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Charcot-Marie-Tooth Association
@cmtausa
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CMT is the most commonly inherited peripheral neuropathy and affects 3 million worldwide. Our mission is a world without CMT.
Glenolden, PA
Joined March 2009
Breathing problems is a symptom for some people who have Charcot-Marie-Tooth disease (CMT). CMT-induced neuromuscular respiratory weakness is caused by the muscles used for breathing becoming weakened. Learn more: #CharcotMarieTooth #CMTDisease #CMTAFamily
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Though Charcot-Marie-Tooth disease (CMT) is the most common inheritable peripheral neuropathy, many people are unfamiliar with #CharcotMarieTooth and its impact. That's why CMTA created a new video to explain #CMTDisease and raise #CMTAwareness:
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Help shape the future of #CMT1A treatment. Nervosave Therapeutics is seeking participants for a confidential survey on genetic therapy for CMT1A. Your feedback will help guide #CMTresearch and development. Learn more and take the survey:
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Here are 11 symptoms a person with #CharcotMarieTooth disease (CMT) may experience. Please note that this list is not meant to be exhaustive, and not every person with #CMT will experience all of the symptoms on this list. To learn more, visit #CMTAFamily
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Sue Bruhn, PhD discusses #CampFootprint on Episode #1 of CMTA's Simply CMT Podcast. Listen to the Full Episode at Camp Footprint Registration is now open! Learn more at #CMTAFamily #LetsBeatCMT #CMTStrong #charcotmarietooth
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Learn how CMTA-STAR Alliance Partner NMD Pharma’s CMT study laid the foundation for the SYNAPSE-CMT trial, now recruiting participants: #CMTResearch #CMTASTAR #CMT1 #CMT2
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Keys for A Cure: A Resonate Concert for CMT is a virtual fundraiser aimed at raising #CMTAwareness & funds to support #CMTDisease research. Keys for a Cure features pianist Riccardo Baldini & his adaptive pedal-pushing device “Resonate.” 🔗
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The Charcot-Marie-Tooth Association (CMTA)is thrilled to announce the designation of a new CMTA Center of Excellence at @DukeHospital in Durham, North Carolina. Learn more: #CharcotMarieTooth #CMTDisease #CMTAFamily
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CLINICAL TRIAL OPPORTUNITY! If you are between the ages of 18-70 and have been diagnosed with CMT1 or CMT2, you may be eligible for the SYNAPSE-CMT clinical trial. To learn more, visit #cmtresearch #clinicaltrial #charcotmarietooth #cmtdisease
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NEW EPISODE! CMTA's Shooting Star Episode #2 is now available on CMTA's YouTube Channel! In this episode, we discuss CMTA's Patients as Partners in Research platform. Watch Episode #2: #LetsBeatCMT #CMTAFamily #CharcotMarieTooth
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Couldn't attend this year's CMTA Patient & Research Summit? No worries! Purchase the #CMTASummit24 recordings today: #CMTAFamily #CMTResearch #LetsBeatCMT #CharcotMarieTooth #CMTDisease
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This #GivingTOESday, the #CMTAFamily came together in an incredible way to advance research & support families living with #CMT. Thank you to all who donated, shared & celebrated this special day with us! It's not too late to support CMTA in 2024! Visit
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Happy #InternationalVolunteerDay! Thank you to all the volunteers supporting the #CMTAFamily! It is because of you that CMTA can carry out its mission to improve the lives of those with #CMT. To learn more about CMTA and to get involved, visit
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@haydentiff @jimmorana21 Dr. Brett McCray is the clinical director at University of Michigan's Center of Excellence. He will see you if you have symptoms that look like CMT. Our head of comms & genetics expert Kenneth Raymond is in MI & happy to connect if you want to reach out to him: kenny@cmtausa.org
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@haydentiff @jimmorana21 Hi Tiffany! We are sorry to hear about what you’re going through. Have you considered visiting a CMTA Center of Excellence that specializes in CMT? You can check for one near you here:
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The Winter 2024 #CMTA Report is out! ✅ CMTA-STAR’s advances in gene therapies ✅ Clinical trials like Phase III INSPIRE for CMT-SORD ✅ Global partnerships like the CMTA-INC Strategic Alliance ✅ Inspiring community stories Read now: #LetsBeatCMT
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CMT2C / TRPV4 community members are invited to a meeting with Actio Biosciences & the research team working on the CMT2C Natural History Study. Register & join us on December 5th from 2 p.m. – 3:30 p.m. ET: #CMTAFamily #CMTResearch #CharcotMarieTooth
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