It’ll be great to share the stage once again with the fab panel. Last year’s meeting produced some great discussions on patient engagement, hoping this year is even better! 2/2

What came back clearly is that the research makes huge advances, but what’s often missing is the ability to communicate it in a way that makes it understandable to patients, and compassionate personal support Improving communication in oncology could be a real game changer

@olliegr97 @ICR_London @GaryHooker16 @Liz_ORiordan @Michael_Toon11 @NatsWoodward @DuncombeSue @patrickjmcguire @John_Dabell Thank you Ollie, it’s all about sharing hope 👍

The NHS also offer a version of the screening test for people of all ages who have symptoms of bowel cancer, this is called the symptomatic FIT and is available via GPs. 3/3

Wishing a very happy Christmas to everyone who follows Strive for Five. Instead of Christmas cards I’ve made a donation to Cancer Research UK to help support their essential work. @CR_UK

Being told we have to wait for the next scan before treatment can start feels crazy - I've experienced this a few times In my blog I discuss why doctors opt for "watch & wait" instead of zapping straight away Hope it helps Big hugs

One of the big challenges after a cancer diagnosis is getting travel insurance Yesterday Radio 4 featured the story of how this company was formed & includes good explanations of the problems we face with some insurance companies Worth a listen 👍

@MattRodda Great to meet with you @MattRodda Thanks for your time and your support of the work of @CR_UK #smokefreeuk #RepresentingPatients @CRUK_Policy

ISPEP is the International Society for Patient Engagement Professionals, you can find out more at

Great to meet with my MP @MattRodda today with @CR_UK We discussed factors that affect cancer including risk factors and treatments, & the Tobacco and Vapes Bill last night. It’s so important to know my MP is so committed to helping people affected by cancer. #SmokeFreeUK

Now also have a profile on Bluesky

I'm excited to be attending and speaking at this conference in Amsterdam on Wednesday. I'm presenting on "Empowering and Engaging with Patients" in the afternoon. It's always an honour to be #RepresentingPatients at events like this.

Proud to be featured by @BowelResearch in their #StressAwarenessWeek post. Hoping my story helps to highlight one of my biggest challenges and how I overcame it. Big hugs

I’ve just updated my story on the Strive for Five website. This now gives a fuller view of my journey, I hope it’s helpful for others with a stage 4 cancer diagnosis. Please feel free to share. Big hugs