Rare Autoinflammatory Conditions Community - UK®️
@RACC_UK
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A Registered Charity (1184846) for Patients and families affected by Autoinflammatory Conditions, in the UK. Members of @EURORDIS @_ERNRITA @NationalVoices
UK wide
Joined March 2017
“Patient Experiences and Challenges in the Management of Autoinflammatory Diseases—Data from the International FMF & AID Global Association Survey” (2024) #patientexperience #autoinflammatory
We are pleased to present our new publication and thank the doctors and our member patients who made this advocacy effort possible. Please share this paper to raise autoinflammatory awareness.
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RT @PANSPANDASUK: Support PANS PANDAS UK by sharing our weekly X post Every Thursday, at 8 pm, the community-led Twitter (X) team will pub…
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RT @KasiaPirog1: Places are filling up for our free #GeneticsMatters @rarediseaseday event in Newcastle! To book, click:
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RT @DermTimesNow: 📖 A recent case study illustrated the coexistence of hidradenitis suppurativa and porokeratosis palmaris et plantaris dis…
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RT @NatRevRheumatol: #JanuaryIssue | Emerging concepts and treatments in autoinflammatory interferonopathies and monogenic systemic lupus e…
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RT @lolaeyedoc: Childhood uveitis is all too often ‘idiopathic’ But We are beginning to unravel the somatic mutations that underpin autoimm…
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RT @bobvarkey: Carpal tunnel syndrome due to an unusual RS3PE syndrome Remitting seronegative symmetrical synovitis with pitting oedema (R…
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RT @LabWaggoner: REVIEW: Emerging concepts and treatments in autoinflammatory interferonopathies and monogenic SLE @NatRevRheumatol https:/…
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RT @SamuelLaraR: New paper alert! Proud to have contributed in this impactful study. We reveal the genetic complexity of AOSD & identify no…
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RT @BibliotecaHUVH: Recommendations for Transitioning Young People with Primary Immunodeficiency Disorders and Autoinflammatory Diseases to…
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RT @GaurangSD25: These actions cause collateral damage despite no real danger. Similarly, in autoinflammatory syndromes, the immune system…
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RT @Weather_West: 1) A brief editorial from Nov. 2024 on history of NOD2-related autoinflammatory conditions, including YAOS: https://t.co/…
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RT @alb_giraldo: The deficiency of adenosine deaminase 2 (#DADA2) is an autosomal recessively inherited #autoinflammatory disease, initiall…
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RT @fatihhaslak61: Excited to announce the publication of not one, but two articles on autoinflammatory bone diseases! 🦴🦴❤️❤️Proud to contr…
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RT @touchIMMUNOLOGY: 🎯 Tackling Periodic Inflammation in Adults 🔬 Diagnosing periodic inflammation of unknown origin, especially in system…
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RT @Read_The_Rheum: My first case report! Vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic (VEXAS) syndrome in a patient with suba…
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