Alison Caplan🎗
@alisoncaplan
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Childhood cancer & brain tumour research campaigner at Doing it for Daniel Foundation. My son Daniel died of a DMG brain tumour in 2020 aged 17
UK
Joined January 2012
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Pinned Tweet
Incomprehensible to accept that 7 months ago we had a healthy 17 year old son with a bright future ahead and now he’s in this grave. Offered no treatment for a DIPG brain tumour. Our politicians must do more for research
#dipg
#braintumours
#doingitfordaniel
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30 November 2020 the darkest day of our lives. His room is exactly as he left it. His clothes are still in his wardrobe and his 17th birthday cards are still on his shelf. His phone still charges on his desk. His beautiful smell is still in his room. We can feel him everywhere.
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On
#nationalbereavedparentsday
here are some things not to say to parents. I’ve had them all 🧵
• He’s in a better place
• You need to move on
• You need to be grateful for what you have
• Focus on your other son
• Don’t wallow
• Time is a healer
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To spread knowledge of childhood cancer and brain tumours. To help other young people.
Our darling Daniel. You lived your 17 years so fully. You are loved so much and missed so deeply.
How wonderful life was with you in the world 💚
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My son Daniel died at 17 to brain cancer. At diagnosis we were told there was no treatment plan. No hope. He died 7 months later. I tweet about Daniel and childhood cancer to try to promote BT research and keep my boy’s legacy alive. Every child deserves the chance to grow up 💛
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My darling Daniel on
#WorldCancerDay
. The healthiest boy until out of nowhere he was diagnosed with DIPG/DMG brain cancer at 16. He died 7 months later. DIPG is the biggest killer by disease of our children in the West but has no treatment. We must do better for future children🎗
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Last day of childhood cancer awareness month. This is my son Daniel. He was the healthiest boy his entire life until out of nowhere he was diagnosed with a DMG brain tumour. Like many children he was offered no treatment and died within 7 months aged 17 🧵
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Losing Daniel is a loss we can never recover from. You can never understand the deepest trauma of grief unless you have watched your child die. Today a child with DIPG/DMG brain cancer receives the same treatment as a child 50 years ago. How can that be possible?
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One day we will be with Daniel again. Maybe in another life or maybe just lying beside him at the cemetery. When we take our last breath we’ll smile and think of Daniel 💚. We share our experience not for sympathy or attention but to have our boy’s name spoken.
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Every night we put his bedroom lights on. He always liked us to leave a light on for him coming home. We wait every day hoping that he will walk in the front door, his huge personality filling our home with laughter and joy.
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Sometimes we imagine we can hear him walking through the door - then the sadness hits us knowing we will never see him again. His dad sometimes sits at the front door at night crying, waiting for him to come home. If only we could have him back for just a moment.
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Why hasn’t the biggest cancer charity in the U.K. done more to help children? Every child with cancer should have a chance of treatment. It’s so wrong.
33 people are diagnosed with a primary brain tumour every day in the U.K. 500 children and young people each year.
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Our beautiful Daniel would be 19 today.
Every birthday he had was so happy. Not a moment of life was wasted on him. The heartbeat of everything, especially us. Our wonderful, magical, brave boy. We love and miss you every second of every day.
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40 of these children have the most aggressive brain tumour DIPG. All these children will die and are offered no treatment. We try our best to carry on and keep Daniel’s legacy alive. The daily pain is hard to live with but we keep going for our precious Saul we love so
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Grieve quietly without too much fuss please. The reality of grief is quite different. No one prepares you for the fierce rage you feel when your child dies from cancer with no treatment offered. DIPG brain cancer - the biggest killer of children by disease in the Western world.
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Today is the 3 year anniversary of Daniel’s death. He died at 2200 hours - 22 was always his special number. He died 7 months from diagnosis from brain cancer. He was 17. Never stood a chance because there was and still is, no cancer treatment for many brain tumours like DMG🧵
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Thinking of all bereaved parents today. Another holiday without our beautiful children. I sobbed this morning as I couldn’t find a good photo of Daniel holding an Easter egg 💔. Wishing everyone a gentle day. You are not alone in your grief. We are a community 💔💛🎗
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6 weeks ago my beautiful 16 year old son was diagnosed with brainstem cancer. The prognosis for DMG/DIPG is devastating. Every 9 days another family in the UK gets this news. Please sign this petition to improve research into this deadly childhood cancer
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One year ago our beautiful boy died in our arms. We are shattered without him. The only reason I carry on is for Saul. As I drove to Daniel’s grave today, Simple Minds ‘Don’t you forget about me’ came on the radio. I will never let you go Daniel. You are the love of my life 💔💚
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Coming up to a year since the death of my beautiful son Daniel. Still can’t believe he’s gone. I miss him so much I can hardly breathe at times. He was everything to me. If you have children treasure them. My heart breaks for anyone who knows this pain. Cancer is a bastard
#dipg
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Our hearts were ripped out when Daniel died at 17 from cancer. Life moves on and people forget. We will never forget you our darling boy. You were desperate to live. Thinking of all parents who walk this terrible road without their precious children
#nationalbereavedparentsday
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CCAM. My son Daniel, diagnosed with DIPG brain cancer aged 17. Died 7 months later. Had never been ill before this. At diagnosis we were shocked to be told there was no treatment for it. Brain cancer, the biggest killer by disease in Western world of our children but least funded
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This week I ran into someone who said, “I just met your 2 boys at the dentist.” For a split second the exhaustion of grief lifted and my heart was filled with joy. I felt like I had my boy back, until I realised they meant my husband and my youngest son. I miss Daniel so much 💔
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Another lifetime ago when everything was right in our world. Could never have imagined a brain tumour would take our beautiful Daniel from us at 17. Have never met anyone who enjoyed life as much Daniel. Cutest tin man and scarecrow ever. My boys 💛🎗
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Yesterday I pretty much ignored Mother’s Day. I sat on the bench facing my son’s grave with my youngest son and my dog. We both sat thinking, “How the f has this happened to us?” Life is so cruel to so many. I wish brain tumours and cancer didn’t exist for children 💔
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1,058 days since Daniel was taken from us by cancer. Every day is a step closer to being with him again - wherever that may be. He is missing from everything and we ache for him constantly. Living without your child is the most unnatural thing. There is no grief like it 💔
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For me it would be brain cancer. Robbed my beautiful Daniel of his amazing life at 17. Losing my son has completely destroyed me. I keep going but am totally broken inside. Losing a child to cancer is unimaginable 💔
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Thankfully we don’t know the future. Our beautiful Daniel had 17 years of healthy, happy life before cancer, a DIPG brain tumour took him from us in 7 months. Why is life so cruel to so many wonderful children? We live on for Daniel who was so desperate to live his amazing life💛
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#LoveYourPetDay
our beautiful little Alfie the cavapoo with my precious son Daniel who died aged 17 of brain cancer in 2020. One of my most treasured photos. Life is so hard without our incredible boy.
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Christmas is a hard time of year for bereaved parents. Photos at a grave. No more family photos of special times with our children. It’s very difficult seeing others celebrating with family. When you lose a child you shatter into a million pieces.
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As we approach Childhood Cancer Awareness Month I wanted to share my beautiful son Daniel. As a bereaved mother I share him because he is no longer here for me to love him. He was incredible. His life was taken in less than 7 months by DMG brain cancer 🧵
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When my son was dying - he’d lost all mobility and couldn’t see due to his
#dipg
brain tumour - he asked me if he was dying and would I make him better. I can’t explain how I felt. No words. If investment had been made in previous decades maybe my son could’ve had a chance 💔
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How should you interact with a bereaved parent?
Try and include them. Always think before you speak. Be a good listener. Don’t offer advice unless asked. Be a practical friend. Show up. Don’t try to fix someone. Remember their child and talk about them 🧵
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Today is the start of BT awareness month. This photo was taken after brain surgery. At diagnosis Daniel had a 5cm, grade 4 tumour growing in his brain. He died 6 months later. Remembering all the YP we have lost to brain tumours since we started this horrendous journey in 2020
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When my son Daniel was diagnosed with brain cancer at 16 years old I could not understand why there was no treatment for him anywhere in the world. No development in treatment in 50 years. Brain cancer is the biggest killer of under 40s in the west. We must change this 💔
Desperately sad to learn tonight that brain cancer has devastated yet another family.
Oliver was 23 (like Laura) & diagnosed just 19 months ago.
He deserved so much more life.
Where is the progress we’re seeing with other cancers & the £40m investment promised in 2018?
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The diagnosis of anyone with cancer is sad. I send nothing but good wishes to King Charles. That said, children with cancer are dying every day and our government doesn’t see it as a priority. Brain cancer - the biggest killer of our children and the least funded 🧵
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Brain tumours continue to be a death sentence for many young people. I wish those in power could have known our darling Daniel. He had so many hopes and dreams. If only there was a real commitment by our government to change things for future children 💔🎗
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My beautiful Daniel - will never be complete without him. Should be finishing first year at uni and perhaps going to Camp America. Never give up on a grieving friend. Such friends can be difficult but try to remember who they were. One day they might say yes to your invitation 🎗
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One of those iPhone videos that pops up on your phone. My beautiful boys, my wonderful Daniel. Forever 17. Almost 2 years since he died of a brain tumour. Not a second goes by that I don’t long to hear his voice or see his beautiful face. The pain of losing him will never go 💔
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If you say something to upset them, own it and say sorry. We are all imperfect people, trying to find our way through life. It’s so important to be kind and support one another 💛🎗️
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I hope everyone is looking forward to a happy Christmas with loved ones. Not the fake ideal we are bombarded with, just a nice time, creating memories with special people. During the season, spare a moment for those of us struggling, who’ve lost our heart 💔
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To all mothers who live with the trauma and pain after the death of their child. You are never alone. To our precious children who never got the chance to live their wonderful lives. We will always love them and always be their mums. There is no love like the love of a mother 💔
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As
#ChildhoodCancerAwarenessMonth
begins please remember my
#danielcaplan
- a healthy boy at 16 and from nowhere developed a
#dipg
brain tumour. No treatment offered apart from a huge dose of steroids - prolonged his life but destroyed his body. When he died so did our family🎗
Love you my superstar Boy.
My hero, heart and soul and pride and joy.
💔💔💔💔💚💚💚💚
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There is not a moment I don’t think of my son Daniel. Taken by cancer at 17. He should be turning 20 next month. His birthdays were huge in our lives. Pure joy. I miss him so much I can hardly breathe at times. Sending love to anyone who has lost a child. There is no pain like it
Friday is check in day for our families at Daniel's Beach House. Afterwards we always have a walk on the beach to remember our beautiful Daniel. Everything we do is a promise to our boy. Be kind, have fun and enjoy every minute. Life is such a precious gift. We love you Daniel 💚
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This evening is exactly one year since we saw our son’s face for the last time at the funeral home. Tomorrow is the day we buried him.
Still can’t believe what happened to him. The boy who was never ill, robbed of everything by cancer at 17. Just so cruel and unfair 💔
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Last day of brain tumour awareness month. BTs - the biggest killer of children by disease in the West. The biggest cancer killer of under 40s. Usually no treatment options because research is less than 2% of the cancer spend. My son Daniel taken at 17 by DMG brain cancer 💔
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Today was always one of the happiest days of our year. Daniel’s birthday. He would be 20 today. Losing him to cancer at 17 - the loss is unbearable at times. It’s hard to understand how our hearts keep beating without him - the pain is always there.
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• Everything happens for a reason
• God is testing you
• At least he’s not suffering
• I know how you feel
• Eventually the grief will pass but you have to put things in the past 🧵
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Before Daniel was diagnosed with cancer my life was pretty ordinary. I had been a secondary school teacher and a careers advisor working with teenagers. I had a happy life with 2 beautiful children.
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Time doesn’t heal the loss of a child. With the passage of time the pain of loss grows deeper. There is no grief like it - impossible to comprehend if you haven’t experienced it. Like Jess, Daniel was at the start of everything wonderful before cancer stole his life. He was 17 💔
There comes a deep sadness with the passage of time.The heartbreaking acceptance that you haven’t seen, touched or heard your precious child, for weeks, months or even years. It is a devastating reality. Surreal. To me, Jess still feels so vital & vibrant, but she’s not here. 💙
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Choosing the wording for my 17 year old son’s headstone. Don’t think I will ever accept the reality of this situation. Never in a million years did I expect life to deal us this card. Never ever take life for granted. We miss you so much my precious boy 💔
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Our incredible son Daniel on the Brooklyn Bridge. We had no idea what was ahead for him. We are approaching 2 years since his death from a brain tumour. We have lived these years completely heartbroken. We’ll never stop longing for you our precious boy 💛💔🎗
#braintumours
#grief
Today we provided funding to 3 young people dealing with cancer for a PlayStation, iPad and headphones. Gifts from our incredible boy Daniel who desperately wanted to help other children with cancer. He might not be here to run his charity but we are trying our best for him 💔
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To everyone watching the World Cup here is a photo of Daniel meeting Lionel Messi when he was 6 on holiday. He was a gentleman, a touch of class and happy to pose for a photo with 2 thrilled little boys from Scotland. Pure joy on Daniel’s face. A photo that we treasure 🇦🇷
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This photo was taken when Brendan Rodgers was the newly appointed manager of Celtic FC in 2016. Daniel was thrilled to meet him. We could never have imagined Daniel would be dead 4 years later. To have Brendan back at Celtic again is so special. A link with our darling boy 💚
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This Christmas, if you are a bereaved parent, it’s ok to feel lonely and adrift. To not fit into your friendship group and the person you once were. The only duty you have is to yourself, your heart and your child and their memory. Remember you are not alone in your grief 💔💛
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Preparing for Daniel’s 18th birthday on Sat. The first birthday without him. We took gift vouchers to the 21 16-21 year olds being treated for cancer at The Beatson in Glasgow. Daniel would’ve wanted that
#DIPG
#DMG
#braintumourresearch
#acurecantwait
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This incredible young man Owen Copland died yesterday on Christmas Day. Another beautiful and talented person taken by brain cancer at just 21. Offered no effective treatment due to decades of pitiful funding. Life is a an absolute bastard to so many of our precious children 💔
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Our youngest son, Saul is off to Glasgow University to study law. We are all so proud of him. He’s had the worst 2 years watching his brother die of cancer and his parents fall apart. Our precious Daniel should be going into his 2nd year of uni 💔. So proud of both my boys 💚
So thats my baby
@saulcaplan04
heading off to Glasgow university halls of residence. He’s not too far away for Alison and I and also his number one fan AlfieCaplantheCavapoo.
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@shitscaredmum
I’m so sorry Nicola. She died on Daniel’s birthday. Completely heartbroken for you. Just no words. Holding you all in my heart. Laura will never be forgotten. A brave, wonderful girl 💔
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@shitscaredmum
There comes a time when you just want your baby to be free from this horrendous cancer. I’m so sorry Nicola. Heartbroken for your family and your precious Laura 💔💛
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Hopes for 2022 - to keep surviving. To not let grief destroy me. To love and care for my remaining child Saul. To honour the memory of my precious Daniel. To play a small part in bringing treatment options for
#DIPG
to the UK. Love & peace to all struggling 💔🎗
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Childhood cancer - the forgotten area of research. My boy. My beautiful Daniel. Love him so much. Would’ve given my life for him. Taken at 17 by a brain tumour and offered no treatment for it. Children are being failed every day in the cancer world
#WorldCancerDay
This photo epitomised Daniels Aug 20 he spent 5 nights in the Beatson with tumour progression He has just come round to a stable position after 3 hellish days and when we gave him crisps and treats he was ecstatic with the joy of life and togetherness.💔
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What an wonderful day it should’ve been today - Daniel’s 18th birthday.
In our hearts and thoughts every moment of every day. Loved and missed so much.
Never forget our precious Daniel - the world has lost an incredible person 💔
#braintumourresearch
#dipg
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We have a little girl in our family to join Alfie. Meet Violet the cavachon. 6 years old and never had a family. Used by a breeder who didn’t want her anymore. She’s terrified of people but trusts dogs. We have a job ahead to win her love and trust 💛
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After the death of our son Daniel to brain cancer, we started a charity which buys special gifts for young people with cancer. So far we have spent over £40,000 on gifts and grants. Today we opened our respite holiday home in Ayr. Have a look at our video 💛🎗
This is Daniel’s Beach House in Ayr. The property is suitable for 4/5 people. For families during or after their child’s cancer treatment and also to families who have lost a child to cancer. For bookings please contact alison
@doingitfordaniel
.org.uk …
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Remembering all the precious children who have lost their lives to cancer, especially my precious Daniel. We will never forget you my darling boy 💔
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All over the UK people are lighting candles to mark the beginning of brain tumour awareness month. Shining a light on the biggest cancer killer of our children and remembering all those taken by brain cancer. The least funded area of research. The fewest treatment options 🧵
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@LucidWhim
I hate the fighting terminology. Cancer treatments and modern medicine fail, not our brave, incredible children. Sending love Fiona 💛
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Our beautiful Daniel lived for 17 years before being taken by brain cancer. He was a boy who would have made a huge impact in the world. In his death he is still making a difference to the lives of other children and young adults with diagnosed cancer
@DIFDCharity
We are so grateful for this generous donation in memory of Daniel. 💛
It will have a huge impact on our research into DIPG, led by Professor Chris Jones and his team (
@JonesLabICR
) to bring about effective treatments that are so desperately needed.
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Today might be
#SuperheroDay
but this boy is my hero. The strength, bravery and kindness he showed during his cancer was something I have never seen in any other person.
I can’t describe how much I miss my precious boy 💔
#danielcaplan
#dipg
#dmg
#braintumourpetition
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Last Monday my son Daniel lost his life at 17 to DIPG along with another 2 children in the UK. Brain tumours are the biggest cancer killers of children and they are increasing. Tomorrow’s debate in Parliament is so important.
Please do everything you can to support research.
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@2StefanMoore
Oh Stefan 💔 I remember the day the bed was delivered to us. Heartbroken doesn’t even come close to describing how I felt. Knowing my darling boy would die in that bed. He spent 55 days in it. The pain just never goes but it’s nothing compared to what our children suffered 💔
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Daniel your team won against Rangers today. You would be absolutely buzzing. I wish you were here to celebrate my beautiful boy 💔💚
#forever17
#acurecantwait
#braintumourresearch
#dipg
#dmg
#CelticFC
#rangersvceltic
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Reading so many reports about
#SarahHarding
’s precious life stolen by
#cancer
. Please remember she did not ‘lose her battle’ with cancer. Cancer treatments and modern medicine failed and lost the battle. Patients do not fail. Let’s change the wording around this awful disease.
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Every child who joins the DMG brain cancer community dies. There is no treatment for it. No research that has brought about one effective treatment option because no money is invested in research. My son Daniel was diagnosed at 16 and died 7 months later. His life wiped out 💔
I believed that the huge leaps forward in U.K. cancer treatment would improve outcomes across the board, I thought a rising tide would lift all boats but
#BrainCancer
is a shipwreck.
I’m scared to death in a German clinic because we have no options.
@ourbrainbank
@BrainTumourOrg
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Brain cancer is the biggest killer of children but the least funded. We must change this. Please keep shouting about it. Research must be funded fairly. It won’t help my family but it might help your child or your loved one 🎗️
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The words of my 17 year old son Daniel who lost his life to cancer a month ago. “Be thankful for each day of life you have. Enjoy every moment. Be kind. Don’t worry about stupid shit. We’re here for a good time, not always a long time.” Can’t think of a better resolution 💚⭐️
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I miss you so much my darling Daniel. Why did this happen to you?
Life was so cruel to you my beautiful boy.
You so deserved to live and bring your fun and laughter to others.
We are trying to do good things in your memory. It’s so hard.
We miss you every moment of every day.
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I visit my son’s grave often. The cemetery is 2 mins away and open 24/7. I often sit on my folding chair and think how did this happen? Every day is a struggle but I get up and keep breathing. There is no pain like the pain of losing a child. It’s indescribable and shatters you💔
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We should be celebrating our magical boy turning 19 today.
You would be 19 today my beautiful Daniel.
I am still with you holding you in my heart and soul every minute of every day.
Still by my side for eternity.
X.
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When my son Daniel was diagnosed with DIPG the only treatment offered was palliative radiotherapy. There was never any mention of ringing a bell. We did it anyway by ourselves because my beautiful boy always hoped. I would give my life to have my him back 💔
I’m sitting in the infusion chair. It’s the first time I’ve heard the 🔔 ring. Not a great feeling so I join the rest of you
#mbc
and other stage 4 peeps in understanding just how bad it is to have to hear it 😞
#treatmentforlife
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Wonderful, wonderful man ⭐️👏🏻
I never ask for anything on my posts, but I would really appreciate it if you could sign this.
It’s a petition to fund research into childhood cancers with the worst survival rates.
We're nearly there, please sign and retweet!
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Every day is filled with sadness without our beautiful Daniel but we keep trying to do things in his memory. The bravest boy. Our hero 💛🎗
Today we helped 4 young people with cancer in Aberdeen, Stirling and Glasgow. An iPad for one and grants for the others. All gifts from our incredible boy who desperately wanted to get better and run his charity himself. Sending huge love to these incredible young people 💛🎗
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Please think of all the children taken too soon and all the families who are devastated without them. Please remember our beautiful Daniel Joshua Caplan 💛🎗
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Today my husband took my youngest son to look at first cars. Daniel was diagnosed a few weeks before his 17th. He had been so excited to learn to drive. The neurosurgeon told him he couldn’t learn and Daniel never mentioned driving again. Memories and flashbacks 💔
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As a mum who nursed her child to his death from brain cancer, I am completely in favour of assisted dying being legalised in the U.K, for adults with a terminal illness. My son went through the most horrendous death, even with the best palliative care and pain relief 💔
We heard powerful evidence on how the current law is failing people and, learning from other countries, how assisted dying could be successfully introduced across the UK.
Our report will inform the debate on changing the law that I’m confident will come in the next Parliament.
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It’s brain cancer awareness month. This day last year we found out our son had a brain tumour. Inoperable, no treatment plan. Brain tumours kill more children than any other cancer. We must do more to beat this last bastion of the cancer world. 1% national spend is unacceptable
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17-year-old Daniel Caplan died from a rare brain tumour – a DIPG - last year.
Pupils at his school are holding a concert featuring Mick Jagger and Sting in his memory to raise money for pioneering treatment 🎶 ⬇️
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Tonight I kept my promise to my beautiful boy
#danielcaplan
by taking over his season ticket at
#CelticFC
. It was incredibly painful sitting in his seat. I could hear his voice calling
#COYBIG
and see his smile so clearly. I miss him so much 💔
#fuckcancer
#doingitfordaniel
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30,000 more signatures needed to help so many children. I never expected to be a parent in this position. No one does . . . until it happens.
This is why it's so important to improve research into childhood cancer with the worst survival rates.
Every number is a human story.
For once let's use Twitter for some good (a crazy idea I know)!
Please sign this petition and retweet it.
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More painted stones to place at my boy’s graveside. I wish so much he was here, being treated by his old mum. Miss him so much every day.
#braintumours
completely destroy families. If only more money and effort had been put into research
#dipg
#doingitfordaniel
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@TeamBeansFund
It’s beyond heartbreaking. Diagnosis day was the worst day of our lives. 10 days later we had the biopsy results for our Daniel. Worst tumour possible and months to live. No treatment available. 16 years old. Our world shattered. Daniel was lost and in complete shock 💔
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Some beautiful stones to place at my son’s grave. We will never stop keeping your memory alive my precious boy
#forever17
#danielcaplan
#doingitfordaniel
#dmg
#braintumourresearch
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Please sign this petition and let’s make some real impact into childhood brainstem cancer. Brain tumours kill more people under 40 than any other cancer 😢
It's really hard to tell families that there's no more that can be done for a child with cancer.
More research is needed, but we need help.
If we can get this petition to 100,000 it will be considered for a debate in Parliament.
Please sign & retweet.
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Daniel is 18 tomorrow. What a time he’d be having celebrating. The most sociable boy ever. He loved life so much. Would give anything to hear his laugh and see that smile again. I miss my boy so much 💔
#danielcaplan
#dipg
#acurecantwait
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The petition that so many of us worked hard to progress is being debated in Parliament on 7th December. Encourage your MP to be involved. Please give future children who will be diagnosed with DIPG a chance. Think of my darling Daniel who loves life more than anything.
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Here is my little Alfie settling up for a night of crap tv and junk food 📺🍬. What a character he is 🥰
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@kate_rackham
No you are not being miserable. The bell should be done in a separate area. It’s heartbreaking for those of us dealing with a terminal diagnosis. I remember a woman ringing the bell throughout our cancer centre while my child was there with months to live.
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