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Its Not Ideal Profile
Its Not Ideal

@Spook14xx

Followers
488
Following
7K
Statuses
3K

Ex Scientist, Chronic Fatigue Syndrome, life on hold. Animal lover, healthy living, mostly, morals before money, campaign to stop animal cruelty.

England UK
Joined October 2009
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@Spook14xx
Its Not Ideal
3 days
@Dan_Wyke I have them too. GP said similar to me, nothing to worry about. My mum has them too
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@Spook14xx
Its Not Ideal
7 days
@elonmusk True. Can we have a thumbs down emoji and others to show how we feel about things like this, heart emoji doesn’t seem right
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@Spook14xx
Its Not Ideal
7 days
@diannahaze Mine recovered to about 95%, spontaneously, for about twenty with a few glitches along way, then it came back. Feels more progressive now. Maybe your treatments are helping which is great
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@Spook14xx
Its Not Ideal
11 days
@AmandaB55744931 I get the hypothermia feeling and dry eyes and mouth, not on clonidine. But do have me/ cfs and autoimmunity and a raft of other things
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@Spook14xx
Its Not Ideal
11 days
@AmandaB55744931 Chostocondritis? Would only be chest though not lungs. I have ME/cfs, 38 years this year
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@Spook14xx
Its Not Ideal
11 days
@AmandaB55744931 @cfs_jo Are you on contrib ESA? If you are there’s no planet to move to UC, yet as far as I know. If you are in support group and get LCWRA you shouldn’t need to job search, and if they move you to UC, you should get trsnsirional relief.
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@Spook14xx
Its Not Ideal
11 days
@AmandaB55744931 You can apply to local council for blue badge even without PIP. If you lose PIP, a,ways appeal if you are still ill.
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@Spook14xx
Its Not Ideal
14 days
What about life sentence meaning actual life and hard labour rather than the death penalty?
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@Spook14xx
Its Not Ideal
14 days
@PetrieHosken maybe only death penalty in cases where there’s no doubt who the perpetrators are? But saying that they have it in the states and doesn’t seem to be a deterrent, im on the fence about it.
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@Spook14xx
Its Not Ideal
14 days
@Hoover_UK Yes that’s the link I used and it only gives you one year. I’ve got a case open on email but not resolved yet.
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@Spook14xx
Its Not Ideal
15 days
@JacquiDeevoy1 Flax seed supposedly helps. I’m on the same journey
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@Spook14xx
Its Not Ideal
20 days
@JacquiDeevoy1 @steveruthrford Nobody is text book 120/80, according to York cardiology, it’s what’s normal for you, aswell as any other health issues
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@Spook14xx
Its Not Ideal
20 days
@JacquiDeevoy1 @TillyRoo1 Flax seeds seem to help lower bp, google dosage
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@Spook14xx
Its Not Ideal
20 days
@JacquiDeevoy1 Follow York cardiology on you tube, Dr Sanjay Gupta. He talks about BP a lot, informative.
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@Spook14xx
Its Not Ideal
21 days
@PetrieHosken maybe every driver should be randomly tested free, any age, to check their driving skills and Highway Code awareness. Keep everyone on their toes. Fail and you pay for a number of lessons and a retest
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@Spook14xx
Its Not Ideal
1 month
@peter_risselada @ClareCraigPath If waning immunity is the issue, why are the unvaccinated not very sick and frequently?
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@Spook14xx
Its Not Ideal
1 month
@scott_scientist You have to respect his wishes, even if it is sad, and uncaring of him. Many people don’t understand the cognition issues, and don’t try to. Are they really friends? Possibly not. Try to move on.
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@Spook14xx
Its Not Ideal
1 month
RT @ClagueNjc36: Saw my friend with #ME over Xmas she was in a crash - really confused, collapsing, slurred speak, athetoid arm movements,…
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@Spook14xx
Its Not Ideal
1 month
😔😔
@CaroleBruce17
Carole Bruce
1 month
And still we #ME patients live with the consequences of this. 🤬
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