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Spinal Muscular Atrophy UK
@SMA_UK_
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Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
Stratford-upon-Avon
Joined March 2014
Moment 3 in our #40MomentsFrom40Years: In 1998, The Jennifer Trust officially became a registered charity, marking a major milestone for the SMA Community! π£
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π¨ Get ready to get muddy! π¨ WOLF Runs are epic off-road challenges! πΊ Gather your team and raise funds for SMA UK! Bookings for 2025 are OPEN! Sign up π #WOLFRUN #GetMuddyForSMA #ChallengeYourself
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Itβs Feeding Tube Awareness Week! π Feeding tubes are vital for many with SMA, so weβve gathered some key resources in this handy blog! Read more here π #FeedingTubeAwareness #SMA
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Thinking about writing or updating your Will? By including SMA UK in your will, you can help support the SMA community for years to come π£ Learn more about leaving a gift here: π #LeaveALegacy #SMASupport
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π¨ New Webinar Alert! π¨ Join Sanna and experts as they discuss diet & nutrition for Spinal Muscular Atrophy (SMA). π‘ Packed with insights on managing weight and health! π₯ Watch now: #SMA #Nutrition
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πΏ Exciting news! The National Trust and AccessAble are launching digital accessibility guides. Learn more π #AccessibleTravel #NationalTrust #AccessAble
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π Our End-of-Year Video is here! Join us to celebrate 2024 and get a sneak peek into 2025! Watch now: #SMAUK #YearInReview
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Our latest blog post is live! π£ From Molly to Noora: How a Kind Donation Transformed a Life β¨ Check it out π π #SMArtMoves #BlogPost #SMAUK
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The second Moment from our #40MomentsFrom40Years is the very first family conference for the SMA Community, which took place back in 1987, when SMA UK was The Jennifer Macauley Trust! Hereβs a look at a newspaper clipping from an article that covered this historic event. π°β¨
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RT @ThatsTVScotland: "Anything that we need, they'll always be there for us." Tony Pearson is taking on a 43-mile walking challenge betweeβ¦
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