CSF Leak Association
@csfleakuk
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A UK charity raising CSF leak awareness, supporting sufferers and families, and advancing diagnosis and treatment.
Scotland, England, Wales & NI
Joined April 2016
1️⃣ WEEK TO TO GO! 🚨 For our third monthly webinar, Dr Indran Davagnanam, will explore imaging techniques used in diagnosing and managing CSF leaks. Who's joining us? 🙋🏻♂️🙋🏽♀️ #CSFLeakAssociation
#csfleak
#webinars
#SIH
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🎯 Making waves at #BASH2025! Our trustee Bern connected with 300+ healthcare professionals on CSF leaks, alongside Dr Sanjay Cheema's expert presentation. Huge thanks to Bern for 3 days of tireless advocacy! 💪 #CSFLeaks #SIH #standupforcsfleakers #CSFLeakAssociation
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RT @WouterSchievink: Brain sagging can cause symptoms of behavioral variant frontotemporal dementia. A spinal CSF leak is found in <50%. Az…
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RT @UK_headache: @sanjay_cheema presenting at BASH meeting in Hull on Spontaneous Intracranial Hypotension #SIH @csfleakuk. Highlights impo…
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🚨 We're excited to announce our third speaker, Dr Indran Davagnanam, Consultant Neuroradiologist at NHNN. Join to learn about imaging techniques for CSF leak diagnosis and management. Register 👉🏻 #CSFLeakAssociation #CSFleak
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🏛️ We're supporting The Neurological Alliance at Parliament on 16 January to advocate for better care and support for people with CSF leaks and other neurological conditions. 📝 Invite your MP #backthe1in6 #csfleak #csfleakassociation #NeurologicalAlliance
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🚨 LESS THAN A WEEK TO GO! 🚨 Dr Brendan Davies, consultant neurologist and co-author of both NICE headache guidelines and SIH consensus guidelines, will explore clinical assessment and differential diagnosis of CSF leaks. Register now
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✨ Happy New Year! As we enter 2025, we're grateful for our amazing CSF leak community. Together, we'll continue raising awareness, supporting patients, and working towards better understanding and treatment of CSF leaks. 💚 🌟 🌍 #CSFLeakAssociation #NewYear2025 #CSFleak
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🎄 ✨ Sending warm wishes to our global CSF leak community this Christmas and holiday season. 🌟 To patients, carers, medical teams and supporters worldwide - thank you for your incredible support throughout 2024 💚 🙏 🌍 #CSFLeakAssociation #CSFleak
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📺 Missed our first webinar on spontaneous CSF leaks with Dr Sanjay Cheema? It's now available to watch on demand on our website 👉🏻 #CSFLeakAssociation #CSFleak #SIH
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🚨 We're excited to announce our second speaker, Dr Brendan Davies, consultant neurologist and guideline co-author. Join to learn about clinical assessment and diagnosis of CSF leaks. Register 👉🏻 #CSFLeakAssociation #CSFleak
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We're proud to #BackThe1in6! The government is launching the first ever forum to address gaps in treatment, care and support for people affected by neurological conditions. Learn more about this landmark initiative👇🏻
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🚨 JUST 1️⃣ WEEK TO GO! 🚨 For our first monthly webinar, Dr. Sanjay Cheema will give an overview of the condition, an overview of the guidelines, and answer your questions live. Who's joining us? 🙋🏻♂️🙋🏽♀️👇🏻
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📢 We're now on Bluesky! Follow @csfleak.bsky.social to stay connected with our CSF leak community on this new social platform. Let's continue spreading awareness together! 🌟#CSFLeak #CSFLeakAssociation #PatientAdvocacy
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🚨 We’re excited to announce our first speaker, Dr. Sanjay Cheema, lead author of the UK’s first guidelines on managing spontaneous CSF leaks. Join to hear an overview of the condition and a tour of the guidelines. Register 👉🏻 #CSFLeakAssociation #CSFleak
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RT @brainspine: Your voice matters. Be part of the largest survey of people affected by neurological conditions in the UK & Republic of Ir…
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RT @Bonnie_Gagnon: Leave no patient behind. We all deserve help. Please listen to the patient. We know our bodies well. #csfleak #csfleaka…
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Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter this by asking you to complete a survey before 30th November
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We’re thrilled to launch our first series of free webinars, starting December 7th, from 3 PM to 4 PM! Join us monthly as we host some of the UK’s leading experts in the field. Find out more: #CSFLeakAssociation
#standupforcsfleakers
#coproduction
#csfleaks
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