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ManchesterCFResearch
@Manchester_cf
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From the Cystic Fibrosis research group at Manchester University. A forum to update public, patients, and other researchers on what we do and why we do it.
Joined November 2015
RT @cftrust: Our Director of Medical Affairs, Dr Keith Brownlee, shares his advice for those struggling to access creon as supply issues co…
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RT @aluk_research: Right now, most long-term lung conditions are detected when there is irreversible damage to the lungs. Being able to int…
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RT @cftrust: Have you entered our Summer raffle yet? 🌞 Enter by 12 Aug for just £1 and be in with a chance of winning a £2,000! Every tic…
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RT @PearceWardMFT: Today we got accredited! Still awaiting result and full feedback but they did mention that the patient feedback was the…
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RT @cftrust: You can shape the future of research into breathlessness, something that affects everyone living with a lung condition. Take…
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RT @cftrust: Catch up on series two of our #CForYourself podcast with Lucy Baxter. We're currently planning series 3, so send us your idea…
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RT @cftrust: We're delighted that our Clinical Trials Accelerator Platform was included as an example of a charity-funded research asset by…
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RT @NICEComms: We’ve published final guidance recommending #CysticFibrosis treatments, Kaftrio, Symkevi, and Orkambi, following a new comme…
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RT @cftrust: Our website has the latest information on Creon, you can check this out via the link in our bio. Please do get in touch with y…
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RT @cftrust: A message from our Chief Executive, David Ramsden, following the final guidance published today from NICE.
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RT @cftrust: By joining our Involvement Group, your voice can be heard by researchers, clinicians, pharmaceutical companies and important r…
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RT @cftrust: We congratulate @Keir_Starmer on his appointment as Prime Minister and look forward to working with @wesstreeting, the new Se…
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RT @cftrust: Spotted: the BT Tower in London getting involved with #WearYellowDay this year! 💛🎉
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RT @AlexRHorsley: @KimberleyJHolt @BBCBreakfast @ManchesterCRF @ManchesterBRC @MFTnhs Was great to be able to discuss CF on @BBCBreakfast t…
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RT @KimberleyJHolt: Fantastic to see our @AlexRHorsley on @BBCBreakfast this morning discussing the benefits of #kaftrio for #CF patients.…
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Cf session at @BTSrespiratory summer meeting. Good to hear about late diagnosis, transition to adult care, and new therapies. All v relevant to wider respiratory medicine!
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This week! Get your yellow outfits ready!
Join us for our annual awareness week, finishing with the biggest and brightest fundraising day of the year… #WearYellowDay on 21 June. ➡️
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