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REFUEL-MS Profile
REFUEL-MS

@REFUEL_MS

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REFUEL-MS is a research programme based @KingsIoPPN & others, developing a digital treatment for fatigue in #MultipleSclerosis. @mssocietyuk + @NIHRresearch

London
Joined November 2022
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@REFUEL_MS
REFUEL-MS
2 months
If you're interested, here’s some more info on what Bluesky is and how to join:
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@REFUEL_MS
REFUEL-MS
3 months
Discover the 'History Makers' paving the way to #StopMS This powerful initiative from the MS Society, highlights the stories of incredible individuals and the life-changing impact of ongoing research for those living with MS. Click below to learn more about their journeys...
@mssocietyuk
MS Society UK
3 months
Happy Friday everyone! This week we've been sharing some of the amazing #MSHistoryMakers helping us to #StopMS The researchers, the volunteers taking part in studies, and the people raising vital funds. If you missed it, don't worry we've got you covered! Swipe to read ➡️➡️
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@REFUEL_MS
REFUEL-MS
3 months
RT @RonaMossMorris: We have been grappling with how to improve diversity & inclusion in our behavioural interventions & trials. Here is a…
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@REFUEL_MS
REFUEL-MS
3 months
📢📢Our commentary paper on “Diversity and inclusion in behavioural intevention trials in multiple sclerosis” is now free to download for November 2024, and January 2025! You can find the paper in the Linktree in our bio & watch our Reel about it here:
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@REFUEL_MS
REFUEL-MS
3 months
RT @RonaMossMorris: Great postdoc opportunity for a health psych or implementation scientist to join our wonderful @REFUEL_MS team 👇
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@REFUEL_MS
REFUEL-MS
3 months
Happy Diwali from REFUEL-MS! This festival celebrates the triumph of light over darkness, and hope over adversity – a message that may resonate deeply for many people living with MS. We’re wishing a warm, peaceful, and joyful Diwali to all who celebrate 😊✨ #diwali #MSresearch
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@REFUEL_MS
REFUEL-MS
4 months
If you are interested in hearing more about how we can diversify MS research... Join the Black History Month "Channeling change" webinar, hosted by MS Society UK. When: Today at 6:30pm Secure your place here:
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@REFUEL_MS
REFUEL-MS
4 months
At REFUEL-MS, we proudly support Black History Month 2024 and this year's theme, "Reclaiming Narratives". See more on this in the context of MS & Fatigue in our Instagram post here! #BlackHistoryMonth2024 #ReclaimingNarratives #MSAwareness #REFUELMS
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@REFUEL_MS
REFUEL-MS
8 months
Happy Pride Month! Representation is important, so let's celebrate the diversity of people living with multiple sclerosis 🧡 #multiplesclerosis #refuelms #msresearch #Pride #pride2024 #msawareness
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@REFUEL_MS
REFUEL-MS
8 months
RT @mssociety: People with MS often experience mobility challenges like: ✅ Difficulty walking ✅ Fatigue ✅ Loss of balance To hear how res…
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@REFUEL_MS
REFUEL-MS
8 months
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@REFUEL_MS
REFUEL-MS
9 months
National Walking Month! Research shows moving more can help with MS fatigue, but living with MS/fatigue can make it hard to move in the first place. Doing something, no matter how small, building your activity levels slowly, can be a great way to start🧡 #NationalWalkingMonth
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@REFUEL_MS
REFUEL-MS
10 months
"It's kind of like trying to swim in a coat" It can be exhausting to try and explain your MS fatigue to others. Let's highlight why fatigue can be so hard to talk about #MSUnfiltered #MSAwarenessWeek #multiplesclerosis #refuelms
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@REFUEL_MS
REFUEL-MS
10 months
"Outwardly I try and appear as normal as possible" Fighting against the negative perceptions of others can be exhausting. For #MSUnfiltered, we want to amplify the voices of people living with MS as they talk about experiencing stigma. #MSAwarenessWeek #multiplesclerosis
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@REFUEL_MS
REFUEL-MS
10 months
Telling your employer, or even friends and family, about your MS can be a difficult decision to make. We spoke to people living with MS about disclosing their diagnosis, and telling people about their MS fatigue. Let's talk about disclosure for #MSUnfiltered #MSAwarenessWeek
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@REFUEL_MS
REFUEL-MS
10 months
Sound familiar? In the spirit of MS Awareness Week, we will be joining the #MSUnfiltered conversation to share your stories. Let's shed some light on the things about MS that can be hard to talk about🧡 #MSAwarenessWeek #msresearch #MultipleSclerosis #refuelms
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@REFUEL_MS
REFUEL-MS
1 year
We are thrilled to announce that REFUEL-MS has secured 1 of 8 places on the @ukgovofficial 's new Innovative Devices Access Pathway (IDAP) pilot scheme! You can read more about the scheme here:
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