WATCH NOW: The recording of our live webinar "MECP2 and Rett Syndrome: How Do Your Child's Genes Fit into Gene Therapies?" is now available. If you didn't get a chance to join us, you can watch it on demand now at this link or in our RettEd Video Library:

We are excited to announce the confirmed session topics and keynote speakers for the 2025 IRSF Rett Syndrome Scientific Meeting! Learn more about the meeting, submit your abstract, and register at

Registration is now open for this year's RettAway! Join us in San Diego and the surrounding area July 9-12 for a getaway experience catered just for Rett families. Head over to to learn more about the location, activities, and more. 🦁🌊🌞Space is limited!

IT'S ALMOST TIME! Registration for this year's RettAway will open on Monday! We hope your whole family will join us in Southern California for some fun in the sun exclusively for our Rett community. Head to on Monday to learn more! 🏖️🌊🐚☀️

Don't forget to register and submit your questions for our next live webinar, "MECP2 and Rett Syndrome: How Do Your Child's Genes Fit into Gene Therapies?" Learn more and register here: Thank you to our empowerment presenting sponsor, @AcadiaPharma!

Registration is now open for the 2025 IRSF Rett Syndrome Scientific Meeting, the premier gathering of researchers and scientists from around the world, focusing exclusively on #Rettsyndrome and Rett-related issues. For more information, visit

Registration is now open for our next live webinar, "MECP2 and #RettSyndrome: How Do Your Child's Genes Fit into Gene Therapies?" Learn more and register today here:

🌟 We’re excited to share some big news—the launch of our completely redesigned website! 🎉 Visit the new to explore its fresh look, discover new resources, and learn how we can work together to create a world without Rett syndrome.

Today, @AcadiaPharma announced the submission of a Marketing Authorization Application (MAA) to the European Medicines Agency (EMA) for trofinetide to treat Rett syndrome. Read the full press release here:

We are now accepting abstract submissions for the 2025 IRSF #RettSyndrome Scientific Meeting! All accepted abstracts will be invited to present a poster, and the best invited to give a platform presentation. Learn more & submit your abstract by 3/7/25 at

As we enter a new year, we want to share an important leadership update. Melissa Kennedy has stepped down as CEO of IRSF and we are pleased to welcome Leslie Mehta as interim CEO. Read the full announcement here:

There's still time! Take advantage of our generous $195,000 matching gift and have double the impact directly toward advancing treatments and cures for Rett syndrome. Thank you for making a tax-deductible gift before the end of the year at

Starting TODAY through 12/31, your tax-deductible donation will be MATCHED up to $195,000 by 3 generous families who believe in the mission & vision of IRSF. Please consider propelling us into the next wave of scientific breakthroughs. Give at

It's #GivingTuesday and together, we can give hope to individuals living with Rett syndrome all over the world! Right now, when you give or fundraise in honor of someone you love with Rett, every dollar will be matched up to $100,000! Give now at

It's almost #GivingTuesday and once again, we ask you to join us in giving hope to families all over the world with Rett syndrome. This year, every gift will be matched up to $100,000! Learn more at

At IRSF, we are committed to transforming the lives of families living with Rett syndrome. As we look back on the incredible strides made in this past year, we are filled with hope and gratitude. Thank you for making a difference. Wishing you a healthy and joyful holiday!

Registration is now open for “From Surviving to Thriving,” a course for caregivers from @Child_Neurology. This training is open to all parents or caregivers who have a child with a neurologic condition. Learn more and register at CNF's learning portal:

We invite the scientific community to join us in Boston next June for the 2025 IRSF Rett Syndrome Scientific Meeting, the only annual, global, and comprehensive research meeting focused exclusively on #Rettsyndrome. Look out for info on abstracts, registration, & more in January.

We are excited to announce that the 2025 RettAway is set for July 9-12, 2025. Save the date to join families from around the world in Carlsbad Village, near San Diego, California, next summer! 🏝️⛱️🌞🌊More info on activities, hotels, registration, and more coming soon!

Now available at "Unlocking Hope: A Journey Through Understanding and Supporting Individuals With #RettSyndrome." These activities are provided by @CCO_Education in partnership with IRSF & supported by an educational grant from @AcadiaPharma.