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Marisa Troy Profile
Marisa Troy

@JournalingIBD

Followers
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Following
13K
Statuses
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Living w #IBD & an #ostomy. #Migraines. #ChronicPain. #PTSD. #Patient #Advocate. @ibd_hu Showing others they aren't alone in their struggles! 🤗

New Jersey
Joined October 2012
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@JournalingIBD
Marisa Troy
3 months
RT @MondayNightIBD: 🙏🏽Patients, advocates & caregivers for sharing their journey w us! 📡 Scanning #PatientExperience on disease monitoring…
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@JournalingIBD
Marisa Troy
1 year
Monday I go in for my first #cataract surgery. Some thoughts about surrendering control & how tough that can be when you've been burned so much. #chronicillness #patient #doctor
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@JournalingIBD
Marisa Troy
1 year
RT @ownyourcrohns: Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement! PT 👉🏽 critical…
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@JournalingIBD
Marisa Troy
1 year
@Crohnoid @DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ Not at all! I was 14& in a terrible place. Having another year of being a teenager without beginning the surgical rollercoaster was really great for me. It also allowed me to feel confident I exhausted all medicinal options before cutting. Great question tho!
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@JournalingIBD
Marisa Troy
1 year
@DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @Crohnoid @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ They allowed me to get out of the hospital, go to school and postpone surgery for a yr. However, had huge physical side effects incl massive weight gain, acne and now have osteopenia and cataracts. Best and worst drug imo.
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@JournalingIBD
Marisa Troy
1 year
@GutlessGlamour LOVED seeing you Gaylyn!!! Been too long. 🤗
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@JournalingIBD
Marisa Troy
1 year
It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.  I'll be sharing more 📸 &insights soon. #crohns #UC
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@JournalingIBD
Marisa Troy
1 year
If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members. #inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup
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@JournalingIBD
Marisa Troy
1 year
@Runsforcoffee1 I always wondered what they prefer. Taking or silence. I imagine some feel they "should" talk in order to give better customer service.
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@JournalingIBD
Marisa Troy
2 years
I never share things like this but this org is in desperate need of help. #adoptdontshop #rescue
@Labs4rescue
Labs4rescue
2 years
Please help us rescue and re-home 50 dogs from a breeder going out of business by donating and sharing.
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@JournalingIBD
Marisa Troy
2 years
So proud of @ownyourcrohns !!! 💜💜💜💜
@LoriPlung
Lori Plung
2 years
Please help me congratulate the kind, caring, smart, compassionate, and all around wonderful Tina of @ownyourcrohns. Yesterday, Tina graduated with her MPH from @IcahnMountSinai and gave the commencement address!! Tina, you are incredible! CONGRATULATIONS, my friend! 🥂
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@JournalingIBD
Marisa Troy
2 years
RT @nataliesparacio: This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance…
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@JournalingIBD
Marisa Troy
2 years
@LoriPlung @PittGILiverNutr @CrohnsColitisFn @CCfdnWPAWV Way to go! What kind of #ORS do you drink if you don't mind me asking?
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@JournalingIBD
Marisa Troy
2 years
RT @Sahara88uk: Webinar 👩‍💻 Supporting young people with a #stoma: current challenges & future directions: June 7th…
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@JournalingIBD
Marisa Troy
2 years
RT @Sahara88uk: I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether…
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