Sling the Mesh
@MeshCampaign
Followers
5,645
Following
2,873
Media
3,156
Statuses
22,754
When industry influences healthcare patient safety suffers. Raising awareness of surgical mesh harm #prolapse #hernia #rectopexy #breast #SUI @kathsansom
Cambridgeshire
Joined May 2015
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Cabinet
• 303145 Tweets
#JUNGKOOK_IAMSTILL
• 179587 Tweets
President Ruto
• 125530 Tweets
CENTURY OF LOVE EP2
• 90612 Tweets
President William Ruto
• 78078 Tweets
Fenerbahçe
• 75486 Tweets
FB X THE STARDARD POP
• 58448 Tweets
Murkomen
• 56598 Tweets
Rouen
• 51680 Tweets
Moses Kuria
• 51093 Tweets
ラーメンの日
• 49277 Tweets
Kindiki
• 39102 Tweets
TheWallSong x EarthMix
• 35691 Tweets
Büyükekşi
• 33011 Tweets
Servet Yardımcı
• 22863 Tweets
Ali Koç
• 17147 Tweets
#トークィーンズ
• 16311 Tweets
兵庫県民
• 15886 Tweets
GONGON
• 14455 Tweets
為替介入
• 13891 Tweets
ダチョウ
• 11336 Tweets
MARTIN EN BBK LIVE
• 11307 Tweets
$RECORD
• 10349 Tweets
Hacıosmanoğlu
• 10020 Tweets
Pinned Tweet
What is mesh? It’s a plastic medical device used as a quick fix implant in operations to fix prolapse, incontinence, hernia, some mastectomies. But it can cause irreversible life changing pain & complications - impacting the patient, their partner & families
#slingthemesh
5
37
53
It has been a pleasure and a privilege to represent the mesh injured community for 5 years. It is now time to step back to spend more time with my family. Many grateful thanks to everyone who has supported me along the way.
31
45
151
I’m getting so many messages from people saying the
#PostOffice
scandal is just like the
#mesh
scandal. They told us there was nobody else suffering & we were mystery patients until we linked up on Facebook. Theres now more than 10,000 members of
#slingthemesh
17
60
150
We are at Parliament to hear the official unveiling of the Patient Safety Commissioners report into financial redress for women harmed by Pelvic Mesh
#mesh
8
60
130
Women were guinea pigs in the
#mesh
implant scandal. Sadly, they’re also guinea pigs for mesh removal. There’s no formal training or joined up thinking across the 7 NHS Mesh Specialist Centres & some women, who’re told they’re getting full mesh removals are only given partials
16
90
122
Women's voices have been heard. It makes for harrowing reading. Here is the final report - First Do No harm with many grateful thanks to
@IMMDSReview
3
80
118
Johnson & Johnson LOSE and women WIN. A true David & Goliath moment.
Shine Lawyers welcome today’s High Court decision which means thousands of Australian women affected by defective pelvic mesh implants will finally see justice after their many years of pain and suffering. Read the full release here:
3
17
41
3
40
119
BREAKING NEWS: FDA order all manufacturers of surgical
#mesh
for vaginal prolapse repair to stop selling and distributing their products immediately.
@carlheneghan
@ElneilSuzy
@OwenSmith_MP
@HumanHeadline
9
75
115
We've written to
#BBC
to support
@VictoriaLIVE
which tackles a wide range of social & political issues. Their multiple investgiations into the mesh scandal implant has so far had 5.4 million views - this would not have been possible without the TV programme
3
44
111
Eileen, 75, dies from multiple organ failure, sepsis, rectal perforation from a prolapse mesh The type surgeons say is safe She was clearly suffering & ignored. Thank you
@KevanChristie
for such a powerfully written article
@OwenSmith_MP
@EmmaHardyMP
17
108
101
We are pleased to officially announce that
@ElneilSuzy
is back doing
#mesh
removals at UCLH This welcome news is the most liked & commented on post in the
#SlingTheMesh
Facebook support group since 2015 with more than 560 likes and 152 comments of support
12
45
103
Sling The Mesh would like to pay tribute to Canadian surgeon
#RobertBendavid
a staunch supporter of the
#mesh
community Robert dedicated his life to further our knowledge mesh implant risk. His unwavering integrity to speaking the truth & his friendship will be deeply missed
10
47
99
BREAKING NEWS The FDA admit that implant materials can cause
#autoimmune
reactions like fatigue, rash, joint & muscle pain or weakness & say regulation of medical devices need modernising
@OwenSmith_MP
@carlheneghan
@sbowers00
18
83
94
Tell me this
#IWD2023
#WomensDay2023
is not a fitting occasion for the Govt
@mariacaulfield
@SteveBarclay
to offer financial redress comfort to women whose lives have been irreversibly harmed by pelvic
#mesh
surgery where they weren’t warned of the appalling risks
@EmmaHardyMP
#
8
71
96
“I don’t want anyone else – daughters, nieces, family, friends – to go through this.” Women protest new
#NICE
#mesh
guidelines & demand a surgeon's service, removing mesh for 14yrs, is brought back after it was stopped without warning
#MeshLivesMatter
5
69
94
Australian women win landmark vaginal mesh class action against Johnson & Johnson. A real result for the mesh injured community globally.
4
41
95
If men were harmed with such serious risks this operation would have stopped years ago
#mesh
17
71
90
The much-awaited independent review into mesh implants will report on July 8. It has taken 2 years. We hope it is robust enough to protect the mums of tomorrow
@EmmaHardyMP
@carlheneghan
@SharonHodgsonMP
5
44
93
Women injured by pelvic mesh implants should be given urgent financial help, England's patient safety commissioner has said.
1
40
90
UK's leading surgeon says the
#mesh
scandal & metal hips disaster are result of poor clinical trials & no long term data. Surgery is a have a go battlefield without evidence to back up safety claims
@OwenSmith_MP
@EmmaHardyMP
@carlheneghan
6
84
87
Honoured to be in a list 20 female ground breakers of 2017 in The Independent The right thing to do, is the right thing - and in this case it's exposing the biggest womens health disaster since thalidomide.
#SlingTheMesh
#mesh
implants
3
53
88
Thanks
@mariacaulfield
for meeting with
#mesh
campaigners today to discuss how to improve specialist mesh centres & tackling financial redress to improve the lives of women whose health has been irreversibly harmed
@EmmaHardyMP
1
32
56
Huge respect and thanks go to
@ElneilSuzy
who fought to do the right thing in the face of such adversity
#Mesh
implants for
#incontinence
are suspended after a Govt safety review say the risks are appalling
13
60
89
BREAKING NEWS Mesh removal centres announced
Newcastle
Sheffield
Manchester
Cambridge
UCL
Leicester
Nottingham
No bids from SE & SW, however following discussions some providers now come forward. NHS England hope to announce soon
@EmmaHardyMP
@SharonHodgsonMP
8
38
85
Half of women suffering
#mesh
complications have suicidal thoughts and 1 in 20 have tried to take their life. Nobody should be given a health care treatment that leaves them wanting to die
@carlheneghan
@OwenSmith_MP
#mesh
#meshtoo
#RCOG2019
7
76
82
Hands up who wants the medical community to treat
#mesh
injured women with respect. Our trust is shattered. That trust needs rebuilding
#firstdonoharm
#slingthemesh
8
32
84
Massive thanks to
@OwenSmith_MP
for hearing womens stories of suffering & backing our
#SlingTheMesh
campaign all the way to the
#LabourConference2019
Thanks
@jeremycorbyn
for adding us to the Labour manifesto Our thanks go also to
@EmmaHardyMP
@SharonHodgsonMP
10
59
82
Women harmed by pelvic mesh trusted they were having a gold standard surgery, with no warning of risks. Many were gaslit for years & just like the Post Office scandal, told they were the only ones with complications, forcing them to suffer in silence.
3
42
82
Lessons from
#mesh
Listen to your patients instead of telling them they’re the only mystery person suffering or it’s all in their head. When things go wrong don’t create a culture of institutional denial
#patientsafety
9
36
80
Surgeon who works day and night to help women in pain ...on the day
#mesh
is suspended
@ElneilSuzy
is nominated as an NHS Hero via
@MailOnline
5
44
79
A global task force is launched to tackle medical implant safety after hearing the
#SlingTheMesh
story at
#ISOP2018
Geneva
@OwenSmith_MP
@carlheneghan
7
48
79
#Mesh
implants for
#incontinence
are suspended after Govt say risks are appalling Huge Victory to people power & success for women
Many thanks
@OwenSmith_MP
@EmmaHardyMP
@carlheneghan
@LomasChar
@stematthews94
@hannahdev
@harriet1marsden
@SharonHodgsonMP
1
52
79
Back in London for a meeting to look at ways to continue representing the
#mesh
community and elevating our voices
#slingthemesh
5
14
80
Proud to represent 7150 members at the Baroness Cumberlege Review. Mesh implants were approved on flimsy evidence with no database to log complications and patients weren't warned of risks It's time to
#SlingTheMesh
4
50
78
At 1 min past midnight we can reveal the outcome of the
@IMMDSReview
into 3 womens health treatments that have left catastrophic injuries
#Mesh
#Valproate
#Primodos
A huge thank you to every single person who has helped & supported us to get this far
#SlingTheMesh
5
46
75
Why did the
#mesh
implant disaster go on for 20 yrs before anyone took it seriously? Because it involved the V word & thats a bit "icky" for media, MPs & women to openly discuss Thank God its now OK & we have a suspension Thanks
@OwenSmith_MP
@EmmaHardyMP
7
51
77
🇺🇸 BREAKING NEWS FROM USA: Johnson and Johnson has agreed to a $117 million multistate settlement over allegations it deceptively marketed its pelvic
#mesh
products.
11
58
75
Today is International Mesh Awareness Day. Sending our support to campaigners globally in this scandal of profits before
#patientsafety
made possible by flawed & or industry funded scientific evidence, weak regulation, no databases capturing complications & institutional denial
4
42
77
If America recognises vaginal prolapse mesh is too risky to use & bans it, why did
@NICEcomms
say in their guidelines 2 weeks ago it was fine? Anyone smell a rat?
#NICE
#mesh
guidelines not fit for purpose
@stematthews94
8
53
72
Massive congratulations to
@ElneilSuzy
Such a deserving winner
“I would like to congratulate Sohier Elneil - NHS consultant and dedicated champion for her patients who won Health Hero of the Year. Sohier and all of the nominees epitomise the very best of our NHS.” - PM
@Theresa_May
at Daily Mail Health Heroes awards
136
126
498
9
33
77
Baroness Cumberlege calls for financial redress for women & families harmed by
#mesh
#primodos
#sodiumvalproate
“The NHS caused these problems, it’s up to the NHS that these people have a better life through redress”
3
51
73
NICE backtrack on vaginal prolapse
#mesh
Dec 2017 it is banned
April 2019 it is unbanned
June 2019 It is banned again but only AFTER PRESSURE FROM
#SLINGTHEMESH
6
60
74
Baroness Cumberlege - We are deeply disappointed the government has rejected calls for an independent redress agency or any redress for families whose lives have been devastated by medicines or medical devices. For those families justice has not been done today
#mesh
7
56
74
A doctor with J&J Ethicon says a 20% erosion rate is OK. That equates to 1 in 5 women suffering plastic
#mesh
slicing into their internal tissues or through vaginal walls. Not much about that sounds OK to me.
@OwenSmith_MP
@EmmaHardyMP
@carlheneghan
14
46
72
#GoodFriday
is not good for
#SlingTheMesh
This week we hear surgeon
@ElneilSuzy
has had her
#mesh
removal service stopped. Women are devastated, some now suicidal, & expected to go to other surgeons with barely any experience Lesson? Never be an
#NHS
whistleblower
@OwenSmith_MP
16
61
68
Huge thanks to
@EmmaHardyMP
&
@SharonHodgsonMP
who've secured a back bench debate for
#slingthemesh
So many things to cover: rectopexy mesh removal in the specialist centres, urgent need for hernia mesh public consultation as per Scotland, financial redress, conflicts of interest
5
35
71
5
36
71
J&J ordered to issue graphic warnings on its pelvic mesh products.
2
44
72
4
53
72
Today
#SlingTheMesh
gave the second round of oral evidence to the 🇬🇧 UK safety review into
#mesh
@IMMDSReview
Huge amounts of work has gone on in the background to prepare. A big thanks to the team who have spent hours getting ready for today
#MeshLivesMatter
3
33
70
It's the anniversary since our emotive
#SlingTheMesh
lobby at Parliament led by
@OwenSmith_MP
A year on & we have achieved a
#mesh
implant suspension
#peoplepower
#womeninspire
1
44
71
Pelvic mesh scandal is what happens when men with power ignore women | Richard Vize
2
33
70
#MESHTOO
"My mum runs
#SlingTheMesh
She shouldn't have to spend hrs every day for 3.5yrs trying to stop an operation that's messing up women's lives Sometimes she's up at 4am & bed at 1am Non-stop Voluntarily" Daisy, 16yrs
@IMMDSReview
@OwenSmith_MP
@EmmaHardyMP
@SharonHodgsonMP
12
44
68
I think what needs to be understood by anyone stepping in to the mesh arena is here are healthy women, with embarrassing health problems, whose lives have been ruined, Is it any wonder we are angry?
@roofus
@waelagur
@ElneilSuzy
0
43
71
Two years ago Chrissy died of sepsis from TVT
#mesh
leaving 2 young sons On Nov 21 judgment will be given in🇦🇺Australian landmark class action against J&J on vaginal mesh & it’s debilitating effects on women who've lost husbands, houses, jobs, self esteem & live in crippling pain
5
47
67
For anyone who thinks only a small minority of people suffer mesh complications
6,130 active members of
#SlingTheMesh
in the last 7 days
This is just 1 support group from many globally
Not everyone suffering is on social media
Pain often blamed on other health issues
6
36
69
Women have been irreversibly harmed from vaginal
#mesh
since 1997 yet still new research says more studies are needed into risks. For 22yrs nobody's properly logged long term complications
#SlingTheMesh
10
44
68
Proud to represent
#SlingTheMesh
at
#ISoP2018
in
#Geneva
today where I'll be talking about how regulators failed to protect women in the shameful story of mesh implants
@OwenSmith_MP
@EmmaHardyMP
@SharonHodgsonMP
@carlheneghan
3
45
67
An emotional debate in House of Commons tells of the "wild west" of medical device regulation Devices are rushed to market for profits The result is patients pay the price Thank you for your support
@EmmaHardyMP
@OwenSmith_MP
@carlheneghan
@SharonHodgsonMP
2
68
66
The First Do No Harm APPG is currently in progress. There's no redress agency but can you confirm
@NadineDorries
if women will be given financial redress? Women's lives have been shattered beyond measure physically, emotionally, financially
#mesh
8
45
69
Today is the eight year anniversary of
#slingthemesh
Thankyou to everybody who has supported us along the way. In particular
@EmmaHardyMP
@carlheneghan
@vicderbyshire
@johnelworthy
⭐️image courtesy of a homeless street artist nr Tate Modern
5
27
70
These 3 medical disasters should be discussed in medical schools to teach student doctors, the doctors who'll look after women in the future, the importance of actually listening to all their patients
#mesh
#primodos
#sodiumvalproate
@EmmaHardyMP
@SharonHodgsonMP
@Dr_PhilippaW
4
30
68
Remembering Chrissy who died 3yrs ago after battling sepsis caused by a TVT
#mesh
implant Chrissy was a young Canadian mum, active with a successful interior design business. She suffered mild incontinence after the birth of her sons This her final Facebook post RIP Chrissy x
11
30
67
Good luck to everyone presenting to the MHRA today about what needs to happen to improve
#patientsafety
.
Unfortunately, this session is not open to the public (pre arranged ticket holders only) & it’s not being recorded either
@EmmaHardyMP
@AlecShelbrooke
3
27
67
Tune into
@VictoriaLIVE
on Thursday 30 for an update on
#mesh
implants with
@KathSansom
and
@Dr_Black
Sue had her mesh removed 3 weeks ago. The
#BBC
filmed her journey. Tune in at 10am
@OwenSmith_MP
@EmmaHardyMP
7
54
66
Lord Brennan says its outrageous patients must go to court to seek compensation for financial loss from a healthcare treatment. He calls for a Compensation System funded through a levy on the Medical giants
@OwenSmith_MP
4
56
68
Thank you so much
@EmmaHardyMP
for raising awareness of the urgent need for redress for
#mesh
injured women. The reply from
#BorisJohnson
totally swept us under the carpet.
8
31
67
Publically acknowledging the mesh implant disaster and issuing an apology would be a start
RCOG President Dr Eddie Morris
@morris_ep
and CEO
@_KateLancaster
visited
@10DowningStreet
earlier today to discuss how we can radically improve
#womenshealth
in the UK. 👏👏👏
#betterforwomen
12
22
136
1
39
66
“...our report makes for uncomfortable reading” - Patient failings exposed in pelvic mesh implant review
3
40
64
Imagine sitting on razor blades, a sensation of glass shards inside your vagina, a lighter burning your vagina, barbed wire wrapped round your pelvis. Just some of the ways women describe the pain of surgical
#mesh
Many ignored & made to feel a nuisance
2
55
62
Dear Government
1 Theres 5,700 members
#Slingthemesh
2 Your Chief Medical Officer didnt know
#mesh
implants can cause probs months or yrs later
3 Risk stats lower than reality: surgeons only follow up for 3mths
4 Studies average 1-2yrs
5 Long term future unknown
@EmmaHardyMP
0
67
61
Spanish doctor says women are canon fodder & treated with total lack respect in the
#mesh
money making disaster Thanks
@JuanGrvas
for speaking out
@EmmaHardyMP
@HumanHeadline
@labour_zone
4
67
63
Sling The Mesh has been successful in getting a clause into Health & Social Care Bill for 🇬🇧Sunshine Payment Act forcing industry to declare money given to Drs, teaching hospitals & research institutions. Such money was a key reason for
#mesh
#primodos
#sodiumvalproate
scandals
4
33
65
This is a TVT
#mesh
sling, suspended in the UK in 2018 but still used globally to treat female incontinence, mostly caused by childbirth - yet 8 in 10 women could’ve been helped with pelvic floor
#physiotherapy
. Lives ruined from a surgery most women didn’t even need
@sharrond62
2
21
64
Ready to give a talk to students and junior doctors
@TheBUSOG
on the
#mesh
scandal. How did it go under the radar for more than 20 years?
@EmmaHardyMP
@SharonHodgsonMP
6
18
66
A
#mesh
counselling service has been set up for the duration of the Safety Review so people can talk to a trained professional for support.
The line is open 8-6pm Mon to Fri by calling 0121 314 7075.
@OwenSmith_MP
@EmmaHardyMP
5
64
62
A whole generation of vibrant women have been irreversibly maimed from
#mesh
... young mum joins Sling The Mesh and reveals the harsh reality
6
41
63
Denial of women's concerns contributed to medical scandals, says inquiry
5
55
65
Johnson & Johnson are reprimanded by Washington Attorney General and told they must disclose all pelvic
#mesh
risks after misrepresenting their products for years
3
37
63
In his latest blog
@carlheneghan
says long-term consequences of lax approval & the failure to heed the early warnings led to hundreds of thousands of women being irreversibly harmed
@EmmaHardyMP
1
39
63
We are pleased to officially launch our
#slingthemesh
website packed with studies, blogs, news and useful links
@EmmaHardyMP
@PSCommissioner
#patientsafety
10
33
63
Johnson & Johnson withdraws pelvic
#mesh
implants from Australian market Where does this leave the UK? Where's safety for British women? Parliament mesh think tank meets Jan 30 and question in House of Lords Feb 6
5
72
62
Looking forward to meeting with
@JuliaCumberlege
today to talk about the impact of
#mesh
implants & how this is a much bigger disaster than NHS Govt & surgeon societies realise owing to catalogue of audit fails
@OwenSmith_MP
@EmmaHardyMP
2
37
62
5yrs ago Karen was not warned of mesh risks before her op in 2007. In 2013 the medical director of NHS England wrote to all hospitals saying surgeons must warn women of the dangers & give proper help if things go wrong. This never happened
@EmmaHardyMP
4
47
59
UK health watchdog bans using vaginal mesh to treat prolapse
4
56
61
Cost of treating
#mesh
injured women 🇬🇧
1) 127,500 women had incontinence mesh
2) In following 9 yrs they required 1.35 million outpatient appointments
3) Cost £245 million
This doesnt include primary care costs Thanks
@carlheneghan
for calculation
9
48
59
Absolutely outrageous. There will be no financial redress for women harmed by
#Mesh
#Primodos
or
#sodiumvalproate
no wonder Nadine Dorries deleted her twitter account a couple of days ago.
@EmmaHardyMP
@SharonHodgsonMP
5
41
61
Women injured by pelvic
#mesh
deserve financial redress. We look forward to the government's decision on The Hughes Report
#slingthemesh
4
34
62
Reviews of care by
@ElneilSuzy
who was warned by her mentor circa 2002 she would probably spend her career removing
#mesh
The prophecy is coming true & she does it with empathy & skill
@uclh
Average 30 removals pcm
@EmmaHardyMP
@OwenSmith_MP
@KenZeroHarm
4
52
60
London hospital
#UCLH
claim a decision to stop its
#mesh
removal service with
@ElneilSuzy
only affects 13 women but in reality they admitted to us, after our rally, there are 247 on the waiting list
@OwenSmith_MP
@EmmaHardyMP
@carlheneghan
#SingTheMesh
#mesh
8
48
59
Mesh injured woman “Disappointed with financial redress offer. How can £20K be anywhere near what we deserve especially when like myself had to pay £13K for this poison to be removed . This has ruined my quality of life. I don’t normally rant but I’m so angry and upset”
5
29
62
There needs to be a National Recall of all pelvic
#mesh
patients as its the only way to find out the true number suffering, says Dr Vincent Argent. He tried to warn regulators about TVT risks in the late 90s but he was ignored
@carlheneghan
3
53
60
#HouseOfCommons
Chamber debate Pelvic/vaginal
#mesh
Thurs April 19 led by
@EmmaHardyMP
Plastic implants can shrink, go brittle, twist, fragments fall off, curl twist, slicing into nerves, tissues, lacerate bladders & bowels None of us were ill. We are now
7
57
59
#JeremyHunt
says he wont re-visit the science of
#mesh
because Chief Medical Officer Dame Sally Davies says it's a "lifeline" for appropriately selected" women Here's our research that proves risk is HIGH and plastic shrinks, twists, degrades
@OwenSmith_MP
4
80
57