a_ryback
@aryback4
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Clare Francis Research fellow at IGC Uni Edinburgh (Ponting Lab), funded by Action for ME.
Edinburgh
Joined April 2021
@actionforme are running their "Big Give" campaign this week- any donation you make in the next 4 days is matched. Please consider donating/sharing if you can. My research is possible thanks to Action for ME!
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RT @CharlieHillier7: Thank you so much for writing this @CGATist If anyone wants to understand the dire situation people with ME/CFS (inc…
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@RobertHMcMullen Thanks for this question! I can't give a more specific answer than that we will publish the results when we are ready and certain that the research is as robust as we can make it. We're working really hard to make this happen as fast as possible.
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RT @DecodeMEstudy: @PSPForMECFS has just launched a researcher toolkit for #MECFS. ➡️ Here researchers can find…
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@cstroeckw @sjmnotes @weandmecfs @gabrielestroeck Thank you so much for reaching out Christoph, I'll certainly be in touch!
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RT @DecodeMEstudy: With your help, #DecodeME has built the world’s largest data set on ME/CFS. We are now welcoming data access applicati…
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@StylesSa191919 Thanks for your question and for sharing this study! We now have enough ME/CFS and healthy participants signed up for this study.
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@ThisisMEtweety Thanks for your question! We've hit our target for healthy volunteers, so we don't need any more new sign-ups at this stage.
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A huge thank you to everyone who spread the word and signed up! We now have enough potential healthy volunteers and we are working our way through the sign-ups we have not yet contacted.
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We believe we now have enough healthy participants and are stopping new invitations. Thank you so much to everyone who spread the word and who took the time to sign up! Our small team is working through all of the sign ups so far. We are really grateful for all your support!
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find out more here: #MECFS #Sheffield #MECFSresearch Thanks again for spreading the word! @sheffieldmefm @CGATist @actionforme @TomKindlon
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@ClagueNjc36 Thanks so much for your question! As well as our core hours (9:30-4), we can offer additional slots in the evenings in the week of Feb 19th. When they register, the study lead will contact them to arrange a time- we will do our best to accomodate participants' schedules.
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@DHSCgovuk Please also consider increasing funding for research into diseases that predominantly affect women: ME/CFS is the most severely underfunded female-biased disease (it receives 0.4 times the funding that it should based on its burden in terms of DALYs)
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RT @DecodeMEstudy: A huge congratulations to Audrey Ryback who has been offered the very first Clare Francis Research Fellowship funded by…
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