Udninternational
@UDNIss
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The Undiagnosed diseases network international (UDNI) was established in 2014, (UDNI); it was founded by five participants countries including Italy.
Joined November 2015
We are resuming our Webinar series on #rarediseases. Next Tuesday, we will hear about the @BostonChildrens node of @RareDiseases (NORD) Speaker: Prof Olaf Bodamer Day: Tuesday 14th Time: 8:00 p.m WAT (UT+1) Translation available for French speakers. Link:
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"Alone we are rare, together we are strong. The NORD Rare Disease Center of Excellence Network" The webinar will focus on the NORD Rare Disease Center of Excellence Network. The speaker will be Professor Olaf Bodamer and the moderator, Professor AIME LUMAKA #UDNI Join us !!
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Great event !! To be continued. See you all in Tiblisi (Georgia) in October 22-23 for the 12th #UDNI Conference. #undiagnosedhackathon
#rarediseases
@UDNIss
@WilhelmFound
The 1st #undiagnosedhackathon was a great success with finale of Coat of Arms designed by the participants from Japan! Looking forward to seeing all in Georgia in October 22-23 for the 12th #UDNI meeting, registration link will be opened soon @WilhelmFound @UDNIss #raredisease
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RT @istsupsan: 🎗Oggi è la giornata della #SindromediWilliams, una malattia genetica rara 🎶Chi ne è colpito è caratterizzato da specifiche…
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Towards the international interoperability of clinical research networks for rare diseases: recommendations from th…
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Intl Summer School #RareDisease #Registries & #FAIRification of #data #Rome, Sept 25-29 2023 Registration OPEN till May 22👉 Info & Programme @istsupsan
@EJPRareDiseases
#ePAGs #ePAGItalia #ERNeu #UNIAMO #EURORDIS
@ClaudioCarta_4
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TODAY April 29 #UndiagnosedDay (at 13.30 CET, Rome time) organized by #UDNI & #WilhelmFoundation We are pleased to invite you to participate to the webinar. "Leaving no one behind" To follow the event:
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- 1 April 29 #UndiagnosedDay organized by #UDNI & #WilhelmFoundation We are pleased to invite you to the webinar. Leaving no one behind More #rarediseases
#UndiagnosedChildrensDay2023
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- 1 April 29 #UndiagnosedDay organized by #UDNI & #WilhelmFoundation We are pleased to invite you to participate to the webinar Leaving no one behind More at UDNI Wilhelm Foundation #rarediseases
#Undiagnosed
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April 29 #undiagnosedDayorganized by UDNI & @WilhelmFoundation We are pleased to invite you to participate to the webinar. More info at
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29 April 2023 Undiagnosed Day 2023 by #UDNI & #Wilhelm Foundation "All Undiagnosed should have a chance to get a diagnosis". "Leaving no one behind" More info #UDNI
#rarediseases
#Undiagnosed
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The NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) Center of Excellence at Boston Children’s Hospital. (Speaker: Olaf Bodamer) More information:
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RARE DISEASE GRAND ROUNDS: "RARE DISEASES: EUROPEAN AND ITALIAN POLICIES AND ACTIONS" (Speaker: Domenica Taruscio) More information
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RARE DISEASE GRAND ROUNDS "SUPPORTING THE ZEBRAS: AN AUSTRALIAN APPROACH TO PERSONCENTRED RARE DISEASE CARE" (Speaker: Emma Palmer) More information
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As member of UDNI and President of ICORD ( I am honored to invite you to attend the free Webinar HOW CAN ONE HEALTH APPROACHES HELP RARE DISEASES? Link for registration Program is here
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Join @EJPRareDiseases in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases 🚨Registration deadline: 15 February ℹ️Programme, registration & more information:
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RT @irdirc: Join @EJPRareDiseases in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of…
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#EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at @istsupsan
See you in #Rome ❗ For the #EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at @istsupsan REGISTRATION OPEN until February 15, 2023 👉 Programme & Info #malattierare
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REGISTRATION IS OPEN #EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at @istsupsan
#EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at @istsupsan
@ClaudioCarta_4
#rarediseases
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14th #ICORD #Conference: registration open!! A Community Partnership to Expand Access to Gene and Cell Therapies More at
14th #ICORD #Conference: registration open!! #Gene and #Cell #Therapies: #Hope and #Realities of #Advances in #Regenerative #Medicine A Community Partnership to Expand Access to Gene and Cell Therapies
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