Faye (B/stoke patient), has been raising media awareness around PMP. She is looking for more survivors who want air time & tell her followers about yr experiences. If interested, drop us a PM & we will pass it on. #pseudomyxomasurvivor #pseudomyxomaperitonei #rarecancerawarenes

We are funding AI research @BasingstokePmi. Predicting PMP disease recurrence & survival, improve patient care & refine primary treatment protocols. Tim Brill, PS Trustee, surgeon Mr Mark Vasanth, Dr Sophia Stanford, Lead Research Scientist #pseudomyxomasurvivor #appendixcancer

This article states that "Patient advocacy is really hard". We agree, patients need to be included as equal stakeholders in all decicions regarding treatment and care. We often have to fight for our seat at the table. #pseudomyxomasurvivor #patientadvocacy

Peritoneal malignancies are appearing in younger patients. Are they receiving written resources during preoperative medical visits? Is counselling being offered? Important questions to ask. Link to article - #pseudomyxomasurvivor #pseudomyxomaperitonei

RT @indepso: Recurrent PMP affects 1/3rd of operated PMP pts. Sometimes with very adv disease, traditional Rx is near impossible. Multi-…

We are currently backing a funding proposal aimed specifically at exploring diets for PMP patients. Given that this a rare cancer, it would be remarkable to shine a light on our needs. Keeping our fingers crossed! 🤞🏻 #pseudomyxomasurvivor #pseudomyxomaperitonei #appendixcancer

We trust you have found our series on diet for cancer patients informative & it has opened a conversation on the subject. Let your healthcare professional know if you are considering a specific diet. #pseudomyxomasurvivor #BDA_dieticians #pseudomyxomaperitonei #appendixcancer

Those with a low BMI, eating disorders, heart disease or diabetes are advised not to risk short-term fasting due to a lack of strong evidence. Check with yr oncology team before taking any supplements. #pseudomyxomasurvivor #bda_dieticianssh #pseudomyxomaperitonei #appendixcancer

We have been running a series on cancer diets & myths, with our information being supplied by @BDA_dieticians. Today's subjects are alkaline & ketogenic diets, both complex areas to discuss. #pseudomyxomasurvivor #BDA_dieticians #pseudomyxomaperitonei #appendixcancer

We have been running a series on cancer diets & myths, with our information being supplied by @BDA_dieticians. Today's subjects are alkaline & ketogenic diets, both complex areas to discuss. #pseudomyxomasurvivor #BDA_dieticians #pseudomyxomaperitonei #appendixcancer

We have been running a series on cancer diets & myths, with our information being supplied by @BDA_dieticians. Today's subjects are alkaline & ketogenic diets, both complex areas to discuss. #pseudomyxomasurvivor #BDA_dieticians #pseudomyxomaperitonei #appendixcancer

Continuing our series on cancer diets and myths. Today we start with some myths. #pseudomyxomasurvivor #britishdieteticassociation #pseudomyxomaperitonei #appendixcancer

To navigate cancer treatment, understanding the distinction between complementary & alternative diets is crucial. Open discussions with medical professionals, & with support from family/friends, ensure your decisions are informed. #pseudomyxomasurvivor #britishdieteticassociation

New appendix cancer & PMP patients may consider diet to ‘fight’ cancer or alleviate side effects. Over the next few days are prompts, to start a conversation about your diet & cancer. Sourced from BDA #pseudomyxomasurvivorcharity #britishdieteticassociation #pseudomyxomaperitonei

No matter how you are celebrating, we wish you a very Merry Christmas and a Happy New Year. Our volunteers are taking a break. We'll be checking in now and again but please be patient. See you in 2025. #pseudomyxomaperitonei #pmpsurvivor #appendixcancer #MerryChristmas2024

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