MS_Awareness ® ♿️ ♻️🎗️
@MSawarenessIndy
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70 year old male with advanced PPMS - *I’m not a doctor or an expert on any health topic! * Reposts are NOT endorsements. * Please read my pinned post. *
Joined January 2013
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Pinned Tweet
Important notice. PLEASE READ. 👇🏻
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I’m pretty sure I’m not the only one with
#MS
who doesn’t remember what waking up feeling “fully rested” feels like.
#MyLifeWithMS
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I just got my MRI results.
“Unremarkable” is good, right?
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Christina Applegate Honored with Walk of Fame Star at Emotional First Event Since MS Diagnosis.
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So true.
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I am now the proud owner of a wheelchair. 🧡☺️
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“I wish I’d paid attention”
I think a lot of us can relate.
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I just read a post that said “poor sleep quality may lead to MS”. I think it’s more accurate to say “poor sleep quality is an MS symptom”.
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This👇🏻👇🏻
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🧡Christina Applegate Receiving Her Star On The Hollywood Walk Of Fame
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@HornedPoet
@mhdksafa
Two of my friends who were “no maskers” have now died from COVID and none of my friends that wear masks have gotten it, so yes, I support it.
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Have you ever heard someone say something like:
“Yeah, my sister’s boyfriend’s uncle’s neighbor has a friend with MS and you’d never know it. He doesn’t take any meds and lives a normal life, you can too”
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If there’s one statement I’d like to make to the world, it’s that MS is a very personal disease. Every case is different. THERE IS NO CURE.
And no one diet, one medicine, or one treatment works for everyone, but they can help lessen symptoms, slow down or even halt progression.
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So important! ⬇️ There seems to be a big misunderstanding. Just because some of us are still able to walk, it doesn’t mean that it’s our fault if we can’t. And mainstream media isn’t helping. 😔
#MyLifeWithMS
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Anyone else find themselves replacing a word you’re struggling to remember with something close but not quite the same?
Just when I thought I was getting good at it, the facial expressions of whoever I’m speaking are beginning to worry me.
#LifeWithMS
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I’m pleased to say, now that I’ve been back on my regular healthy diet plan for several days, my brain fog has cleared and I was able to walk 5 feet again yesterday. 😊💪🏻🎗
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What’s the one thing you wish everyone would understand about MS?
For me, it would be that this illness is so different from person to person that they, and even others with MS, can’t possibly understand what we’re up against.
#MyLifeWithMS
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I’ve heard it said that “Either you run the day, or the day runs you” But having
#MS
has taught me that whatever plans I have for today are never 100% certain.
It’s difficult to accept that “doing my best” has become part of my “new normal” I’m still working on it.
#NewReality
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We are all different. It’s as if everyone who has MS has a different illness with our own unique set of symptoms and rate of progression.
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I just experienced my first MS hug.
Scared me because it, at first, felt similar to the chest pains I had with my heart attack a year ago. This article helped me understand the difference. Whew!
.
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If you have friends or family with chronic illness, please don’t make them feel uncomfortable because they can’t do what you do or can’t tolerate the same weather/light/noise levels as you. They’d love nothing more than to be the same as you. But they can’t and that hurts.
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My life with
#MS
has changed me for the better. I’m even more grateful for what I have, and have less desire to accumulate more “stuff”. Almost a minimalist now.
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Just received primary results from my MRIs.
Still no lesions shown in brain, & no active demyelination in my spine.
Looks like Ocrevus is doing its job!
The highlight is that brain atrophy is likely due to my age, but surprisingly minimal for a “patient of my age” (70)🤗
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I’ve read that the simplest tasks can be up to 5 times more difficult if you have MS. I don’t know how someone arrived at that number.
Some days I feel like taking a shower is somewhere between 20 times and impossible, and that’s with someone here to help me.
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I just walked 5 feet without holding on to anything. I’ll take that as an omen; It’s gonna be a good day!! 🧡😜🎗
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I’m happy to report I’m at 2 today 🧡 — I hope many of you are having a no pain day
#Namaste
🙏🏻
#MSawareness
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Knowing full well I’ll never walk again, doesn’t it seem a bit odd that I just spent over an hour researching Cowboy Boots online?
#MyMSlife
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