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Spinal Muscular Atrophy UK Profile
Spinal Muscular Atrophy UK

@SMA_UK_

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Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics

Stratford-upon-Avon
Joined March 2014
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@SMA_UK_
Spinal Muscular Atrophy UK
1 hour
🌟 Mark your calendars! On March 13th, Kidz to Adultz Middle is at the Coventry Building Society Arena! Enjoy sports, workshops, guest appearances, and seminars for the whole family! πŸ™ŒπŸŽ‰πŸ’» Register for FREE here:
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@SMA_UK_
Spinal Muscular Atrophy UK
1 day
✨ Primark launched a 49-piece adaptive clothing collection with advocate Victoria Jenkins! Designed for style, comfort & accessibility with magnetic zippers, snap fastenings & medical access openings. πŸ’™ Check it out:
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@SMA_UK_
Spinal Muscular Atrophy UK
3 days
Moment 3 in our #40MomentsFrom40Years: In 1998, The Jennifer Trust officially became a registered charity, marking a major milestone for the SMA Community! πŸ“£
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@SMA_UK_
Spinal Muscular Atrophy UK
4 days
🚨 Get ready to get muddy! 🚨 WOLF Runs are epic off-road challenges! 🐺 Gather your team and raise funds for SMA UK! Bookings for 2025 are OPEN! Sign up πŸ‘‰ #WOLFRUN #GetMuddyForSMA #ChallengeYourself
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@SMA_UK_
Spinal Muscular Atrophy UK
5 days
It’s Feeding Tube Awareness Week! πŸ’™ Feeding tubes are vital for many with SMA, so we’ve gathered some key resources in this handy blog! Read more here πŸ‘‰ #FeedingTubeAwareness #SMA
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@SMA_UK_
Spinal Muscular Atrophy UK
6 days
Thinking about writing or updating your Will? By including SMA UK in your will, you can help support the SMA community for years to come πŸ“£ Learn more about leaving a gift here: πŸ”— #LeaveALegacy #SMASupport
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@SMA_UK_
Spinal Muscular Atrophy UK
7 days
🚨 New Webinar Alert! 🚨 Join Sanna and experts as they discuss diet & nutrition for Spinal Muscular Atrophy (SMA). πŸ’‘ Packed with insights on managing weight and health! πŸŽ₯ Watch now: #SMA #Nutrition
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@SMA_UK_
Spinal Muscular Atrophy UK
8 days
Think you’re funny? Prove it! 🎀 Sign up for eight weeks of pro comedy coaching, then take the stage and make your friends & family laugh at venues across the UK! All while raising sponsorship for SMA UK πŸ“£ Ready to take on the challenge? Learn more πŸ‘‰
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@SMA_UK_
Spinal Muscular Atrophy UK
11 days
Want a chance to win Β£25,000 while supporting your favorite charity? SMA UK is partnered with the All Weathers Lottery, and you can enter for just Β£1 a week! 🎟️✨ πŸ‘‰ Find out more & enter here:
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@SMA_UK_
Spinal Muscular Atrophy UK
12 days
Can you help improve DXA scans for full-time wheelchair users? πŸ“£ If you're 16+ with a neuromuscular condition and a full-time wheelchair user, join a 45-60 min interview: Read more here πŸ‘‰
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@SMA_UK_
Spinal Muscular Atrophy UK
14 days
🌿 Exciting news! The National Trust and AccessAble are launching digital accessibility guides. Learn more πŸ‘‰ #AccessibleTravel #NationalTrust #AccessAble
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@SMA_UK_
Spinal Muscular Atrophy UK
15 days
Have you used NHS Talking Therapies? NICE wants to hear from you! Share your experiences of pre-assessment (triage) to help shape future guidance. πŸ’¬ Complete the survey here: ⏳ It takes around 15 minutes & closes at 12 midday on 7th February 2025.
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@SMA_UK_
Spinal Muscular Atrophy UK
17 days
🌟 Our End-of-Year Video is here! Join us to celebrate 2024 and get a sneak peek into 2025! Watch now: #SMAUK #YearInReview
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@SMA_UK_
Spinal Muscular Atrophy UK
18 days
Our latest blog post is live! πŸ“£ From Molly to Noora: How a Kind Donation Transformed a Life ✨ Check it out πŸ‘‰ πŸ”— #SMArtMoves #BlogPost #SMAUK
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@SMA_UK_
Spinal Muscular Atrophy UK
19 days
The second Moment from our #40MomentsFrom40Years is the very first family conference for the SMA Community, which took place back in 1987, when SMA UK was The Jennifer Macauley Trust! Here’s a look at a newspaper clipping from an article that covered this historic event. πŸ“°βœ¨
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@SMA_UK_
Spinal Muscular Atrophy UK
20 days
πŸŽ‰ Make a difference in 2025! Join our 40th anniversary '40 for 40' challenges! πŸ’ͺ Explore ideas πŸ‘‰ And request your fundraising pack πŸ‘‰
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@SMA_UK_
Spinal Muscular Atrophy UK
21 days
πŸ”¬Biohaven announces latest RESILIENT Trial data on taldefgrobep alfa. The trial results showed that taldefgrobep alfa did not meet its primary endpoint.πŸ“£ πŸ‘‰ Read more here:
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@SMA_UK_
Spinal Muscular Atrophy UK
21 days
RT @ThatsTVScotland: "Anything that we need, they'll always be there for us." Tony Pearson is taking on a 43-mile walking challenge betwee…
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@SMA_UK_
Spinal Muscular Atrophy UK
22 days
πŸ’¬ We want to hear your experiences of accessing treatment in the UK to shape our advocacy work! 🌟 Join SMA clinicians and the SMA Care UK manager in London on 28th Feb! You’ll get Β£200 plus expenses! πŸ“… More info and sign up:
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@SMA_UK_
Spinal Muscular Atrophy UK
23 days
Huge thanks to AWA Engineers for choosing SMA UK as Charity of the Year! πŸŽ‰ They raised Β£1,672.50 last year through baking, walking, and jumpers. πŸ’™ Interested in supporting a charity in 2025? Learn more: πŸ”—
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