Prof. Karen Woolley Profile
Prof. Karen Woolley

@KWProScribe

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Dedicated to involving patients as partners in healthcare. Views are my own.

Australia
Joined March 2011
Don't wanna be here? Send us removal request.
@KWProScribe
Prof. Karen Woolley
14 hours
RT @TO_dpr: I get that some people want to only/prefer to share the positive stories about #PatientEngagement - I think that’s a mistake. T…
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@KWProScribe
Prof. Karen Woolley
14 hours
RT @TrishnaBharadia: @TO_dpr Unless we share the not-so-good experiences things won't move forward, evolve and improve... Totally agree wit…
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@KWProScribe
Prof. Karen Woolley
14 hours
RT @TO_dpr: A couple of resources to help you out: ➡️ on the budget side (scroll down to #PatientEngagement, Budgeting Tool) - https://t.c…
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@KWProScribe
Prof. Karen Woolley
14 hours
RT @TO_dpr: Also, please think about and practice #PatientEngagement like any other research method that's part of your work: learn about i…
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@KWProScribe
Prof. Karen Woolley
14 hours
RT @TO_dpr: To all the research teams engaging #PatientPartners: pls budget for #PatientEngagement. There's already a power imbalance when…
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@KWProScribe
Prof. Karen Woolley
8 days
A patient-authored publication a day keeps tokenism (& paternalism) away. It's so hard to change medical publications until we do. Kudos #PatientAuthor pioneers & allies! @ISMPP @TheBMJ @WeAreTandF @JIMR_JoPM @EnvisionPatient @SimonRStones @TrishnaBharadia @TO_dpr @TheLizArmy
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@KWProScribe
Prof. Karen Woolley
10 days
Man-made paywalls block artificial intelligence (& humans too!) "AI can only access what it can find and read in a few minutes... paywalled articles remain out of reach - this represents a fundamental shift in how AI can engage with academic literature."
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@KWProScribe
Prof. Karen Woolley
17 days
Mush mush #MeSH? Time to introduce MeSH Term for 'Patient and Public Involvement' #PPI? Diverting to 'Patient Participation' (MeSH term est 1978) takes patients back to passive vs active role in research. Would help w keywords/finding #PPI publications too @NLM_NIH @ISMPP #PPI
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@KWProScribe
Prof. Karen Woolley
20 days
RT @PxPHub: How can we increase awareness on the importance of meaningfully engaging patient partners in research? Trudy Flynn & Tianna Ma…
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@KWProScribe
Prof. Karen Woolley
22 days
RT @PatientView: CALL TO PATIENT GROUPS PatientView’s Corporate Reputation of Pharma 2024/5 survey is open. This unique survey offers vit…
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@KWProScribe
Prof. Karen Woolley
22 days
Well done @TO_dpr on this letter. It’s the opposite of a ‘Dear John’ letter…the partnership between patients and researchers must continue and strengthen!
@TO_dpr
Dr. Dawn Richards, PhD
22 days
📢I wrote a letter to folks who aren't convinced about #PatientEngagement in research to challenge some of their thoughts. I hope it gets people thinking - 🙏 @bmj_latest for publishing. #PPI #ConsumerInvolvement
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@KWProScribe
Prof. Karen Woolley
28 days
THIS...in such an international & influential doc! "Sponsors should consider inputs from a wide variety of interested parties, for example, healthcare professionals and PATIENTS, to support the DEVELOPMENT PLAN and clinical trial PROTOCOLS..." ..
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@KWProScribe
Prof. Karen Woolley
1 month
What's a new year without new ICMJE recommendations? Not too many changes, but always worth another read.
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@KWProScribe
Prof. Karen Woolley
1 month
RT @peerrevcongress: 4 Weeks Until Abstract Submission Deadline! Abstracts are due January 31 To submit your work and learn more, visit htt…
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@KWProScribe
Prof. Karen Woolley
2 months
Without using AI detection software, see if you can detect AI- vs human-generated plain language summaries. #PLS
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@KWProScribe
Prof. Karen Woolley
2 months
Beyond excited, beyond grateful...THANK YOU @RockefellerFdn for selecting me as a Bellagio Center Resident 2025. Honoured & humbled (!) to follow Ruth Bader Ginsburg, Maya Angelou, Mary Robinson et al! #RFBellagioResident
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@KWProScribe
Prof. Karen Woolley
2 months
RT @mikemorrison: Newspapers were designed like walls of text (like scientific articles and posters), but then evolved a central hero area…
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@KWProScribe
Prof. Karen Woolley
3 months
RT @bmj_latest: From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month on…
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@KWProScribe
Prof. Karen Woolley
3 months
"Can you hear me now?" Another record-breaking year for hearing the patient voice in the peer-reviewed literature...well done to ALL in the publication ecosystem for making this happen. Carry on!
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@KWProScribe
Prof. Karen Woolley
3 months
RT @AldaCenter: While trust in scientists is up, and most Americans see scientists as intelligent, far fewer say they are good communicator…
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