Child Neurology Foundation
@Child_Neurology
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A national non-profit working through advocacy, research and education to ensure optimal care for children living w/neurologic conditions #ChildNeurology
Lexington, KY, United States
Joined December 2012
Coming Soon: #RareDC2025! Join hundreds of advocates in Washington, DC for Rare Disease Week on Capitol Hill (Feb 24–26, 2025)! 🏛️ Make your voice heard. Advocate for policies impacting the rare disease community. Register today! 👉
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Exciting news!🎉 Please join us in welcoming our newest members to the CNF Board of Directors! We’re grateful for their commitment to our mission. Learn about them here: #CaringForThoseWhoCare #childneurology #BoardofDirectors #ChildNeurologyFoundation
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In case you missed it: Applications are NOW OPEN for scholarships for U.S. & Canadian medical students! 🧠 Pursue summer research in child neurology or neurodevelopmental disabilities with funding support. Apply by 3/16/25! Details: #ICYMI #CNFGrants
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RT @ChildNeuroSoc: Check out what is happening in January! Register for each below: Jan 14: Jan 23:
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New year, new progress, new hope! ✨ In #2025, our renewed commitment is caring for those who care. 💙💜 Families, caregivers, medical professionals, advocates, and supporters—YOU are the heart of the #ChildNeurologyFoundation community. #CaringForThoseWhoCare #HappyNewYear
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“Transition of care can be complex, but CNF makes it easier.” Clinicians trust CNF to connect families & providers with essential care tools. This 2025, support our mission to empower them.💜 Donate today: #CaringForThoseWhoCare #EndOfYearGiving #CNF
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✨ Happy Holidays from all of us at the Child Neurology Foundation! ✨ Your strength and compassion inspire us every day. May this season bring you peace, joy, and connection. We're grateful to be part of this amazing community. 💙💜 #HappyHolidays #ChildNeurology #SeasonOfGiving
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🎄 This season, we celebrate YOU. One caregiver shared, “It’s not what I chose, but there are many reasons to be thankful.” 💖 CNF is here to remind you that it’s OK to take time for yourself & embrace your journey. Together, we create community of care.
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🎥 Episode 2 is here! Featuring experts from GeneDx, learn how to confidently appeal insurance denials for genetic testing. Missed Episode 1? Catch up now to Understand Your Insurance. 📺 Episode 1: 📺 Episode 2: #genetictesting
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News!👀 Thanks to @JazzPharma, and our 2024 Care Advancement sponsors @acadiapharma, @amgen, @alexionpharma, @catalystforrare, & @takedapharma, CNF awarded 13 grants for QI projects transforming pediatric neurology care! #ChildNeurology #CareAdvancement #PediatricCare
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RT @neurology_live: At #AES2024, Jessica Nickrand, PhD, and Allyson Eyermann, of @Child_Neurology, discussed multidisciplinary collaboratio…
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Every number tells a story—and a family we’ve helped. In 2024, your generosity educated 750+ clinicians, supported 713 families, partnered with 48 clinics, & tackled 56 advocacy issues. Let’s achieve even more in 2025. #DonateToday 💙 #ChildNeurology #TogetherForImpact #EOYGiving
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Applications are NOW OPEN! 📝 We’re offering 5 scholarships for U.S. & Canadian medical students 🌟 Explore child neurology this summer with funding for research. Apply by 3/16/25! Learn more: #MedEd #ChildNeurology #MedStudents #Research #CNFCommunity
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Thank you to our speakers & community partners: @MalanSyndrome, @RareEpilepsy, @tscalliance, & @AHCkids for making the 2024 @AmEpilepsySoc -CNF Symposium a success! We explored harmful behaviors in epilepsy & approaches to treatment. Collaboration drives progress! #AES2024
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🚴♀️As we close #ISAW, we introduce our 2024 Harnett Grant recipient, Gabriella Frantz! Diagnosed with #AicardiSyndrome before birth, which led to #InfantileSpasms, Gabriella’s journey inspires faith, resilience & hope. Read her story: #ChildNeurology
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Did you know 1 in 2,000 children is affected by #InfantileSpasms, a rare but serious seizure disorder? Early detection using the STOP method is CRUCIAL to better outcomes. 🛑See signs, Take video, Obtain diagnosis, & Prioritize treatment. Awareness saves.💜 #ISAW #CNFCommunity
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This #GivingTuesday, your donation to CNF means more than support—it means connection, care, and empowerment for families of children with neurologic conditions. 🌟 Together, we care for those who care. 💙💜🩵 Donate today & make an impact: #CNFCommunity
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Infantile Spasms Awareness Week (Dec 1-7) 🚩 See: Clusters of sudden, jerking movements (head bobs, body crunches)📹 Take: Record symptoms, talk to your doctor⚡️Obtain: Confirm with EEG🩺 Prioritize: Act fast to stop spasms, protect development. #ISAW2024
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The journey can be overwhelming—burnout, isolation, and unanswered questions. This #GivingTuesday, your support creates hope, connection, & access to life-changing programs. Join us in no family walking alone. 💙 #CaregiverSupport #CNFCommunity
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