Our NEW ⭐️What is PoTS⭐️ video! To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new ‘What is PoTS’ video💜 This video gives a summary of symptoms, QOL, associated conditions & treatments. Potential triggers: viruses, bacterial infection, pregnancy, surgery, a traumatic event, immunisation. #PoTSPledge #PoTSAwarenessDay #LongCovid #MECFS #EDS #MCAS @DrNighatArif @drclairetaylor @BMAstudents @rpharms @BMA_GP @CatSmithMP

@MEAssociation Thank you so much for sharing!

RT @MEAssociation: Get involved in @UKPoTS parliamentary campaign, aiming to improve awareness and healthcare for people with Postural Orth…

RT @MedDetectDogs: This is the view that Jade regained consciousness to after a POTS collapse. Not content with alerting her before it hap…

Last weekend our staff and trustees met (some virtually) for our @UKPoTS AGM ✍️ We had a really productive day full of great ideas and planning for the future 💜 As always thank you for supporting us! #AGM2025 #PoTS

Our @UKPoTS Impact Report for 2024 is now available to read, celebrating our activities & achievements, highlighting how you have helped our charity, and how we have helped you! As a small #PoTS charity with big goals, every year is busy! #MedTwitter

You can watch our Online #PoTS Support Group video here: Our hosts are really welcoming and will make you feel really comfortable. You can register for the groups here: We hope to see you soon! 💜

Raising awareness is very important for choir member Jane, as her daughter suffers with #PoTS. Over the past 14 years the Upbeat and Offbeat choirs have incredibly donated in excess of £30k to PoTS UK, for which we are extremely grateful! 🤩💜🙏🏻

RT @CounsellingSam: I note with interest the recent signing on to the Early Day Motion about POTS of Green Party MP's @EllieChowns and @sia…

2/2 …and speak up to improve the lives of those living with PoTS. Please also ask your family and friends to write to their MP to get involved and make a difference 💜

*TODAY* is the final day to complete our charity survey! For people with #PoTS/suspected PoTS, or their parents & carers. Your honest feedback will enable us to adapt & develop the services we are offering in order for us to give you the support you need!

⭐️💻 Webinar tomorrow evening - Ask the Experts 💻⭐️ Tomorrow evening the @HMSACharity are hosting a free webinar with #PoTS expert Nurse @EftekhariHelen and expert Occupational Therapist @JBOccyTherapy. Please see further details & how to sign up here:

RT @DrSarahBennett: Fabulous new open access work by @EftekhariHelen @GemmaSPearce @sophie_stan2 and Kate Seers in partnership with @hEDSto…

Please complete our short survey to let us know how we can support you! Deadline Friday 17th January. Thank you! 💜

2/2 The more emails they receive, the more likely they are to take notice and we can start to push for positive change! This is very much a team effort and the more people who get involved, the better! Thank you for your support. 💜

RT @GemmaSPearce: New publication! Free open access to all 😃 POTS is starting to get better recognition now it is associated with Long COV…

RT @MedDetectDogs: Fred alerts Sam to #pots and is a successor dog to the equally brilliant Charlie, our first ever MDD owned PoTS alert do…

RT @MedDetectDogs: Demi hasn't felt able to try her beloved ice skating for several years due to sudden #pots collapses but this year, with…

RT @MedDetectDogs: We’ve had the most wonderful early Christmas present with the accreditation of Kate and Kenny. Kenny alerts Kate to onco…