Jenna Miller, MD
@JennaMillerKC
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Peds Intensivist & Assoc. Prof @ Children’s Mercy Hospital | Author “Navigating your Fertility”| ECMO Director | Mom | Posts are my own. #pedsicu #ecmo
Kansas City, MO
Joined September 2019
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Pinned Tweet
This month is Infertility Awareness Week💉
I reflect on my gratitude to all those who helped me find my path to motherhood 👶
If you find yourself or someone you know on this journey, read about my story and how to prepare in my 📕
@crholton
@DrRissman
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7 years hoping & waiting
3 IUIs
4 egg retrievals/IVF rounds💉
1 hysterectomy
2 transfers
And he’s finally here💙🩵
Baby V arrived & is doing well
My humble thank you will always be w/ my gestational carrier for her selfless gift that I can never repay
#pedsiscu
@Caden_Lane_Baby
795
236
10K
Shared with permission. Another one of our patients... having a Saturday shooting hoops on
#ecmo
, enjoying a lollipop. Thank you for sharing your story of survival after Trimethroprim-Sulfamethoxazole exposure and Respiratory Failure.
#medtwitter
#pedsicu
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3K
In honor of
#infertilityawarenessweek
, I’m finally sharing📣
After 7 years of fertility therapy & adoption pursuit
I’m pregnant via a gestational carrier (surrogate)💙
We’ve been having the best time growing this little boy
And my village has been incredible🥰
#PedsICU
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We helped his mental health with a visit from his 🐶 which is a new
#childlife
intervention we are doing in the
#pedsicu
❤️
@jswallisch
@emacksc
@DrRissman
@LifeandPICU
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#blackouttuesday
calls us to stay off social media tomorrow and invest time in our communities and our friends by seeking to understand our roles in this. While you’re at it... unfollow those who don’t elevate integrity, compassion and empathy
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He used virtual reality (VR) and games to help his mental acuity while stuck in his hospital room for so long.
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He went for trips around the
#pedsicu
for a scenery change and to sit in the cardiac chair. His team and parents were so happy to accompany him on every trip!
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Part of his physical therapy and treatment plan for Covid was to prone on ecmo. He was our first
@ChildrensMercy
patient to do this on
#ecmo
. We developed hand signals so he could control the process every time.
#rehablegend
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I recently purchased a new home near my parents to prepare for the arrival of 👶💙
Heard this week
Security Provider: You can talk to your husband about the plans
🤯
Me: I don’t have one of those but you can talk to me
I did a lot to get here on my own
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The outpouring of well wishes is overwhelming 😍
Vaughn & I and Courtney are 🏡 and getting settled
Our teamwork to bring Baby V here is a journey that binds us for life and I couldn’t be more grateful 🩵
He is the best 🎁 after so long dreaming of him
#pedsicu
#infertility
7 years hoping & waiting
3 IUIs
4 egg retrievals/IVF rounds💉
1 hysterectomy
2 transfers
And he’s finally here💙🩵
Baby V arrived & is doing well
My humble thank you will always be w/ my gestational carrier for her selfless gift that I can never repay
#pedsiscu
@Caden_Lane_Baby
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10K
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@DGlaucomflecken
We will only cover your risk of death if it seems like you actually have no risk. Thanks. Love, every insurance company
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In July I came to work and cried in overwhelming grief. Today I came to work and cried for entirely different reasons. I’m in awe to live during a time when
#science
can save us from ourselves. Thank you.
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It happened
I pushed submit on my book
“Navigating Your Fertility as a Woman in Medicine”
I’m sure there was some word or sentence I could have changed again
But had to let it go and send it out into the world!
I’m so excited❤️ Thank you to many for your encouragement
#PedsICU
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Never did I think my tweet would get picked up by ESPN. But this guy deserves it for all his hard work. Thank you to his whole physical therapy team in Salt Lake City and especially
@bryanlohsePT
. See pinned tweet for info on his suspected disease process.
A true inspiration 👏
Carson Dodd is still hooping while receiving the highest form of life support after his lungs failed. (via
@JennaMillerKC
,
@CarsonDodd
)
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Today, I’m brave & sharing that I’m gearing up for my 7th round of fertility treatment
And reflecting on how much I’ve learned
I would like to transparently share this journey as I go w/
#pedsicu
&
#medtwitter
!
@DrRissman
@AMWADoctors
@VSLanziotti
@arghavan_salles
@AmwaIgnite
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A rehab collage from our first included adult patient who survived an
#ecmo
run after TMP-SMX. Thanks
@uihealthcare
for helping her bike and use resistance bands in a chair as well as walk and go outside!
@PICU_Up
#rehablegend
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We honor our 1000th
#ecmo
patient
@ChildrensMercy
by remembering the past
#961
was this guy. He showed us how to “rock” ecmo
#rehablegend
status w/ rock art therapy & listening to rock music
He recovered from profound sepsis/ARDS after 60 days
#pedsicu
@areinamo21
@Nate_LaVoy
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The first patient to contact us after our CNN article with her story of respiratory failure after Trimethroprim-Sulfamethoxazole exposure. She is also an
#ecmo
warrior walking on pump in 2012, now on room air in 2019. Posted with permission.
#medtwitter
#PedsICU
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Thank you
#Seattle
for a quick
#ICU
guide. All providers can use this for
#COVID19
.
#PedsICU
@tglenskiMD
@ChrisCarrollMD
@kamat_pradip
@slthomps12
@DrSandman11
@nick_aclark
@sccm
@KUHospital
@brando2753
@kakape
@ashleyedaniel
@KD810
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I have been in
#pedsicu
for 10 years. I have run medical control for our transport team that whole time. I have never seen the situation we have now. And I have never had to make the choices I am making now
@DeannaMarie208
@mommimaya
@KU_CCM
@yoncabulutmd
@pccm_doc
@crholton
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In March of 2018,
#bravelikezei
was featured in
@cnnhealth
for
#rehab
and walking on
#ecmo
. We slowly have understood her
#ARDS
was due to trimethoprim-sulfamethoxazole and her story led us to 14 others who suffered from this. Their stories and evidence to follow in coming days.
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Recovering this weekend from
#pedsicu
I remember that I
1️⃣cried more this week than in 11 yrs of practice
2️⃣had migraines from dehydration
3️⃣had Charley Horses from dehydration
4️⃣got cystic maskne
5️⃣couldn’t sleep worrying about the severity of illness
Allowing some grace now
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@AnyaParr
@DrSandman11
Anything that aerosolizes the virus is high risk, bagging is in that category. This also includes non invasive, trilogy ventilators, suctioning, taking viral samples and all aerosolized meds
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I may never ❤️ a pic more
Its almost exactly 7️⃣yrs from my initial fertility visit to his birth
I offer this hope to all mammas (& pappas) who would be & haven’t welcomed a little one yet
It may not look how you imagined
It’s ok to grieve that
And find your own way🙏
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Our 5 cases of Severe Acute Respiratory Failure in Healthy Adolescents Exposed to Trimethoprim-Sulfamethoxazole was published in Pediatrics. Link below. 4/5 had prolonged ecmo runs.
@AmerAcadPeds
#ecmo
#pedsicu
#medtwitter
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#fertilityawarenessweek
My upcoming 📕 cover
Navigating your Fertility as a Woman in Medicine
We can change culture & support families early on in medicine
We don’t have to have higher infertility & pregnancy complication rates💡
DM/comment if you want a link later🔗
#PedsICU
In honor of
#infertilityawarenessweek
, I’m finally sharing📣
After 7 years of fertility therapy & adoption pursuit
I’m pregnant via a gestational carrier (surrogate)💙
We’ve been having the best time growing this little boy
And my village has been incredible🥰
#PedsICU
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3 am ⏰musings from a new single
Mom
It’s not possible to have too many swaddle blankets or burp clothes
It’s not always apparent if it’s ☕️ or 💩 on your 👟
Keep a list of those who said “lmk if you need anything”
Enjoy the cuddles🩵 & invest in caffeine at your 🏡!
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@APerezAlonso
@icurehab
Here she is walking off ecmo. Posted with permission. Asking to run.
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As I prepare for formatting of my new book on experiencing Infertility as a Woman in Medicine….
I was looking at other women of
#medtwitter
who have published and supporting their efforts 📕👏
A couple from today
@twiceashardbook
@meilan_han
@JasmineB_Author
#pedsicu
@ETSshow
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14 years ago I decided I was brave enough to be a
#pedsicu
doc while visiting Machu Pichu
I’ve been battling imposter syndrome as of late but yesterday I decided I’m brave enough to keep evolving in areas I think I can contribute
@SashaShillcutt
says, we are brave enough
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I've been waiting to share our new VA for
#TMPSMXARDS
. Thank you
@ATSBlueEditor
for sharing our work on this new entity
Key findings:
#ARDS
after 7+ days of drug exposure, early air leak, 12/14 needed
#ecmo
,
#DAIDE
is a novel pathology finding with destroyed alveolar epithelium
Trimethoprim–Sulfamethoxazole–associated Fulminant Respiratory Failure in Children and Young Adults
🔗
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ICYMI: I wrote a book!
I’m here to share my personal story
My journey to motherhood as an ICU doctor is unique, but the lessons I’ve learned can help anyone in medicine on their path to parenthood
If you, or someone you know, is navigating infertility, stay tuned!
#infertility
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My gestational carrier & I have been intentional to share weekly time together⏰
Not everyone has this opportunity & I’m grateful for it🙏
We had the best time over the weekend🍼
Everyone who wishes to be a parent has a different journey
This is mine
#pedsicu
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3 am musings from a new Momma
I’m 💯 certain I log his diet better than I ever did my own
So 🍼 cheers Baby V!
Also in the words of
@Adele
“My little ❤️ … I love you like a million times”
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I couldn’t b more
#medtwitter
today
Out looking for actual copies of
@nyt
to have our article to commemorate what is likely my professional peak 😂
#tmpsmxards
in the Diagnosis column today
In my
@onepeloton
shirt, thanks to Barnes/Noble for having copies!
@BNBuzz
#pedsicu
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The leaders of the children’s hospitals across this entire country plead with us to help protect our children. Remember there’s only 5400
#pedsicu
beds in the country. For ALL the illnesses.
@DeannaMarie208
@emacksc
@KatherineHoops
@SapnaKmd
@mommimaya
@yoncabulutmd
@MaueMd
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Our
#pedsicu
division has been through a lot
We’ve seen good friends leave & welcomed new friends
Growth to 67 beds has been busy
But the core values in our group haven’t changed
We care about each other
We provide a high standard of care
And we teach 👏🥇Congrats my friends
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9
69
We are 33 wks
He’s a big boy & we’re monitoring weekly
Keeping track of 🩸 pressures & 🩸 sugars
It’s a lot of work for this wonderful soul carrying my baby boy💙
Today we celebrated🎉
I’ve asked several excellent men I know to help be role models for him
They r excited too
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In 2019, I took a 6 wk medical LOA. It was the longest # of consecutive nights slept in my bed since 2007. It’s bewildering to consider and reflect on how working nights affects us long term. So I’m grateful to have a booked a solo wellness week!!
#pedsicu
🧘♀️ 🛌
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1
67
It’s my honor for the
@ChildrensMercy
#ecmo
team to win the clinical team of the year award at the Dept of Pediatrics Award ceremony🥇
This team isn’t possible without the incredible leadership by
@kld_rn
&
@dnewt_MSN
We’re a platinum center & completed our 1000th run this yr!
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7
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I want to Normalize the
#Fertility
Talk 4
#WIM
. 4 Tips to Learn More
Thanks
@iWIN_2020
4 sharing this w/
#pedsicu
&
#medtwitter
@AMWADoctors
@arghavan_salles
@AMarshallMD
@VSLanziotti
@DeannaMarie208
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15
70
Our
#pedsicu
docs run all pediatric transports coming into
@ChildrensMercy
. Along with our
#nicu
colleagues, we run over 5000 transports s year. Keeps us busy ✈️ 🚑 🚁
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9
66
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3
70
Health care workers have long toiled in systems that are suboptimal. But we continue on because our patients’ survival means more to us than our own comfort. 👇🏻recognizes that dedication in this year of
#covid19
. To all
#pedsicu
and
#medtwitter
, you are appreciated and heroic.
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11
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After 457 days, she went home. I had never seen her smile as she did on this day. Going home was all she had wanted for so long. By this time, we had submitted our 5 cases like hers for publication. All 5 had long ICU stays and 4/5 had ecmo runs.
@KCStar
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63
@BoyGeekDrone
Every rehab activity while on ecmo carries risk. The benefitwith a properly trained team seems to outweigh the risk with the patient becoming mobile and gaining strength even before decannulation. This is essential to patients who end up needing to be listed for lung transplant.
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“Stop wearing your exhaustion as a badge of honor”
@BreneBrown
words are no more poignant than for us in the
#pedsicu
. We can’t control being up all night/day resuscitating
Recognize the need for rest after this
And do nothing. Don’t feel bad
@DrRissman
@crholton
@Nate_LaVoy
1
11
65
Our two categorical
#pedsicu
fellows! Last day together at work so capturing the moment 😭 They grow up so fast… go out into the world and make us proud 🥹
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1
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As Women in Medicine month kicks off
I share my 📘committed to helping
#WIM
navigate family building in our profession
I share my personal story, what to expect in IUI, IVF, egg freezing, gestational carrier need & adoption
There are also To Do ✅
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18
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A reading list 📚 for the
#covid19
winter for
#WomenInMedicine
@valstonemd
shares ways to prepare for your next leadership role
1️⃣ Sell yourself! To those in and out of your institution
2️⃣ Network
3️⃣ Plan 3 alternative (dream) lives
#sheleadshealthcare
#HerTimeIsNow
#PedsICU
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21
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In an attempt to have a normal thought... here is Drug Of The Month from
@ChildrensMercy
#PedsICU
! Each month we hang a different drug for nurses, residents, fellows and students to learn from 📚🤓
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7
65
Starting
#pedsicu
fellowship in 2020 during a pandemic🔥
Starting fellowship in 2021, still in a pandemic🥵
Thankful to my fellows for their flexibility in ever changing staffing models, patient workflow & PPE practices
So when grateful…get personalized mugs to celebrate them
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2
61
Today we are 30 wks! 🤰
A joyous milestone to reach
Preparations are underway
But I stop to think about how many things in life that are so fulfilling, were at some points hard
And I remind myself it can be both hard and awesome at the same time 💙
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@RogerMarshallMD
Unacceptable. You were not elected to decide when the constitution applies. As your constituent, I am not in support.
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1
49
Our
@ChildrensMercy
#ecmo
team accepting our re-designation as a platinum center of excellence.
I could not be more proud of this work and impact it has for our patients.
I’m there in spirit!
@JFrasMD
@RebeccaRenteaMD
@stead_christine
@ELSOOrg
#ELSO2023
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6
60
Proud colleague here. Congrats
@PfeifferSteve12
for winning faculty teacher of the year
@ChildrensMercy
! Well deserved during a difficult year 👏🏼
11
3
60
After the
@cnnhealth
story on
#Ecmo
rehab,
@mickalamae
contacted me with her story of walking on prolonged ecmo. She asked if
#bravelikezei
had been on trimethroprim sulfamethoxazole too. And so we found our 2nd patient with
#ARDS
associated with TMP-SMX.
@ECMO_physio
@ICUsteps
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12
56
Anatomy scan @ 20 wks of pregnancy
Ours was today
Everything was ok💙
Huge 😮💨
I was not addressed or spoken to all though during the scan & I had a lot feelings I wasn’t expecting
In the upcoming book, expect a chapter on surrogacy/gestational carriers
DM me for info
#PedsICU
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We did a maternity shoot🤰
Just b/c I'm not carrying him didn't mean I didn't want to have this experience📷
Everyone is different but we enjoyed this time thoroughly🩵
How did we navigate getting to this point?
Check out the process as one possibility in
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Mother’s Day can be a silent suffer for many
I’m here to say that if being a mother is your wish, don’t lose hope🤞
It may not look how you thought & that’s ok! It’s your journey
Can’t be more thrilled to be sharing my journey with my gestational carrier (surrogate)!
#PedsICU
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Thanks
@MichaelDalynyc
&
@thedailybeast
for sharing
@ChildrensMercy
story of one of the most amazing
#ecmo
survivors
We’re so proud to share this 13 years old’s story of pure grit & survival over 73 days on ecmo
#pedsicu
3
15
57
The residents
@ChildrensMercy
give a shout out to the education provided by the
#pedsicu
on
@instagram
. It’s our pleasure to share flow loops and drug of the month with you... amongst all the other goodies. 🧠 💪🏻
#ards
#sepsis
#tbi
#hlhs
3
8
58
The night crew
@ChildrensMercy
is ready to GO! Happy super bowl Sunday from
#kansascity
🏈
#pedsicu
@Chiefs
@ashleyedaniel
@LaMillersmith
@AmberCountryKC
2
5
56
2022
So much happened
So much grieving
Part of that process for me is naming what happened
This type of post if v common in infertility social media
This is mine
On to 2023
W/ a shred of hope
& a whole lot of courage as I hope to share the last 6yrs of this journey
#pedsicu
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0
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#bravelikezei
’s mom
@BrieRN_BeKind
found our 6th patient on
#SoMe
,
@KeenStephanie
. She too is a walking
#ecmo
legend. See her remarkable story of recovery from trimethoprim sulfamethoxazole
#ARDS
at
@gkeen02
@mickalamae
@CarsonDodd
3
14
51
Practicing our
#ECMO
skills today in simulation
Readiness for everyday maintenance events and emergencies keeps us prepared 24/7
@ChildrensMercy
#pedsicu
Special Happy Birthday to
@dnewt_MSN
🎂
4
4
55
Our article about
#ARDS
associated with Trimethoprim-Sulfamethoxazole was one of the top 🔟 articles for Childrens Hospital Association
@hospitals4kids
in 2020!
#PedsICU
6
5
57
Bedside teaching is essential in the
#pedsicu
One of our second year fellows,
@ashleyedaniel
drops knowledge on cardiac physiology with
@dr_ATab
Education like this leads our division to
🏆 win division resident teaching awards
🏅 faculty nominated for teacher of the year
1
8
55
I have often thought to post something similar. My medical history separate from my humanity might not catch mainstream empathy. Here’s my face of someone with preexisting conditions.
#PedsICU
Hi, I’m Sarah. I’m 35 and a doctor. I also have a heart condition that puts me at an increased risk for serious complications from covid.
#IHaveAPreexistingCondition
- Does the face of
#chronicIllness
look different than you thought?
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I voted for
@BarbaraBollier
bc I want the first female physician in the senate to come from Kansas! It’s past time. Physicians can help understand the monumental hurdles that are healthcare and
#covid19
.
@crholton
#PedsICU
#HerTimeIsNow
Let’s put a physician in the U.S. Senate who actually believes in affordable healthcare.
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Thanks
@ChildrensMercy
for helping shoot a professional version of my talk for
@atscommunity
next month
I’m grateful for any opportunity to share on Trimethoprim Sulfamethoxazole ARDS with
#pedsicu
& beyond! We make the case w/
1️⃣Clinical history✍️
2️⃣Pathology🔬
3️⃣Genomics🧬
8
5
56
Preparing for a podcast with
@zhodges1
&
@AliceShanklin
. You guessed it … we will be talking
#ecmo
. My
@ChildrensMercy
partner
@JohnDanielMD
will be joining to talk
#nicu
& I’ll be doing
#pedsicu
. Thanks
@CritPeds
for the invite! 👀 forward!
@JFrasMD
@pabloaguayo72
@CDekonenko
4
6
53
As this academic year starts, I reflect on 9 years in
#pedsicu
fellow leadership
I’m transitioning out of the PD role & will take the permanent
#ecmo
director role
But the opportunity to help guide future Intensivists was the honor of a career
Not pictured
@AlizaOlive
& others
4
2
54
Congrats to my friends and colleagues for winning 4 million in NIH funding to assist underserved pediatric populations affected by
#covid19
! Job well done and the community is better off with you serving it!
#pedsicu
#WomenInMedicine
#hertimeisnow
3
6
52
Now congrats 🍾 to
@areinamo21
for winning fellow teacher of the year for a SECOND year in a row
@ChildrensMercy
. No surprise to anyone who knows him. Our
#pedsicu
fellowship was lucky to have him.
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4
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Last clinical day with
@GinaMPatel
for this
#pedsicu
PD! She’s off to 🫀fellowship
@AIDHC
! Good luck and don’t forget us
@ChildrensMercy
! Now how to get
@crholton
to take a pic with me!?
3
1
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VPS (Virtual Pediatric Systems) has a new
#covid19
dashboard to track our
#pedsicu
cases. It tracks severity, therapies,
#ecmo
& outcomes. Also reports +
#picu
staff.
@SapnaKmd
@ChrisCarrollMD
@SCCM
@KD810
@DrSatid
@PfeifferSteve12
@acstoner2
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And to cap the day, we graduated two
#pedsicu
fellows from our
@ChildrensMercy
fellowship for the first time. Congratulations 🎊
@areinamo21
and
@AlizaOlive
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1
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4 days and counting …
Almost time to meet my little man
Since he hasn’t arrived yet, I joined my community in support of those with infertility!
My family joined me on a lovely walk this am and sponsored a sign for me 😍
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Number two in the books. Deep sigh thinking about hopefully having full immunity soon. It’s not enough though... we need more vaccination locations and supply!
@Chiefs
@SportingKCII
@Royals
I volunteer to give injections! Let’s use your sites for good! 💉 I’m ready.
#pedsicu
2
2
50
I’m not crying, you’re crying. Another
#pedsicu
fellow wins fellow teacher of the year! Congrats
@Nate_LaVoy
for winning this well deserved award🥇Proud PD here😀
@CMKCFellows
@ChildrensMercy
@PfeifferSteve12
@ashleyedaniel
@GinaMPatel
@crholton
1
2
46
In the
#pedsicu
, life pre covid could be rough. The days post
#covid19
can push you to your limit. But these wins can make you pause and be grateful for the ability to help
@ChildrensMercy
.
@McPhersonNews
2
5
50
Implementation and Maintenance of Peds Severe
#Burn
Guidelines. After tracking our data for 5 yrs, we share our process for standardizing our
#pedsicu
burn care!
@TCB0109
@areinamo21
@crholton
@sarahdbrunner
@PfeifferSteve12
@KD810
@ResearchCM
@PQS_LWW
9
15
48
We have done additional 3D ultrasounds this pregnancy so I can see my little man & bond with him even though I’m not carrying him
I don’t get to be with him everyday but I get to spend this time
My family has been able to come too & get a sneak peak 💙
5
0
51
🚨 Nerd Alert 🚨 Excited to start my read on this beauty. 🤞🏻 for a little down time on call in the
#pedsicu
. Famous last words.
@ECMOdaily
@JFrasMD
@GinaMPatel
@crholton
@ELSOOrg
3
3
48
#COVID19
at the White House - Contact Tracking. Thanks
@meganranney
&
@bhrenton
for pointing us to the tracking that could have been happening for every covid case, if we didn’t have 7 million cases.
#PedsICU
2
12
44
Now to brag on my colleague
@PfeifferSteve12
for his win at the Dept of Peds Awards!!
He’s really knocking this whole award thing out of the park in his early career🥇
Thanks
@CincyKidsPCCM
for sending us this guy!
#PedsICU
12
3
48
“Hard work is important. So are play and non productivity
My worth is not tied to my productivity, but to my existence
I am worthy of rest”
-
@GlennonDoyle
Take time
#PedsICU
to do work important to YOU
But know you’re more than the next paper or project
You are worthy of rest
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7
48