Dr. Alice 💕
@calirunnerdoc
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Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Joined April 2009
@ShaneyWright @NIH There must be an urgent push for prevention of cardiovascular/ clotting events and neurodegeneration (early dementia) in #LongCovid and that’s the hill I plan to die on.
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I was a healthy cardiologist and marathon runner. Now, I have organ damage and I’m on two medications to thin my blood. Let’s call #LongCovid like it is. A condition with potential to cause a vasculopathy and clotting state that will lead to unprecedented medical complications.
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After two years of #LongCovid, I’ve developed Stage 3 Kidney disease- on top of my neurological issues. This is ongoing disease process that continues to assault organs. Yet,patients are told: “Go exercise! And have a positive attitude.” . We demand and deserve: #TreatLongCovid.
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The anecdotes of sudden death in young- mid age adults is like nothing I’ve seen in my career as a cardiologist. At what point does “anecdotal” evidence translate into urgent investigation & consensus documents to empower us to prevent these terrible outcomes? . #MedTwitter.
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Is #LongCovid a "real thing," #MedTwitter? I'll let you decide. Here's my own case: I'm a cardiologist(40s) with no prior medical Hx & have run tons of marathons & several 1/2 Ironman Tris. In March '20, I fell ill and became quickly hypoxic and confused. It was COVID-19. 1/.
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Gov’t announcements on #LongCovid during #Omicron surge:. Finland:.-This will be a widespread chronic illness.-Can affect kids.-Can infect brain and lead to cognitive impairment.-Will impact workforce and economy.-Will impact healthcare system.-This is a serious crisis. U.S.:.
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As a physician severely injured by COVID and now with #LongCovid, I had an appointment with a specialist canceled today because “several doctors are out sick.” Does anyone see a very troublesome pattern emerging here?.
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An infectious disease physician called to consult on my complex case entered my hospital room and said “I don’t deal with #LongCOVID.”. Would be like me saying: “I don’t deal with chronic heart failure.” . There is something very peculiar going on in medicine right now. 🧐.
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When I became ill with #LongCovid, I left practice for a bit. Took a job as a medical writer as I rehabilitated. Now, I come across articles I wrote last year that I don’t have any memory of writing. This virus can demolish the brain. Yet- we’re ok with pilots getting it now.
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Many people with #LongCovid had/have very mild initial cases, but are suffering greatly & need to be taken seriously. What's the point of this thread? Not for pity, vaccine debates, or treatment suggestions. It's to convince YOU, dear colleagues, that #LongCovid is real. /end.
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Hospitalized for ischemic bowel multiorgan damage from my ‘20 COVID infection. Was placed in a room adjacent to an acute COVID patient (who was not in a neg pressure room)- with same staff going to and fro between rooms- doors opening and closing. This is not infection control.
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Well- it happened. Got coughed on purposely. Took my mom to a spine surgeon today to get her out of pain. She & I were the only ones in the clinic in masks. As we checked out, a woman coughed on us. We backed away. She followed us, coughed. Backed away again, she followed.
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@danaparish I can’t express to you how terrifying it was to experience the brain injury and not understand what was happening to me. I started a FB group in Sept 2020 just for people with COVID brain damage just to convince myself I wasn’t alone. Turns out… I wasn’t. Even way back then.
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MRI Tech seeing post-C-19 on my chart: “So you’ve been having some brain fog or something?”. Me: “Actually, I’ve had multiple ischemic events, microbleeds & anoxic brain injury from C-19. I went from a functional cardiologist to unable to read & write at one point.”. Tech: _____.
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If you'd told me 25 years ago when I started medical school that in 2023, the only remaining hospital infection control of an airborne vasculotropic pathogen would be telling sick people not to come to the hospital, I'd have asked if law schools accepted neurobiology majors.
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We abruptly left to get away from the situation. Mom is elderly w medical issues, I’ve got severe #LongCovid & can’t take Paxlovid due to med interactions. Either one of us could die from reinfection. No one is safe in the US medical system. #BringBackMasks in healthcare.
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**I’ll add. We are in LA, CA. Where technically staff should still be in masks. My state is as blue as the ocean. Doesn’t matter. People don’t like reminders of the pandemic. Or elderly, or disabled. Normally I would have called police. Mom needed to get back into bed.🙏🏻😷👵.
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Want to see what a “COVID Brain” can look like?. Here’s mine. The white spots are not supposed to be there. You can’t see the microhemorrhages or swelling. Infected early March ‘20- pre-vaccine.But the threat is still here for everyone-vax or not, young or old. Please mask up.
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Went to a cancer hospital at major academic center today- filled to the brim with patients and personnel. I was the only one wearing an N95 respirator. Aside from the phlebotomist who drew my blood who was coughing through an N95 with an exhalation valve. What are we doing?.
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So, how close are we to the part in the pandemic when a guy in a bow tie from Harvard comes out and says: . “SARS-CoV-2 can significantly damage the immune system and is a vascular bomb 💣 .”. And everyone finally wakes the …. up? 🤷🏼♀️.
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#COVID19 causes blood vessel injury & can damage every organ in the body, including the brain, heart, & GI system- even in young, previously healthy people. Any media outlet or “medical expert” who isn’t telling you this often is not a good or safe source of information. 😷.
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. But ONLY when more sophisticated vascular inflammatory markers were checked. Check out this new study, which showed 14 more "nontraditional" vascular transformation biomarkers were elevated in #LongCovid compared to controls. 5/.
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Hopefully you can see where I'm going here- #LongCovid is a "stealth" disease, which requires "outside the box" thinking. While mine was a more severe initial case with some abnormal testing(eventually). A person can have "normal" traditional testing, and still be quite ill. 8/.
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Got fired from an oral surgeon’s office today. Showed up for surgery-assistant was visibly very sick-coughing & sneezing, no windows were open, no HEPA in room, no N95s. He knows my medical history- promised safety. Today, he shamed me and fired me for expressing concern.🖕.
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Two of the vascular biomarkers, ANG-1 and P-SEL, provided 96% classification accuracy for LC. Finally. great biomarker candidates!. SARS-CoV-2 is causing an endothelial (blood vessel lining) inflammation and damage in at least some people with #LongCovid. Why is this an issue?6/.
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My friend with #LongCovid x3.5 years who had surgery last week for urinary bleeding has a renal mass. She’s going to LOSE A KIDNEY. People with #LongCovid are losing organs. Having cardiovascular events. Dying. While the public’s being told it’s “brain fog” & “nothing new.”.
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@EricTopol So, in other words, we’ve trained dogs to identify #LongCovid before we’ve trained the medical community?.
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Does everyone believe me yet that SARS-CoV-2 is a vascular bomb 💣?.
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-Microvascular angina.-Appendicitis(s/p appy).-Acalculous cholecystitis (s/p chole).-Stage 3 Chronic Kidney Dx.-Ischemic Colitis.-Leukopenia.-Sleep apnea.-POTS. & More!. I NEVER had elevated d dimer, CRP, ESR, or troponin-I. But did have evidence of vascular inflammation 4/.
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My $0.02:.1. The only guaranteed way to avoid #LongCovid is to avoid COVID. 2. Normalizing untreatable chronic illness & disability that ruins lives, instead of working to achieve #1 is something that should cause outrage.3. @washingtonpost should re visit who's doing "Checkups.".
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Life with #LongCovid:. Today I’m seeing a concussion specialist. One who sees guys in the NFL. And I never got hit in the head. But have symptoms similar to traumatic brain injury victims. Three years after infection. Wear a mask.
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Did he just say what I think he said?. Yes, Professor. SARS-CoV-2 is a vascular 💣. Those of you with huge platforms MUST spread the word. Doesn’t the public deserve informed consent before reinfecting themselves repeatedly with a thromboembolic virus?.
@ScottUhlTX @GoHealio @bswhealth_DFW I think we don’t emphasize enough that SARS-2 is a thromboembolic virus.
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My workup was delayed, because my colleagues thought I "looked fine” despite fact that I was hypoxic, confused, couldn't walk to the bathroom without dyspnea, and couldn’t work. Over 2.5 years I was diagnosed w:.-COVID encephalopathy.-Anoxic brain injury w ischemic lesions 3/.
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Mom’s eye doctor: “Your mom had an eye stroke, you’ve had multisystemic vascular issues. We really need to find you two a doctor who is taking these SARS-CoV-2 related vascular events seriously…”. Me: Did you page?.
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Damaged blood vessels can lead to blood clots and damaged organs. In #LongCovid, there is evidence of MICROvascular damage, sometimes ONLY seen with special testing. Here's a study where they used Xenon MRIs to look at lungs in people with LC: 7/.
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Ever heard that “High Blood Pressure is a Silent Killer?”. That’s because it causes vascular disease- and vascular diseases can be silent… until they’re not. SARS-CoV-2 can cause a vascular disease in some people. That’s why it’s important to try not to get sick with it.
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If you were in a car crash w/ your friend, and walked away with a scratch, while they were seriously injured, would you brag about how well you "handled" the car wreck?. Because when you say your C-19 was a "just a cold" to a person w/#LongCovid, that's exactly what you're doing.
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I was hospitalized 2x for hypoxia within 2 months, but had "clear" CXR and chest CTs. My PaO2 was 78 on an ABG, but my PFTs were normal. I had left arm & leg numbness and apnea during sleep, which wasn’t worked up. I was sent home from hospital 2x with a Dx of "anxiety." 2/.
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SARS-CoV-2 is causing a serious vasculopathy. In its chronic stages (#LongCovid), its microvascular manifestations are evading detection by most conventional tests. Since ‘20, the vascular beds of most of my major organ systems have been affected. Now, it’s mesenteric (gut)./1.
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Spending my “Independence Day” in the hospital with ischemic colitis. Meaning- my intestine isn’t getting enough blood flow. Same thing happened to my brain, lungs, kidneys… amongst other organs over the past 3 years with #LongCovid. Be smart out there, and wear a damn mask.🇺🇸.
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The fact that shares of published @Nature articles on implications for Srs2 in pregnancy now being labeled for misinformation is terrifying.
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Younger people are having heart attacks because components of SARS-CoV-2 are vascular irritants. A vascular bomb 💣. It’s incredible that after four years, the government funded academic community has to continue to pretend that SARS-CoV-2 is not a modifiable CV risk factor.
Doctors say they are seeing an alarming number of seemingly healthy younger patients having heart attacks. Now doctors at Mount Sinai are tracking patients to see if they can uncover the new risk factors behind the trend. @annenbcnews reports.
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SARS-CoV-2 may be a blood vessel’s worst nightmare. I call it a “vascular bomb.” 💣 . We see proof of this vascular injury in living (#LongCovid) and deceased. XBB 1.5 will not be an exception. You can reduce your chances of infection by wearing an N95 respirator in public.
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Have several physician friends who’ve admitted they’ve been harassed & mocked for WEARING A MASK IN HEALTHCARE. This doc works with transplant patients & had a relative die of #LongCovid. She’s also witnessed what C-19 did to my health. I don’t recognize my profession anymore.
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Shame on any medical or dental practitioner who is so blinded by their cognitive biases that they’re willing to have their vulnerable patients get C-19 in their office & “fall by the wayside.” . Our lives matter. Stand up for yourself and your health. #KeepMasksInHealthcare.
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It’s irresponsible for anyone to downplay disease severity of the highly transmissible #OmicronVariant. We know that mild COVID can lead to clotting, brain damage, and even death. Let’s start reporting the truth about this virus- not what we think people want to hear. #LongCovid.
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I think about endothelium (blood vessel lining) a lot. Have for decades. SARS-CoV-2 is terrible for the endothelium: inflammation, clots. Endorsing repeat infections, no matter how “mild” is like saying it’s fine to “mildly” smoke. Or have “mild” diabetes. Not sustainable.
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Elderly mom got a text from hairdresser that she has “a bad cold or allergies” but is C-19 neg. Hairdresser knew to notify night before re: symptoms & mom knew to cancel on the spot because they were both empowered with knowledge. This is how you break chains of transmission.
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I'm getting very worried. The more confirmatory data that accumulates re: immune system, vascular, neurological & organ damaging effects of SARS-CoV-2 & #LongCovid, the more effort I see to bury the truth. This will delay care & detection. It will lead to devastating outcomes.
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Brain scan ordered for post COVID inflammation denied by PPO insurance because it’s “considered investigational, without adequate trial data to support its use.” . Anyone have #LongCovid “trial data” I can borrow? . 🤦🏼♀️.
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I’m touched by the support of my tweet. I share my story to raise awareness. I was in my early 40s, an endurance athlete, with no medical issues before COVID. I’ve had to deal with a lot of frightening health news in the past 2 years. This can happen to anyone. #TreatLongCovid.
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Two things many still don’t understand:. 1. SARS-CoV-2 causes a vascular, multisystemic illness & damages the immune system. 2. Damage can be cumulative, & it may take several “hits” before onset of #LongCovid. This is why you see people who were “fine” now in poor health.
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The “let everyone get it” plan only works if we have the resources in place to manage the aftermath. We don’t. Mild COVID can lead to the serious brain injury seen in #LongCovid. To not anticipate this neurological devastation will be one of the worst errors of the pandemic.
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This is gross negligence and reckless endangerment of health and life- and is happening in hospitals throughout the country. The @CDCgov and @TJCommission (Joint Commission)need to do their jobs. We need clean air and infection control policies in hospitals as COVID rages on.
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Actuaries report: “Among working people ages 35-44, 34% more died than expected in the last quarter of ‘22, with above average rates in other working age groups.”. “We’re seeing, right now, the highest death rates we have seen in the history of the business.”. Vascular bomb. 💣.
🚨”Week in, week out, this unnatural loss of life is on the scale of a war or terrorist event.”. @USATODAY breaks media silence on staggering amt of excess deaths in young & worked-aged Ppl, as confirmed by actuarial data. TY, @marybethpf
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Have blood vessels? 🩸. You’re at risk for having significant health issues from C-19. We’re in a surge. Its a great time to put your mask back on! 😷.
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Latest from Leana Wen:. "We might come to expect some frequency of post-covid symptoms, and the resulting disability, as a “new normal.” In that case, health resources must shift from avoiding the coronavirus to reducing and treating its worst consequences-including long covid.".
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In case you’re just catching up, the @US_FDA just told over 20 million Americans with devastating long term effects of SARS-CoV-2 (#LongCovid) that they’re not “financially attractive” enough to receive definitive medical treatment yet. I don’t recognize my profession anymore.
@LisaAMcCorkell @patientled @IDEpiHeather Rob Califf: this is an issue of net present value; what the market will do; There's a whole bunch of conditions that are not financially attractive right now, and I'm sorry to say that's what you're all [with #LongCovid] are facing now. 7/.
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Watching the majority of people at a #LongCovid symposium unmasked during a surge of C-19…. …is like watching people at a Cardiology meeting chain smoking & eating McDonalds.
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A disability attorney told me that many with #LongCovid are denied benefits because their symptoms are documented in medical records as psychogenic, or due to a mental disorder. She also told me she hopes these practitioners are ready to defend these assessments in court.
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@stevegoldca Thanks for reading. I was previously very private, never on social media. But this issue of #LongCovid… and what happened to me… is a story that I tell anyone in healthcare who will listen these days.
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I say this with every new variant:. No matter how “mild” or “allergy-like” the media & medical minimizers tell you a new variant is-. It’s still SARS-CoV-2. And as long as it affects immune systems, brains & blood vessels short & long term,. The “S” in SARS still means “Severe.”.
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@CDCDirector You and your peers tried this in ‘20- no one is falling for it again. We have completely unmitigated spread in the US- and have for months. How many people have died/ become disabled in that time? Stop blaming your failures on other countries. Please resign.
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I anticipate cardiologists will be swamped in coming months/yrs with cardiac & vascular complications of SARS-CoV-2. I’m one of those cardiologists- but currently in hospital with complications of SARS-CoV-2. This is our state of affairs. @CDCgov @WHCOVIDResponse @AshishKJha46.
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I’ve come across quite a few media pieces discussing #LongCovid and its drain on the labor force. Sufferers are painted more as a burden to employers than patients who need help- one journalist even proclaimed they’d “given up” on working. This is exactly how stigma starts.
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Heed this warning from an ER physician in Los Angeles:. A “new” pneumonia in “young, healthy” patients causing rapid decompensation, needing admission & critical care measures. “Negative” for flu, RSV, C-19. And,she’s getting ‘20 pandemic vibes. Why would you take a chance? 😷.
nurse at an L.A. ER today: "weird illness. something very unusual. I don't know what it is yet". cool, everything seems fine, totally normal
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Then why aren’t those of you publishing on dangers of reinfection wearing masks at packed conferences?. Or openly encouraging our colleagues to wear respirators- because their next reinfection could end their career or reinfect a #LongCovid patient? . The messaging doesn’t match.
As we wrote @ScienceMagazine. "Each reinfection contributes additional risk of #LongCovid: Cumulatively, two infections yield a higher risk of Long Covid than one infection, and three infections yield a higher risk than two infections"—@zalaly and me. The
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I’ve apparently had my brain cells stuck together for 3 years… yet find myself one of few medical professionals on here willing to commit to saying that SARS-CoV-2 is a vascular bomb 💣. #LongCovid is NEW. And we need to do everything possible to protect ourselves & children.
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2020- “Sorry, can’t help you. Come back when you turn blue and can’t breathe.”. 2021- “Never heard of #LongCOVID. Follow up in 6 months.”. 2022- “Sorry, can’t help you. No money for ‘test and treat’… refer to ‘2020’ above.”. What the hell happened to medicine in the US?.
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We’ve had countless celebrities with #LongCovid/pandemic related injuries over the years. It took a brave 18 year old,not afraid of losing social media followers,paid engagements & endorsements, .to stand up for what really matters: . Stopping transmission of a chronic disease.
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It’s the point of the pandemic where fellow physicians- who’ve witnessed my SARS-CoV-2 complications/ #LongCovid are having their own medical emergencies & are “out indefinitely.” . “It won’t happen to me” doesn’t apply w/ this virus. If you have blood vessels, you’re at risk. 😔.
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Friend w/ cancer after years of #LongCovid is sorting through treatment options & preparing for the next phase of her battle. Her oncologist said she’s seen a considerable uptick in cancers since C-19. But “can’t talk about it” w/her medical colleagues.
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@drclairetaylor #LongCovid = SARS-CoV-2 hypercoaguable state = Clots. Anyone who does not discuss this as the very first problem to rule out in post acute COVID either doesn’t have proper expertise or experience- or has other motives that does not involve saving lives.
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There are two things most docs can agree on about #LongCovid:. 1. There’s not much to offer to except methods for symptom relief . 2. Reinfection seems to cause clinical deterioration in many. So-why are physicians managing these patients still not masking as a standard of care?.
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I'm becoming Larry Kramer level frustrated. We've got millions of people who may have persistent SARS-CoV-2 out there- & some may not even be symptomatic. This pathogen is stealth. A silent killer. Leading to CV events, cancer, opportunistic infections & death. PLEASE WAKE UP.
’40 million people is a f*cking plague’ — Watch Larry Kramer speak out against AIDS inaction in 1991. Kramer died this week at 84
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SARS-CoV-2 is like tobacco smoke and other toxins. Your body is broken down with each encounter- not made stronger. Your blood vessels, heart, & lungs damaged & weakened. They told you cigarette smoking was nothing to worry about once, too. Don’t be fooled this time. Keep safe!.
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@tbas7000 No, I didn’t. My first instinct was to get mom out of there as soon as possible. I’m running on fumes as it is with the 24/7 care. Not to mention I’m depending on that office staff to get her set up for a procedure….
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#LongCovid doesn’t seem to fit into the agenda of any of the political parties. Yet, if you love this country and its citizens; its children and future children; its economy; its healthcare system; and its position in the world, you ought to start caring about it now.
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In less than one week, we’ve had the Chair of an esteemed Department of Medicine suffer a serious head & neck injury due to effects of a C-19 infection, still testing positive after a course of antivirals…. …and the New York Times report that “the C-19 pandemic is really over.”.
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Does @POTUS know what #LongCovid is? . I’m serious. Has anyone briefed him about clots, organ damage, brain injuries, etc?.
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Dealing with #LongCovid is going to be very expensive. But- the global strategy of pushing it aside to manage later is a colossal mistake. “Later” will be too late. Mass disability and collapsed economies will be inevitable. The time to face up to #LongCovid is now.
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@acweyand This is a virus that attacks endothelium and activates platelets. The virus is still circulating all over the world. So unfortunately, I’m not at all surprised by the clotting events. What I am shocked by is the lack of leadership from academia and medical societies.
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For those still doubting that COVID can suppress an immune system in a perfectly healthy person:. I nearly died from a severe COVID infection in Spring of 2020-required home oxygen for months.Never made my own antibodies to SARS-CoV-2 and was leukopenic for a year. Not normal.
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Almost 4 years into #LongCovid, my friend will lose a kidney today from cancer. Prayers up. 🙏🏻. Please remember that #LongCovid isn’t just “post viral symptoms.” People are getting cancer, losing organs, having strokes, heart attacks. Avoid “mystery illnesses” at all costs. 😷.
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Just a friendly PSA: . SARS-CoV-2 damages blood vessels and vital organs. Thus, #LongCovid (in at least some)=a syndrome of blood vessel & organ damage- along w/elevated cardiovascular risk. Familiarize yourself with the symptoms of heart attack & stroke, & listen to your body.
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My review of the literature and own complex #LongCovid case is confirming that this disease likely involves activated platelets and a vasculopathy, primarily involving microvascular beds. Microvascular circulation is significant, and necessary for proper organ perfusion.
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What the heck do I know- I’m just a cardiologist with vascular training. Now with SARS-CoV-2 associated vasculopathy, myself. #LongCovid.
@Dakota_150 Prozac doesn’t cure vascular disease.
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My friend (50s) has confirmed kidney cancer. She has zero risk factors for this type of rare cancer. She’s had #LongCovid for nearly 4 yrs, never vaxed, previously healthy. Correlation doesn’t imply causation. But to ignore the trend of increased cancer & CV events is foolish.
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I was fooled. In '19, when public health & medical talking heads told all of us C-19 was "nothing to worry about." Much like they are doing now, as they soothe with myths of "immunity debt.". I was fooled. And ended up with full body vasculopathy & strokes. Don't be fooled.😷.
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Many people ask if I think #Omicron will affect the blood vessels and cause clotting the way previous variants have. As long as the virus can injure blood vessel linings, and activate platelets, it will cause clots. No such thing as a “mild” pulmonary embolism (clot in lungs):.
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@jonwebsterreal Nope. My neurological issues and low oxygen levels started within a week of being infected.
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@fitterhappierAJ Thanks. I’ll add the vascular changes and hypercoaguability we’re seeing post SARS-CoV-2 are unlike anything I’ve seen in my career with other viruses that trigger ME/CFS- especially years out. I fear we’ll be dealing with CV consequences of COVID for years- if not decades.
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I'm a physician with severe complications from #LongCovid. I've shared details of my illness for years, in hopes of bringing useful information to my colleagues & the public. Even if I've helped one person, it was worth putting myself out there. I get to choose when I "move on.".
@PJPrydderch I would suggest anyone with a serious illness to think about whether twitter is the right place to share details of their illness. Social media often reinforces people's narrative and potentially makes it even more difficult to move on.
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@EricTopol I can’t share your enthusiasm, Dr. T. The endothelial damage this virus causes may undermine decades of work we’ve done as cardiologists to aggressively prevent CV disease. I fear infection-no matter how mild- will become an independent risk factor for CV disease. Hope I’m wrong.
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This article is tragic. And just hit the email inbox of every practitioner in the US today. Let me sum it up. “Treatments” for #LongCovid:.LDN, SSRIs, modafinil, metformin & antihistamines. Would this fly for any other persistent,organ damaging virus?.
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After four years, the Best in PPE Award goes to:. The hand surgeon. Not the. Cardiologist.Pulmonologist.Neurologist.Hematologist.Immunologist.Gastroenterologist.Rheumatologist. The hand surgeon. "I've been wearing this N95 for 4 years. Mostly to protect my patients." 👏🏆👍.
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The hypercoaguable state in acute and subacute SARS-CoV-2 (#LongCovid) should be one of the primary targets of a worldwide warp speed scientific investigation. Clots won’t wait to disable or kill- even in the “young and healthy.” We need to act now.
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The Latent Pandemic of Heart Failure has already started. Good for the pharmaceutical and device companies. Tragic for humanity. When I tried to warn my colleagues of this 4 years ago I got kicked out of a cardiology FB group for “talking nonsense.” . Vascular & cardiac 💣.
Persistence of SARS-CoV-2 colonization and high expression of inflammatory factors in cardiac tissue 6 months after COVID-19 recovery: a prospective cohort study - Yu - Cardiovascular Diagnosis and Therapy
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