RaDaR
@RenalRadar
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The largest rare kidney disease registry in the world. A powerful source of real-world data that can help improve understanding of rare kidney conditions.🧬
England, United Kingdom
Joined March 2016
“These types of insights – the ones that you can only really get from large cohorts - are really valuable” ... @DannyGale_1 discusses how RaDaR can support projects like PARASOL with longitudinal data. Listen to the full episode of #KidneyCompass now:
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RT @louise_oni: Outstanding talk by @DannyGale_1 on the fantastic global project PARASOL @nephcure @ISGDtweets (Again supported by @Renal…
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RT @KNewmanPhD: Interested in IgA nephropathy and loin pain in patients? I’m at poster 870 today and would love to tell you about what we @…
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RT @louise_oni: A privilege to chair a glomerular disease session at #Kidneywk especially when it contains data from the world renowned @Re…
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RT @UKKidney: 📢 Big news! Dr Omid Sadeghi-Alavijeh @OAlavijeh has won the prestigious Raine Award & will deliver the lecture at UK Kidney W…
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RT @DannyGale_1: This is a tragic and devastating loss to UCL, the Royal Free Hospital, RaDaR and the renal community everywhere. It is a p…
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RT @UKKidney: Help shape content at the UK's largest kidney conference! Session proposals are now open for UK Kidney Week 2025: https://t.c…
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RT @dimerixltd: We are excited to announce our collaboration with UK’s @RenalRadar to enhance patient recruitment in Dimerix’s ACTION3 Phas…
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Have you checked your inbox? 📧 Our survey on reproductive health in women with kidney disease is open until the end of September.🤰📝 We’ve received over 1,500 responses 📊 but we need more to ensure the data is representative. Your voice matters - check emails for link now!
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RaDaR update! 🧬 We are currently working with over 34,000 patients recruited from 109 sites across the UK. This makes us the largest rare kidney disease registry in the world! 🙌 🌍 Is your unit on the list? Find out now 👇
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Wondering what RaDaR is? We’re the National Registry of Rare Kidney Diseases 🧬 - a powerful source of real-world data that can help improve understanding of rare kidney conditions & provide info for research & clinical trials. 📊🔬 Find out more ➡️
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RT @UKKidney: 🚨 2 WEEKS LEFT🚨 Time is running out to register for UK Kidney Week 2024 in Edinburgh. 🏴 Don't miss the UK's biggest ev…
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RT @DannyGale_1: Cross sectional analysis of @RenalRadar data shows children with rare kidney diseases (across all ethnicities studied) dis…
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RT @UKKidney: UKKA's @RenalRadar, top rare kidney disease registry, shows the critical need for more knowledge & treatments. With signifi…
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RT @aHUSAllianceAct: In @TheLancet, important paper from @RenalRadar on outcomes & differences for those with rare #kidneydiseases compared…
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RT @DannyGale_1: Beating #KidneyFailure needs #RareDisease cures. @RenalRaDaR data out today reveals a staggering 28x higher 5-year kidney…
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RT @PKDCharity: 🌟 #RareDiseaseDay is all about amplifying the voices of the ‘1 in 17’ people affected by a rare disease. There are 6000+…
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