Sharon Denny
@SSDenny
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Program Director, The Association for Frontotemporal Degeneration
Radnor, PA
Joined August 2010
Thank you @BuckeyeDawn for sharing your FTD experience here and in everything you do as an #AFTDAmbassador. Your efforts are a wonderful tribute to your husband. @AFTDHope
We didn't know what FTD was when Jim was diagnosed. Only knew there was no cure. 2 years for a diagnosis. He fought FTD for 8 years until he couldn't fight anymore. He lost his ability to talk. I was his caregiver. I am and will continue to be his voice. #EveryFTDStoryCounts
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RT @LEAD_Coalition: Gratitude to the Willis/Moore family for defying #dementia stigma and educating the public about frontotemporal degener…
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RT @BuckeyeDawn: Such sad news. My husband Jim passed from this disease. Please read the statement. Together we can work towards a world fr…
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Thank you for including the Willis's story with your own efforts to increase awareness of FTD. We know you understand the challenges this diagnosis brings. @AFTDHope #EveryFTDStoryCounts
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Thank you @PennBiNDLab. @AFTDHope is very grateful to the Willis family for publicly coming forward with their story. They are bringing new awareness to FTD, likely making it easier for families to get an accurate diagnosis and quicker access to support. #EveryFTDStoryCounts
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RT @kschnee66: This news is personal to me, because my father faced FTD. My heart goes out to Bruce Willis and his family, and I’m grateful…
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RT @AFTDHope: 🌎 Today begins #WorldFTDAwarenessWeek2022, a week designed to raise global #FTDawareness. It takes an average of 3.6 years to…
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RT @AFTDHope: For #WorldFTDAwarenessWeek2021, AFTD joined hands with @worldFTDunited to produce a #GlobalConversationOnFTD. Starting tomorr…
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RT @NUMesulamCenter: We celebrate #WorldFTDAwarenessWeek to raise awareness about the lived experiences of individuals living with FTD. In…
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RT @LEAD_Coalition: Please reTweet to raise awareness about the power of #music on the #brain. #neuroscience #Alzheimers #dementia https:/…
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RT @Bobbicarducci2: @FTD Week Listen to Susan Dickinson as she talks with us on our podcast @RodgerThat_show about Frontal Temporal Degener…
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RT @AFTDHope: Timed for the start of #WorldFTDAwarenessWeek2021, AFTD ran a full-page awareness ad in today's edition of the @nytimes. Than…
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RT @AFTDHope: We are grateful to each of the Silver level sponsors shown below for partnering with AFTD to make our 2021 #AFTDConference po…
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RT @AFTDHope: Today, AFTD is participating in #GivingTuesday, a global movement that mobilizes individuals & organizations to impact the wo…
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People facing FTD need a voice! Encourage people living with FTD and their care partners to complete the FTD Insights Survey to address experiences too few understand.
If you've not completed the anonymous survey for the Patient-Focused Drug Development meeting that AFTD is hosting in 2021, please do so before the survey closes at the end of the month. Share your #FTD experience. Take the FTD Insights Survey now:
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RT @NUMesulamCenter: During the COVID-19 pandemic, our speech language clinical trial Communication Bridge has been able to continue enroll…
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RT @AFTDHope: The #FTDhotshotchallenge has raised over $81k for AFTD's mission, and is generating FTD awareness worldwide! Will you join AF…
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