Patient Voices
@PatientVoicesUK
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Since 2003, the Patient Voices programme has been using first person reflective digital storytelling to affect facilitate universal storytelling for change.
Cambridge, UK
Joined August 2010
Remember - your GP is not an NHS employee but has a contract to provide services. A great history of the evolution, sucesses and failures here:
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@BBCr4today @Emmabarnett As a sufferer of #neurologicalpain due to #transversemyelitis it was so good to hear Kirsty Young talking about the invisbility of #chronicpain
#digitalstories made by people with #chronicpain (in their own words, not interviewed) here:
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Very pleased to announce the publication of a paper about the transformative and therapeutic aspects of digital storytelling! #digitalstorytelling #digitalstory #transformation #therapeutic #reflection
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Are you interested in learning more about, or participating in research about, depression? Contact: Dr Anna Bevan (Clinical Psychologist) @ MRC Cognition and Brain Sciences Unit Phone: 01223 767702 Email: clinicalresearch@mrc-cbu.cam.ac.uk Website:
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🗣️Your voice matters! Help @GiveUsAShout and @Imperial_IGHI
@imperialcollege to shape #MentalHealth research which could influence national policy. Complete this short anonymous UK survey by picking the topics that are most important to you, by 30 June:
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Have #neuroimmune disorder, #transversemyelitis #nmog #ADEM or others? Give 15 minutes to Tara Duffy neurology student with #ADEM at @UofNH, studying mindfulness and quality of life in these disorders. Survey here: #AutoimmuneAwarenessMonth Please RT
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Edited by Stephen Dobson, Brit Svoen, Gabriella Agrusti, and @PilgrimPip , and with contributions from many others "Learning Inclusion in a Digital Age: Belonging and Finding a Voice with the Disadvantaged" is now available in print and as a free download
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Call for Papers: Palgrave Handbook of Disability in Comics and Graphic Narratives via @graphicmedicine
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The #mealsonwheels service is a lifeline to independent living for the elderly and the blind. What are @hantsconnect @ranil @robhumby @Helen_Whately doing to find a replacement when @apetitouk leave contract in 2 weeks? @RNIB @RNIBcampaigns @age_uk @ageukcampaigns
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HCP or partner supporting Young Peoples health? Working at strategic/policy level on health inequalities? Want to ensure YP voices amplified and heard? Free online training led by YP on YP health inequalities from @AYPHcharity @NHSEngland Join and share:
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Just frantically packing ready head off to the #11thDST2023 tomorrow. Check out the programme at
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And, if you want a sense of what training for a marathon is like, then you might enjoy this little video by Tom Nutt, CEO of @MeningitisNow :-) Please RT! (2/2)
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Tom Nutt, CEO of @MeningitisNow is running the London Marathon to raise funds for the charity. Sponsor him at JustGiving page: Please RT!! (1/2)
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Help! We've been working with Imperial Health Charity on a resource for #healthcaretransition. If you're a #youngperson #parent #ahp #teacher or #clinician working with #youngpeople please rate/feedback on any part of the pilot Please RT to your networks!
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@barbara_babcock @the_SWLEOC Excellent work! #TransverseMyelitis awareness is something close to my heart - or in my case closer to C6... :-)
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It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. After hepatic pulmonary syndrome and #biliaryatresia a young woman can still “Look beyond the scar” @GeneticAll_UK @rarediseaseuk #CareForRare #bodyimage
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It's #RareDiseaseDay! For 20 years #PatientVoices has helped people share their #raredisease stories. A young person with #EosinophilicEsophagitis #EoE can feel that their life is becoming “Small” @GeneticAll_UK @rarediseaseuk #CareForRare #CEGIR
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