🌟 Five Amazing Benefits of Volunteering with the TANGO2 Research Foundation 🌟 💜 Personal Growth Discover and develop your strengths, talents, and passions. Volunteering can help you build valuable life skills like problem-solving, leadership, and teamwork—skills that will ...

Looking for support and connection in your region as you navigate the TANGO2 journey? We’re here for you! Our Family Regional Coordinator Program is designed to foster meaningful and lasting relationships among families who share similar experiences and live nearby. This uni ...

We’re excited to announce that the recordings from our recent conference are now live on our YouTube channel! 🎥✨ These sessions capture the heart of the TANGO2 community, showcasing the latest research, insights, and stories that are driving us forward. Every breakthrough, ...

The TANGO2 Research Foundation’s mission is to lead the way in finding a cure for TANGO2 deficiency disorder. Although we've already made great progress since our beginning in 2018, there is still so much work to be done for the TANGO2 community. Learn more about the impact ...

🌟 Reminder: Don’t Miss Tomorrow’s FREE Live Virtual Workshop! 🌟 Tomorrow is the day! Join us Friday, February 7th, at 11 AM EST for the final session of our exciting four-part PCOR workshop series. This live and interactive Zoom workshop is completely FREE and open to ever ...

🚨 We need your help! 🚨 The TANGO2 Deficiency Disorder (TDD) Natural History Study is making crucial discoveries, but we’re just scratching the surface. Thanks to the data from 70 participants, we’ve uncovered the potential role of B-vitamins—specifically B5 and B9—in preve ...

✨ Mark Your Calendars for an Unforgettable Event! ✨ 📅 Saturday, March 1st is the day to Shine a Light on TANGO2! We're kicking off our virtual fundraising campaign with an event you won’t want to miss. 💡 💛 Why should you join us? ✔️ Hear inspirational stories from TA ...

The TANGO2 Research Foundation was born from a powerful vision—a world where TANGO2-related disease no longer exists, and families can live without the fear of this devastating disorder. From day one, our mission has been clear: to find a cure, bring hope, and support those a ...

Posters showcasing TANGO2-related studies by our students, healthcare professionals & researchers were displayed last June at our TANGO2 Family Conference. We also featured posters on patient experiences submitted by TANGO2 family members. #TANGO2ResearchFoundation #TANGO2F ...

Remember our wonderful 2024 Holiday Ambassador Family, Sandi and Dave Cohen along with their amazing daughter, Bec? These TANGO2 parents from Queensland, Australia who traveled to our TANGO2 Family Conference last year in Orlando, Florida and sat with us to share their TANGO ...

🌟 One Week Countdown: Don’t Miss Our Final Workshop! 🌟 Mark your calendars! One week from today, on Friday, February 7th, at 11 AM EST, we’re wrapping up our engaging four-part virtual workshop series with an impactful final session. This live Zoom workshop is a unique opp ...

@NotoriousEMG @PCORI Thanks for helping us amplify our mission @NotoriousEMG

RT @NotoriousEMG: Excited to share my experience working with @TANGO2Research and detail some of our efforts around patient-centered resear…

💡 Did You Know? Seizures and TANGO2 Disease 💡 For over 75% of individuals living with TANGO2 deficiency disorder, seizures are a significant and ongoing challenge. But these aren't just any seizures—many experience specific types like generalized myoclonic seizures, which ...

TANGO2 deficiency disorder, also known as TANGO2 disease, is a rare genetic condition caused by changes in the TANGO2 gene. This disorder leads to metabolic crises triggered by infections or fasting, causing heart rhythm problems, muscle breakdown, and other complications. Ne ...

🎉 Congratulations, Gunnar & Jane! 🎉 Your generous donation during our end-of-year giving campaign made you the lucky winners of the stunning Kendra Scott gold Ari Heart Necklace! 💛 But the real prize? The impact your support—and the support of our incredible community—has ...

🎉🎂 Happy 5th Birthday, Otis! 🎂🎉 Today, we are celebrating an incredible milestone for an extraordinary TANGO2 warrior—Otis! Turning 5 is such a big deal, and we are so thrilled to honor this amazing little boy who fills the world with so much joy and light. Otis, your ...

🌟 Join the Fight Against TANGO2 Deficiency Disorder! The TANGO2 Research Foundation is calling on dedicated volunteers to help us drive forward our mission to support families, fund groundbreaking research, and raise awareness of TANGO2 Deficiency Disorder. Your time and s ...

🎉🎂 Happy 3rd Birthday, Amelia! 🎂🎉 Today, we are celebrating a very special TANGO2 warrior—Amelia, all the way from Michigan, USA! This little ray of sunshine has officially turned 3 years old, and we couldn’t be more excited to honor her on this beautiful day. Amelia, ...

🎉🎂 Happy 8th Birthday, Phoebe! 🎂🎉 Today, we are overjoyed to celebrate the amazing Phoebe, a brave and beautiful TANGO2 warrior from Warwickshire, UK! Phoebe, you’ve reached this wonderful milestone with so much grace, courage, and that special spark that makes you truly ...