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Jax’s stoma journey BCyA
@Jax87539443
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Im 11 with a ileostomy stoma i have a chronic bowel condition. i raise awareness and fundraise for A BEAR NAMED BUTTONY to provide children with stoma bears
Page run by mum
Joined September 2022
My biggest achievements in life 💙 #raisingawareness #ileostomy #dreambig #bekind @CitizenAwards @NELCouncil @HMTStHughs @ButtonyBear @stevebeasant thank you to everyone for always supporting me
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After being in alot of abdominal pain and also passing blood , jaxs out put was so watery we was emptying every 30mins . We was advised to take him to our local A&E after liaising with the childrens hospital yesterday in his scopes it showed he has severe diversion colitis which with them going up and irritating it also has flared a big problem for Jax , Jax is now 30 hours without passing the capso cam which has either become stuck or due to him having mega slow transit its just taking its time . They wanted to take him via ambulance to his children’s hospital but jax got very upset so between both hospitals they have decided we can monitor him at home and watch how things go over the next 24/48 hours if anything gets worse hell have no choice but to go in . But hopefully things settle . Hes had enough he’s been brave and soldiered on but he’s now ready for a break away from it all. ❤️
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Get in @LFC 🙌❤️ P.s if anyone gets any spare tickets x2 🤣 i know a little boy who would be over the moon 🫣
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Massive well done to @tpexpresstrains for following the guidelines from @colostomyuk all Toilets at Transpennine express stations are now stoma friendly. All accessible station toilets are equipped with shelves , hooks to hang belongings on , mirrors and disposable facilities this will help the stoma community and take alot of stress and anxiety away from travellers . Lets hope other see this and follow suit #stomafriendly #stomaaware #inclusion #stoma #trainstation #grimsby
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⭐️ Jax update . He settled back into school well after his Christmas breaks . We’ve been a little quiet on social media getting back into routines . Jax is going back to hospital Friday for some tests under General anaesthetic and a Pill cam monitor. We will be heading down tomorrow on the train and staying over in the hospital hotel for 2 nights . Will keep everyone updated ⭐️❤️
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Back to school tomorrow after having a extra week off due to his operation ,also a course of antibiotics for his ongoing issues which dont seem to give him a break atm which for Jax unfortunately means he’s back to theatre either Friday or next Friday for tests and a 24 hour pill cam . But he’s plodding on in Jax style and he’s had such an amazing Christmas & New year with family and Friends . Jax hasn’t seen 10am for the past few weeks so not looking forward to him being mardy at 6.30am tomorrow wish me luck . Me on the other hand will enjoy the peace 😜. Thank you to everyone for your continued love & support ❤️
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