Nina E. Steinkopf
@Nina_Steinkopf
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Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. 🇳🇴🏳️🌈🇵🇸😷
Joined October 2014
“I'm not interested in whether you've stood with the great; I'm interested in whether you've sat with the broken.” ― Sue Fitzmaurice
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Here, Prof. Rob Wüst et al. is giving Wyller, Garner, Chalder et al. a brilliant lesson in basic scientific methods and Post Exertional Malaise, PEM in ME/CFS and Long Covid.
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RT @PutrinoLab: With everything that has happened over the past few days with regard to layers of censorship being imposed upon workers for…
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Why does @JAMANetworkOpen allow investigators to claim an intervention was "effective" when the trial's primary outcome results did not reach the threshold for clinical significance???
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“… the systematic review labeled CBTplus effective, even though according to their own results, patients were still severely disabled after treatment with CBTplus.” .
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Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome. " ... the review should be retracted. “It’s misleading and shouldn’t be there,” he said. “It’s now about 14 years out of date.” .
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Ifølge forskere ved det amerikanske National Institutes of Health (NIH) er forekomsten av ME/CFS nå 15 ganger høyere enn før pandemien.
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Kompetansetjenestens svogerforskning: Det er ideologi, og det skader pasientene. .
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De verste behandlingene for pasienter med utmattelsessykdom er de samme behandlingene som Kompetansetjenesten for CFS/ME anbefaler.
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RT @ME_Rogaland: Translation into English: - Antibodies that are formed against EBV and cross-react with body cells are often found in aut…
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RT @RamstadHanne: Vi vet at de Iyver de vet at de lyver de vet at vi vet at de lyver vi vet at de vet at vi vet at de lyver men de lyver fo…
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I sitt svar til Kompetansetjenesten for CFS/ME begrunner og utdyper Sissel Sunde det hun mener er løgn fra deres side, og belyser ytterligere hvorfor leder Ingrid B. Helland og Maria Pedersen må fratas enhver innflytelse over ME-pasienter.
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If you don't understand PEM, you should not treat or make decisions involving ME-patients. ‼️
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RT @ME_Rogaland: - Long COVID isn’t just a health issue—it’s hitting wallets and workplaces hard. via @YaleMed
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Pasientrettigheter under angrep. Regjeringen ønsker å svekke rettighetene våre igjen. Frist for å sende inn høringssvar er 6. januar 2025.
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