Jax’s stoma journey BCyA Profile
Jax’s stoma journey BCyA

@Jax87539443

Followers
4K
Following
13K
Statuses
5K

Im 11 with a ileostomy stoma i have a chronic bowel condition. i raise awareness and fundraise for A BEAR NAMED BUTTONY to provide children with stoma bears

Page run by mum
Joined September 2022
Don't wanna be here? Send us removal request.
@Jax87539443
Jax’s stoma journey BCyA
2 years
My biggest achievements in life 💙 #raisingawareness #ileostomy #dreambig #bekind @CitizenAwards @NELCouncil @HMTStHughs @ButtonyBear @stevebeasant thank you to everyone for always supporting me
Tweet media one
36
40
408
@Jax87539443
Jax’s stoma journey BCyA
1 day
@JourneyStoma You looks so very grown up Jessica . Beautiful girl xxxx
0
1
4
@Jax87539443
Jax’s stoma journey BCyA
2 days
After being in alot of abdominal pain and also passing blood , jaxs out put was so watery we was emptying every 30mins . We was advised to take him to our local A&E after liaising with the childrens hospital yesterday in his scopes it showed he has severe diversion colitis which with them going up and irritating it also has flared a big problem for Jax , Jax is now 30 hours without passing the capso cam which has either become stuck or due to him having mega slow transit its just taking its time . They wanted to take him via ambulance to his children’s hospital but jax got very upset so between both hospitals they have decided we can monitor him at home and watch how things go over the next 24/48 hours if anything gets worse hell have no choice but to go in . But hopefully things settle . Hes had enough he’s been brave and soldiered on but he’s now ready for a break away from it all. ❤️
Tweet media one
Tweet media two
115
13
494
@Jax87539443
Jax’s stoma journey BCyA
3 days
Back from theatre my little champ ❤️
Tweet media one
45
15
820
@Jax87539443
Jax’s stoma journey BCyA
3 days
Jax is currently in theatre ❤️
Tweet media one
80
17
675
@Jax87539443
Jax’s stoma journey BCyA
4 days
@JourneyStoma @AdeleRoberts We need tickets ❤️
1
0
2
@Jax87539443
Jax’s stoma journey BCyA
4 days
Get in @LFC 🙌❤️ P.s if anyone gets any spare tickets x2 🤣 i know a little boy who would be over the moon 🫣
@LFC
Liverpool FC
4 days
Tweet media one
1
4
7
@Jax87539443
Jax’s stoma journey BCyA
4 days
Bag packed , stoma supplies packed , and most importantly buttony is ready to be with Jax in theatre tomorrow. 🐻 Buttony has been through every operation and procedure with Jax and sounds daft but also gives me comfort knowing he’s by his side keeping him safe ❤️
Tweet media one
57
25
656
@Jax87539443
Jax’s stoma journey BCyA
4 days
@TPExpressTrains Absolutely amazing well done 👏
0
0
1
@Jax87539443
Jax’s stoma journey BCyA
4 days
Massive well done to @tpexpresstrains for following the guidelines from @colostomyuk all Toilets at Transpennine express stations are now stoma friendly. All accessible station toilets are equipped with shelves , hooks to hang belongings on , mirrors and disposable facilities this will help the stoma community and take alot of stress and anxiety away from travellers . Lets hope other see this and follow suit #stomafriendly #stomaaware #inclusion #stoma #trainstation #grimsby
Tweet media one
Tweet media two
Tweet media three
5
29
201
@Jax87539443
Jax’s stoma journey BCyA
4 days
@barryhussey64 Good luck with yours also
1
0
1
@Jax87539443
Jax’s stoma journey BCyA
24 days
Cancelled 😡. Got him all sedated with pre med and cancelled so he’s spaced out for nothing . Been such a crazy 48 hours i need my bed x
Tweet media one
72
13
424
@Jax87539443
Jax’s stoma journey BCyA
24 days
Beating me at UNO while he waits for theatre ❤️
Tweet media one
27
8
230
@Jax87539443
Jax’s stoma journey BCyA
26 days
⭐️ Jax update . He settled back into school well after his Christmas breaks . We’ve been a little quiet on social media getting back into routines . Jax is going back to hospital Friday for some tests under General anaesthetic and a Pill cam monitor. We will be heading down tomorrow on the train and staying over in the hospital hotel for 2 nights . Will keep everyone updated ⭐️❤️
Tweet media one
23
8
179
@Jax87539443
Jax’s stoma journey BCyA
1 month
@Mikeo56977865 Thanks mike i sure will
0
0
2
@Jax87539443
Jax’s stoma journey BCyA
1 month
Back to school tomorrow after having a extra week off due to his operation ,also a course of antibiotics for his ongoing issues which dont seem to give him a break atm which for Jax unfortunately means he’s back to theatre either Friday or next Friday for tests and a 24 hour pill cam . But he’s plodding on in Jax style and he’s had such an amazing Christmas & New year with family and Friends . Jax hasn’t seen 10am for the past few weeks so not looking forward to him being mardy at 6.30am tomorrow wish me luck . Me on the other hand will enjoy the peace 😜. Thank you to everyone for your continued love & support ❤️
Tweet media one
22
12
270
@Jax87539443
Jax’s stoma journey BCyA
1 month
🎉🎉 Happy New Year to you all . Thank you for the wonderful love and support through 2024 . Wishing you all Good health and happiness. Love Jax & Mum ❤️❤️
40
14
222
@Jax87539443
Jax’s stoma journey BCyA
2 months
Sat 30 mins deciding which football boots to buy so he bought them both 🫣. One with his Christmas money and i bought him the other after promising him after his op ❤️
Tweet media one
Tweet media two
Tweet media three
13
6
222
@Jax87539443
Jax’s stoma journey BCyA
2 months
@ChristieDaz Aww really hope she has a wonderful time we cannot wait to go
0
0
1