Martin Johnston
@MartinJ_MND
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Following
590
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130
Statuses
1,522
Diagnosed with Motor Neurone Disease in August 2018. Trying to raise awareness of the condition in the hope a cure can be found. Ex. Semi Pro Footballer.
Joined February 2020
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Pinned Tweet
As a lot of people will have heard by now, I was diagnosed with Motor Neurone Disease back in August 2018.
With the help of my family and many friends we have decided to organise a fundraiser for
@MNDoddie5
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A hero and a leader to all those affected by MND. A huge inspiration to me. I’m devastated to hear this news. My thoughts are with all his family and friends. Thank you for giving us hope Doddie. It will never be forgotten ❤️
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My phone rang today with a new number. I was shocked to hear it was
@DoddieWeir5
phoning me to check how I was getting on & have a chat about all things MND. I didn’t think it was possible to respect the man more than I already did. But this has taken it to another level 🔵🟡🏴
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I had my worst fall yet last night down the stairs after saying night to my daughter. Knocking me unconscious. Very traumatic for my wife & kids. My son had to call an ambulance while my wife attended to me
Thank you to the paramedics & hospital staff for looking after me🙏🏼
#MND
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Gutted to hear the news of Rob’s passing today. Although it is expected at some point. It still comes as a shock, and reminds you and your family of what you are facing.
Rob was a huge inspiration to me and many others with MND.
Thoughts are with his family at this sad time ❤️
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Today is another huge day in the fight against Motor Neurone Disease.
I can’t believe the massive difference in awareness and fundraising since I was diagnosed over 4 years ago.
Thank you Kevin Sinfield and everyone who is supporting the
#MND
community 🙏🏼❤️
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Big shout out to our friend’s son Owen Lean, aged 9, who has been hard at work making these brilliant Christmas Reindeers to raise funds for the My Name'5 Doddie Foundation. I think they look amazing.
Well done Owen👏🏼👏🏼💙💛🦌
@MNDoddie5
#MND
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Christmas Day No. 4 since diagnosis. Feeling very lucky and grateful to be able to say this 🙏🏼🎄
#MND
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6 years today since my official MND diagnosis.
The toughest opponent I’ve faced. Thankfully still winning the fight with the help of my family and many others.
Thinking of friends who I have met along the way who haven’t been as fortunate.
Here’s to the next 6 years and beyond
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Wow !!
Since 2020, my children, extended family, friends, community, former work colleagues, former football teammates, coaches and opponents have now raised a staggering £6️⃣8️⃣,0️⃣0️⃣0️⃣ for MND charities
@MNDoddie5
&
@MNDScotland
!!!
Thanks so much to everyone involved 💙💛🤍
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Just realised yesterday marked two years since my Motor Neurone Disease diagnosis.
More determined than ever to keep fighting this alongside others affected by
#MND
/
#ALS
#NeverGiveUp
#bepartofthecure
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Not long after I was diagnosed with
#MND
in 2018, I joined a clinical trial called MIROCALS
In Dec 2022 the initial trial data showed a significant slowing of progression in trial participants who received low dose Interleukin 2.
The MND community are now demanding further action
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Back at Neurology today over 3 years since my first appointment which led to my
#MND
diagnosis.
When I was first diagnosed the prognosis was not good to say the least.
But with a lot of support & a positive attitude, I’m grateful to be continuing to beat the odds.
#nevergivingup
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I’m an emotional wreck today watching all the updates from
#TheExtraMile
Well done & Thank You
#kevinsinfield
. You are a real life hero 💙🧡
£1 MILLION pounds raised so far.
Just incredible👏🏼🙏🏼
#MND
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Today started with a Neurologist appointment which is always a harsh reminder of what I’m facing with
#MND
.
But today finished by watching Kevin Sinfield - The Extra Mile. Which reminded me how proud I am to be part of such a special community 💙🧡
Kevin Sinfield: Going the Extra Mile
Thank you for watching. It’s a story of love, friendship and hope. ⬇️
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Yesterday my daughters Brownie group held a Danceathon in aid of the
@MNDoddie5
foundation, and have currently raised £1422, which is an amazing total for a group of kids to have achieved.
They put in so much effort on the day wearing their
@DoddieWeir5
headbands 😄💙💛
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😄This is my Danish uncle Finn. Has lived in Aberdeen for many years now and is a big
@AberdeenFC
fan 🇩🇰🏴👏🏼
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@MNDoddie5
@MattHancock
@DHSCgovuk
Once again Doddie Weir leading the way for us people with MND 🙏🏼👏🏼
For some reason we have not been included on the very vulnerable list for Coronavirus by the government.
#GetMNDonTheList
#MND
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🏉
@Rob7Burrow
received a special visit from his friend
@DoddieWeir5
.
It's the first time the two have seen each other since the
#BBCBreakfast
special on
#MND
in February ⤵️
More here:
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Watching
@BBCBreakfast
today & hearing Kevin Sinfield saying "There's an army of the MND community that'll be running with us" was inspirational ❤️
It’s not an army I wanted to join. But it’s an army that I’m massively proud to be part of 🙌🏼
@sallynugent
@mrdanwalker
@Rob7Burrow
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@chris_sutton73
I’m a former striker like you, but at semi pro level. I was diagnosed with Motor Neurone Disease 2 years ago.
Would you be willing to share the tweet below with your followers. It’s a petition for a possible treatment for
#MND
& other Neurodegenerative conditions
Twitter please help us reach 100k signatures by 19th Sept. My family and many others could possibly be helped by a potential treatment for Motor Neurone Disease
#MND
.
If 1 or 2 high profile Twitter Celebrities shared with their followers we will get there.
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Twitter please help us reach 100k signatures by 19th Sept. My family and many others could possibly be helped by a potential treatment for Motor Neurone Disease
#MND
.
If 1 or 2 high profile Twitter Celebrities shared with their followers we will get there.
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Wow. Very proud Dad today. My son Calum & his friends Alex, Josh, Chris & Shay have won £3000 for the My Name’5 Doddie foundation for their superb school presentation about
#MND
& the charity. Well done boys. So proud of you all 👏🏼👏🏼🙌🏼💙💛
@MNDoddie5
@DoddieWeir5
@JillADouglas
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From a fellow “
#MND
warrior”… Thank you
@Rob7Burrow
& Kevin Sinfield💙🧡
“This is for all the
#MND
warriors.”
Inspirational words from
@Rob7Burrow
.
This evening, he was awarded the Helen Rollason Award at the BBC Sports Personality of the Year awards. It was presented by his friend, Kevin Sinfield 💙
#BBCSPOTY
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Today is a special day for us as a family. It’s both Fathers Day &
#MNDawarenessday
To all affected by
#MND
/
#als
around the world. We are stronger together and will continue to fight for a cure.
@MNDScotland
@MNDoddie5
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Three heroes of mine with words which sum up my life focus 💙💛
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Some friends I have known a long time are braving torrential conditions by walking over a marathon raising money for
@MNDoddie5
, complete with
@DoddieWeir5
headbands.
Thank you Wendy, Jodie, Patti Nicky & Kelly 💙💛
#bepartofthecure
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Just watched
#MyYearwithMND
, which has hit me hard emotionally tonight. But will be ready to go again tomorrow alongside the rest of the
#MNDfamily
. Thank you to
@Rob7Burrow
’s family &
@sallynugent
for raising more awareness on behalf of all families affected by
#MND
💙💛
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So grateful to still be able to enjoy special occasions like this with my family. It’s not easy, but we are here and excited for Scotland vs Ukraine 🏴🇺🇦💙💛
#SCOUKR
#MotorNeuroneDisease
#MND
#ALS
#family
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Amazing tribute to a legend 🥹🫶🏼
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Thank you to all
@CoveRangersFC
for inviting me & my family to yesterday’s game vs East Fife. It was great to catch up with some former teammates & friends from the club. We were looked after brilliantly before, during and after the game.
Great performance from the team too 💙🤍
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My son’s team
@CulterYFC
2008’s are proud to now have the MY NAME’5 DODDIE foundation as shirt sponsors, following a kind gesture from an opposition coach of
@CoveYouthFC
who won our shirt sponsor competition 👏🏼👏🏼💙💛
@MNDoddie5
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10 year reunion since Cove Rangers Highland League win 🏆🔵⚪️
I struggle to manage most days or nights out these days. But this was one I couldn’t miss.
Great players and teammates 💙
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Enjoying the
#DoddieAid
curry night tonight. Even though we cheated with a Costco curry 😊
So grateful for the efforts from everyone supporting the
@MNDoddie5
foundation 🙌🏼
@DoddieGump
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John Henderson
@hendo180
once again showing his support to the
#MND
community by wearing his
@MNDoddie5
&
@MNDScotland
pin badges in this evenings
#WorldCupOfDarts
final 🏴 vs 🇦🇹
💙💛💙🤍
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Putting my
@MNDoddie5
winter hats and snoods in to storage for the summer months today.
So I take full responsibility if it snows again next week 😄
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Just went in for a coffee with Jenny. And an older gentleman, who is also a customer, has just cleared and cleaned a table to make sure we got a comfy seat.
It makes such a difference to your day when people are kind and help each other 😄
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Thank you
@andy_murray
An inspiration and example to all young Scots aiming to achieve their sporting dreams.
It’s been a joy to watch the greatest ever Scottish sportsman 🏴
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#MND
unfortunately stopped me taking part in my daughters school teams Parents vs Kids end of season game ⚽️
My 13 year old son took my place instead 💙
Nice evening to watch everyone enjoying themselves though ☀️👌🏼
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Today I went to watch my son’s football at a local community club. 6 disabled spaces in the car park taken & not one disabled badge displayed 😡
Meaning we had to park on an access road & walk over 200m with my walker on a pot holed road. Can’t believe how often this happens!!
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Finally got around to banking my voice with the
#IWillAlwaysBeMe
e-book today. It’s something that’s been on my mind for a while. So I’m glad it’s now done.
Thanks to
@MNDScotland
&
@SpeakUniqueVB
for providing this service.
#MND
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Nice night to get out and get the legs moving, wearing my new
@MNDoddie5
/
@DoddieWeir5
t-shirt from
@RagingBullSport
&
@HalbroSports
Raising awareness for
#MND
/
#ALS
#bepartofthecure
#ClubRagingBull
#TeamHalbro
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Great start to 2022. A walk along the beach to get our Doddie Aid started. Fresh air and feeling positive. Delighted to be involved with this challenge and part of the team spirit it creates 💙💛
#DoddieAID
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Thanks to everyone who played a part in organising the Friday night fundraiser for
@MNDoddie5
at The Paddock Bar, Portlethen.
And to
@AberdeenFC
legend Joe Harper for giving up his time to entertain everyone 🙌🏼🎤.
Brilliant night and lots of money raised 👏🏼
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#MND
families put on a brave face most of the time and try to keep positive. But unfortunately this is the reality for us a lot of the time. We need to keep pushing for treatments.
Get well soon James !
Not posting for sympathy but for awareness of
#mnd
. Took a fall on Sat night. Fractured jaw and broken finger. Behind the fundraising is the reality of this disease.
@MNDoddie5
@mndassoc
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It’s so encouraging to see
#MND
charities in the UK working together and supporting each other with funding and creating clinical trials. If we are going to beat this disease, it’s going to be down to teamwork from us all 💪🏼
@MNDoddie5
@MNDScotland
@EuansCentre
@mndassoc
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Thoughts are with Marius Žaliūkas family and friends tonight. Another young former footballers life lost to Motor Neurone Disease.
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Letter of Thank you for our £6551.70 donation to the My Name’5 Doddie Foundation following our Race Night Fundraiser at The Fourmile. Well done and thanks to all involved 👏🏼👏🏼💙💛🏇
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Beautiful day in sunny 🏴☀️
Lots of people out cycling and running. Just wish I could do the same 😔
Maybe one day when we
#EndMND
🤞🏼
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An update to my tweet before Christmas about 9 year old Owen Lean’s
@MNDoddie5
fundraiser from making and selling Christmas Reindeer’s. The total now raised stands at a very impressive £1,285 😲👏🏼
Well done Owen !! 🦌🦌
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Wow. We have just received an anonymous donation of £1000 to our fundraising for Doddie Aid. What an amazing gesture. Thank you so much to whoever made this donation. We are so grateful 🙌🏼💙💛
@DoddieGump
@MNDoddie5
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On the exercise bike to get the leg muscles moving. Getting ready to listen to the latest
#Dodcast
from
@MNDoddie5
&
@DoddieWeir5
🎧👌🏼🚴🏼♂️🔵🟡
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A big thanks to all
@CoveRangersFC
for a brilliant afternoon and for looking after my family so well yesterday. Great to see so many old friends again.
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Thanks very much to my former Cove Rangers teammate Kevin Webster and his partner Nikki for organising a fantastic golf day & auction in support of
@MNDScotland
. Great to see so many former football teammates & opponents at the event ⛳️☀️
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Good session for Calum yesterday with
@DdAdvanced
As I can no longer kick a ball about with my kids,
@DeanDonaldson10
has said he wants to help coaching Calum for me, which is brilliant gesture from a top coach 👌🏼
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All set for our Christmas Family Quiz with lots of family and friends raising funds for
@MNDoddie5
💙💛. All organised and hosted by the brilliant
@bellsrosee
👏🏼👏🏼🙌🏼🙌🏼🎄
#MND
#ALS
#BePartOfTheCure
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My MIROCALS / IL2 UPDATE‼️
Today I was told that despite the fact I took part in the MIROCALS clinical trial & ILTOO want to supply the potentially groundbreaking
#MND
drug. An NHS committee have decided that as the trial was in Glasgow & I live 150 miles away,
I CAN’T GET IT 😡
Not long after I was diagnosed with
#MND
in 2018, I joined a clinical trial called MIROCALS
In Dec 2022 the initial trial data showed a significant slowing of progression in trial participants who received low dose Interleukin 2.
The MND community are now demanding further action
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Today feels like another big day in the fight against
#MND
with
@DoddieWeir5
&
@AmmarAlChalabi
appearing on
@BBCBreakfast
to ask the UK government to increase research funding to £10m per year for 5 years. Charities can only do so much
@MattHancock
A group of charities have written to the Health Secretary calling for more investment into MND.
Former Scotland rugby union player, Doddie Weir tells
#BBCBreakfast
how motor neurone disease is impacting him.
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Since my diagnosis, I’ve tried to work out what caused my MND.
Maybe this latest research starts to explain….
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These restrictions around being able to watch our kids take part in outdoor sports surely needs to be reviewed. Due to my mobility issues I need help to get anywhere. So the one parent rule doesn’t work for people like me.
All this while people can meet up & drink inside pubs 😡
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Great start to The World Cup of Darts for Scotland’s
@hendo180
&
@TheThorn180
🏴👏🏼🎯
My wife’s cousin Hendo showing his support to all affected by
#MND
by wearing the
@MNDoddie5
&
@MNDScotland
pin badges 🙌🏼👏🏼
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Remembering Marius Žaliūkas, who was taken too soon at 36 years old by MND two years ago today.
What an amazing photo this is to remember him by...
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Thanks to
@RossCounty
legend Kenny Gilbert for his gift of
@MNDoddie5
red wine 🍷 Can’t wait to try it 😄
Had a great catch up this morning reminiscing about all the top players in North football ⚽️
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Thanks to
@ElginCityFC
for looking after us today. Good to see some old friends.
I was asked to pick the man of the match. Chose Connal Ewan which was even more justified after hearing he is only 17 😳.
Great to see mine & my late Dad’s personalised brick at BB ⚫️⚪️
@IslaBenzie
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Amazing news 💙💛
Full of different emotions today. But most of all pride at being part of an incredible
#MND
community, who will work together, support each other and will stop at nothing to beat
#MND
❤️
❗️ Huge News Alert ❗️ Doddie and everyone at the Foundation are over the moon that the Government have listened to our
#United2EndMND
campaign and will be giving £50 million for targeted MND research.
A massive thank you to everyone who supported the campaign 👊
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Government must honour their promise of £50 million investment in
#MND
research.
Families like mine don’t have time to wait.
Please give us some hope !!
@sajidjavid
@GillianKeegan
#United2EndMND
“People with MND are potentially being betrayed and do not have time to wait.”
Rob Burrow is urging the government to free up £50million of funding for Motor Neurone Disease. Researchers say red tape means they haven’t received a penny so far ⤵️
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Thanks to former
@HibernianFC
&
@pfcofficial
player Colin Grant for donating the profits from his book ‘Peterhead FC, 130 years & Counting’ to our
#MND
fundraising &
@alzscot
👏🏼 I was also gifted a copy of the book & a photo of me that features in it ⚽️
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Happy Birthday Doddie 🎁🎂🎉
Thank you for everything you do !
A lovely message from
@DoddieWeir5
on his 51st Birthday. Here's hoping he gets a new cake this year...
@JohnDeere
🎂🚜
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Great to see
@hendo180
supporting the
#MND
community again tonight, by wearing the
@MNDoddie5
&
@MNDScotland
pin badges during the World Darts Championship on
@SkySports
🎯🏴
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The kids were delighted to receive their ⚽️ shirts from
@GeorgeMelling5
today 👌🏼
We are proud to be supporting my fellow ex-footballer in his fight with
#MND
/
#ALS
. And it was great to exchange messages of support and positivity a few days ago 🙌🏼
#helpbigGfightMND
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Thanks
@CoveRangersFC
for the invite to today’s match. A 7-2 win & my old teammates Blair Yule ⚽️⚽️ and Connor Scully ⚽️ both scoring 👏🏼
Sophie, Calum & Millie met Love Island’s Ouzy. But I think it was Jenny who was most excited 😍🤣. I’ve obviously never watched an episode 👀
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MND affects 1 in 300 people, and isn’t as rare as people think. It also affects many younger people. That’s why it’s so important to raise awareness and search for a cure. Stay strong Jo and fight all the way 💙🏴
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Not long now until the run begins. All the best to all the runners. Amazing team effort and a huge amount raised so far for
@MNDoddie5
Thank you everyone 👏🏼👏🏼👏🏼
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Please could I ask all my friends to sign this petition. It’s hugely important for the future of MND research. UK MND charities are asking government for £50 million over 5 years to fund a dedicated MND research institute. Thank you 💙💛
Great that government is listening to our
#United2EndMND
campaign with
@MNDoddie5
@mndassoc
@MNDScotland
, patients & researchers asking
@DHSCgovuk
@beisgovuk
to increase targeted
#MND
#ALS
funding via an MND Research Institute. Please sign to show support:
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Diagnosed with MND in 2018, and sets off today on a 500 mile cycle to raise money for charity. Good luck
@DavyZyw
and your team 🚴🏼♂️💪🏼👍🏼
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#MND
is known as
#ALS
in the
#USA
🇺🇸
MAY is
#ALSAwarenessMonth
.
I am supporting
@ScottFightsALS
'
#FlexOnALS
challenge in the
#USA
🇺🇸 from
#Scotland
🏴
THANKS for the nomination,
@Jaynes__World
I nominate
@Keithyrobbo
@Munros4MND
&
@BruceAitchison
#EndMND
#EndALS
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All signed up for Doddie Aid 2024 💙💛
Not sure how many miles I’ll manage to get in this year. But being a part of the amazing MND community is very important to me and inspires me to do everything I can to make a difference
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Some very positive news released today regarding a potential treatment that has shown in trials to slow the progression of
#MND
/
#ALS
. Early days, but hopefully this is first of many discoveries to come from recent research 🤞🏼
#EndALS
#EndMND
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The latest hurdle for
#MND
patients in the UK !!
We already have enough challenges on a day to day basis without having to deal with a shortage of our only approved medication.
This needs to be sorted fast !!
#Riluzole
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So sad to hear this news last night. Any loss to Motor Neurone Disease hits me hard.
David joined Peterhead FC not long after I had left the club. So I never got to meet him. But have heard he was a great person & player. My thoughts go out to his family and friends ❤️
Some sad news to bring you...
Former Rangers midfielder David Hagen has died at age 47, after battling motor neurone disease.
👉
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Last day for Sophie at Westdyke Girls U12’s before joining Aberdeen FC Girls U13’s Academy.
Winners of the Sauchie Juniors U12 Girls Tournament Plate in glorious weather 🏆☀️
A great team led by top coaches 👏🏼
Sophie also winning the Player of the Tournament
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Thanks to my wife for supplying some first class Aberdonian medicine 👌🏼 3/3
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🥹❤️
That reception for Rob's dad, Geoff Burrow ❤️
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We’d not kept in touch since going to different high schools.
But on Saturday my old school mate Neil Taylor completed an Ultra Marathon in Perth, Australia to raise funds & awareness for
@MNDScotland
30 years on, and you can still rely on old friends to support you when req’d 💙
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Sheffield United is saddened to hear reports in the Caribbean about the passing of our former striker, Luton Shelton, aged just 35.
RIP, Luton. ❤️
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