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Charcot-Marie-Tooth Association Profile
Charcot-Marie-Tooth Association

@cmtausa

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CMT is the most commonly inherited peripheral neuropathy and affects 3 million worldwide. Our mission is a world without CMT.

Glenolden, PA
Joined March 2009
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@cmtausa
Charcot-Marie-Tooth Association
16 days
Breathing problems is a symptom for some people who have Charcot-Marie-Tooth disease (CMT). CMT-induced neuromuscular respiratory weakness is caused by the muscles used for breathing becoming weakened. Learn more: #CharcotMarieTooth #CMTDisease #CMTAFamily
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@cmtausa
Charcot-Marie-Tooth Association
20 days
Though Charcot-Marie-Tooth disease (CMT) is the most common inheritable peripheral neuropathy, many people are unfamiliar with #CharcotMarieTooth and its impact. That's why CMTA created a new video to explain #CMTDisease and raise #CMTAwareness:
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@cmtausa
Charcot-Marie-Tooth Association
20 days
@FryDustin Yes, it does! Stay safe and warm, brother. đź’™
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@cmtausa
Charcot-Marie-Tooth Association
20 days
Help shape the future of #CMT1A treatment. Nervosave Therapeutics is seeking participants for a confidential survey on genetic therapy for CMT1A. Your feedback will help guide #CMTresearch and development. Learn more and take the survey:
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@cmtausa
Charcot-Marie-Tooth Association
21 days
In 2024, CMTA achieved incredible milestones: âś… $1.2M invested in CMTA-INC for clinical trial readiness âś… 34 research projects funded across 14 CMT subtypes âś… 5 new Centers of Excellence worldwide âś… 450+ Patient & Research Summit Attendees Read more:
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@cmtausa
Charcot-Marie-Tooth Association
29 days
Here are 11 symptoms a person with #CharcotMarieTooth disease (CMT) may experience. Please note that this list is not meant to be exhaustive, and not every person with #CMT will experience all of the symptoms on this list. To learn more, visit #CMTAFamily
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@cmtausa
Charcot-Marie-Tooth Association
1 month
Sue Bruhn, PhD discusses #CampFootprint on Episode #1 of CMTA's Simply CMT Podcast. Listen to the Full Episode at Camp Footprint Registration is now open! Learn more at #CMTAFamily #LetsBeatCMT #CMTStrong #charcotmarietooth
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@cmtausa
Charcot-Marie-Tooth Association
2 months
Learn how CMTA-STAR Alliance Partner NMD Pharma’s CMT study laid the foundation for the SYNAPSE-CMT trial, now recruiting participants: #CMTResearch #CMTASTAR #CMT1 #CMT2
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@cmtausa
Charcot-Marie-Tooth Association
2 months
For families like Molly and Quinn’s, a cure for Charcot-Marie-Tooth (CMT) disease would change everything. Will you help us make it possible? Your support drives research toward a cure— every donation by Dec. 31 will be matched! Give Today:
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@cmtausa
Charcot-Marie-Tooth Association
2 months
Keys for A Cure: A Resonate Concert for CMT is a virtual fundraiser aimed at raising #CMTAwareness & funds to support #CMTDisease research. Keys for a Cure features pianist Riccardo Baldini & his adaptive pedal-pushing device “Resonate.” 🔗
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@cmtausa
Charcot-Marie-Tooth Association
2 months
The Charcot-Marie-Tooth Association (CMTA)is thrilled to announce the designation of a new CMTA Center of Excellence at @DukeHospital in Durham, North Carolina. Learn more: #CharcotMarieTooth #CMTDisease #CMTAFamily
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@cmtausa
Charcot-Marie-Tooth Association
2 months
CLINICAL TRIAL OPPORTUNITY! If you are between the ages of 18-70 and have been diagnosed with CMT1 or CMT2, you may be eligible for the SYNAPSE-CMT clinical trial. To learn more, visit #cmtresearch #clinicaltrial #charcotmarietooth #cmtdisease
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@cmtausa
Charcot-Marie-Tooth Association
2 months
NEW EPISODE! CMTA's Shooting Star Episode #2 is now available on CMTA's YouTube Channel! In this episode, we discuss CMTA's Patients as Partners in Research platform. Watch Episode #2: #LetsBeatCMT #CMTAFamily #CharcotMarieTooth
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@cmtausa
Charcot-Marie-Tooth Association
2 months
Couldn't attend this year's CMTA Patient & Research Summit? No worries! Purchase the #CMTASummit24 recordings today: #CMTAFamily #CMTResearch #LetsBeatCMT #CharcotMarieTooth #CMTDisease
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@cmtausa
Charcot-Marie-Tooth Association
2 months
This #GivingTOESday, the #CMTAFamily came together in an incredible way to advance research & support families living with #CMT. Thank you to all who donated, shared & celebrated this special day with us! It's not too late to support CMTA in 2024! Visit
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@cmtausa
Charcot-Marie-Tooth Association
2 months
Happy #InternationalVolunteerDay! Thank you to all the volunteers supporting the #CMTAFamily! It is because of you that CMTA can carry out its mission to improve the lives of those with #CMT. To learn more about CMTA and to get involved, visit
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@cmtausa
Charcot-Marie-Tooth Association
2 months
@haydentiff @jimmorana21 Dr. Brett McCray is the clinical director at University of Michigan's Center of Excellence. He will see you if you have symptoms that look like CMT. Our head of comms & genetics expert Kenneth Raymond is in MI & happy to connect if you want to reach out to him: kenny@cmtausa.org
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@cmtausa
Charcot-Marie-Tooth Association
2 months
@haydentiff @jimmorana21 Hi Tiffany! We are sorry to hear about what you’re going through. Have you considered visiting a CMTA Center of Excellence that specializes in CMT? You can check for one near you here:
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@cmtausa
Charcot-Marie-Tooth Association
2 months
The Winter 2024 #CMTA Report is out! ✅ CMTA-STAR’s advances in gene therapies ✅ Clinical trials like Phase III INSPIRE for CMT-SORD ✅ Global partnerships like the CMTA-INC Strategic Alliance ✅ Inspiring community stories Read now: #LetsBeatCMT
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@cmtausa
Charcot-Marie-Tooth Association
2 months
CMT2C / TRPV4 community members are invited to a meeting with Actio Biosciences & the research team working on the CMT2C Natural History Study. Register & join us on December 5th from 2 p.m. – 3:30 p.m. ET: #CMTAFamily #CMTResearch #CharcotMarieTooth
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