Nick Sireau
@Nick_Sireau
Followers
270
Following
0
Statuses
30
I'm the father of two children with Alkaptonuria (AKU), a rare genetic disease; the CEO&Chairman of @AKUSociety; and Chairman of @findacure_fdn. My views.
Cambridge
Joined November 2012
0
2
5
Motivations for joining a trial: results of a cystic fibrosis patient study. Oli Rayner @cftrust #trialsconf
http://t.co/IdxfoJRoZM
1
9
9
Pharmacomedics' Kamlesh Sheth says patient groups should seek out champions for their cause in industry #trialsconf
http://t.co/GF7AbFwb7i
0
3
2
@AKUSociety's Hana Ayoob explains to @findacure_fdn workshop how to make patients central to clinical trials http://t.co/BmA59yHwQn
0
2
3
Repositioned drug apomorphine shows promise for coma patients says Neal Farber of Neurohealing at Boston drug conf
0
0
1
Bruce Bloom @CuresWReach says socialfinancing can help drug repurposing at Boston drug repositioning conference
0
0
0
#BlackBoneDisease: the world's 1st #genetic disease, discovered more than 110 years ago. It's time to cure it. http://t.co/nGpLZ0KMQx
0
3
0
Making good progress with #aku team at #hopitalnecker discussing #clinicaltrial protocol for #developakure.
0
1
0
Our recruitment drive for AKU patients for our clinical trials is accelerating: http://t.co/wJ152k4QzE
0
0
0
We're officially launching our major clinical trial programme. More soon!
0
0
0
0
0
0
Mutual trust crucial for high quality research says Myrovlytis Trust CEO John Solly at #orphanconf
0
0
0
Myrovlytis Trust's CEO John Solly looks at challenges involved in setting up medical foundation @ #orphanconf
0
0
0
AFM's CSO announces upcoming launch of French venture philanthropy fund for rare diseases at #orphanconf
0
0
0
Great presentation by AFM's CSO on how AFM patient group has funded new drug discovery models #orphanconf
0
0
0
Sobi CEO Geoffrey McDonough made excellent presentation on AKU programme on ntbc at #orphanconf today.
0
2
0