisease

🌟 Shoutout to Kathryn Marshall, our amazing volunteer! Kathryn is helping us with updating our website, conference planning, and more—all in honor of her nephew Zander. We're incredibly thankful for her dedication! 💙 #VolunteerAppreciation #Teamwork

🌟 This Friday! Join us for a webinar with Dr. Jonathan Brestoff on mitochondria transfer: #leighsyndrome #mitochondrialdisease

Today we are sharing some regulatory terms you may come across if participating in a clinical trial. You can find a full glossary of terms on our website:

Did you know that we have a directory of over 100 specialists who treat Leigh syndrome patients? Please enter your doctors into the form: Doctors are also welcome to refer themselves.