Helmsley Charitable Trust
@HelmsleyTrust
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The Helmsley Charitable Trust is committed to helping people live better lives today and creating stronger, healthier futures for individuals and communities.
New York, NY
Joined October 2014
The best way to thank the doctors, nurses, and front-line workers who have labored selflessly to keep people safe during the healthcare crisis of our lifetime? . Get #vaccinated against #COVID19. #PowerofRural
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Today, for #WorldOceansDay, we announced a $15 million grant to support The Ocean Cleanup's efforts to help clean up the Great Pacific Garbage Patch. This grant aims to lessen the environmental and health impacts of plastic pollution in our oceans. The Ocean Cleanup's mission is
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Last week, we hosted a roundtable discussion kicking off the @BowelUltrasound efforts to expand the use of intestinal ultrasound as a standard monitoring tool in US #IBD centers.
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Trustee David Panzirer on the new @JDRF-@BeyondType1 Alliance: “This is a huge win for people with T1D as it will reduce duplicate efforts and allow both organizations to grow stronger, be more efficient, and more effectively serve the T1D community." .
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We will light The Helmsley Building purple tonight to honor #WorldIBDDay. People with #IBD deserve better treatments, technologies, and a cure. Helmsley is dedicated to making that a reality by supporting institutions and organizations that are building a better future for people.
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Helmsley’s #Type1Diabetes Program is the largest private funder dedicated to helping the #T1D community live safer, better, and more fulfilling lives today while funding advancements in research and technology for a better tomorrow. #WorldDiabetesDay
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Did you know that an estimated 3.1 million adults in the U.S. have inflammatory bowel disease? Today on #WorldIBDDay2022, and every day, Helmsley is dedicated to raising awareness about IBD and Crohn's disease, and supporting cutting-edge research to find a cure.
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A new Helmsley-funded clinical trial led by @IlievLab will test anti-fungal therapies in #CrohnsDisease for the first time, says @RandyLongman Director @WCM_IBD. Research suggests some #IBD patients harbor strains of fungi that could damage the gut:
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With #WorldOceansDay coming up on June 8, @CBSNews highlights The Ocean Cleanup's mission to rid the world's oceans of plastic, cleaning an area the size of a football field every five seconds. Plastic in our oceans is an "ecological time bomb," Matthias Egger of @TheOceanCleanup.
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With partners like @SinaiHealth and @getgutsycanada, our Crohn’s Disease Program is committed to supporting research that increases the understanding of Crohn’s disease and, ultimately, the ability to prevent or cure it. #CCAwarenessWeek
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As part of our Type 1 Diabetes Exercise Initiative (T1-DEXI), we recently awarded more than $12 million to seven projects aimed at helping people with T1D incorporate exercise into their daily lives. #diabetes #TID #type1diabetes.
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The @BowelUltrasound group trains gastroenterologists on the use of intestinal ultrasound, a minimally invasive #IBD monitoring tool. Helmsley is committed to supporting groups like IBUS that push for improved care for people with #IBD.
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Thrilled to work with incredible partners to support such meaningful progress in the #diabetes field!
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The STAR Consortium, a collaboration comprising @ClevelandClinic @MayoClinic & @alimentiv, is making great strides developing novel biomarkers for stricturing Crohn’s disease, which could lead to new anti-fibrotic therapies. Read more here:
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New $10 million initiative formed by Helmsley, @ParkerICI, and @JDRF to study insulin-dependent #diabetes in cancer patients after cancer immunotherapy. Findings may shed light on how #T1D develops and potential T1D treatments:
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The Type 1 Diabetes community has lost a champion. We join @BeyondType1 in mourning the loss of their visionary leader, Thom Scher. May his memory and legacy inspire us all.
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When @UmaMahadevanIBD initiated the Pregnancy in Inflammatory Bowel Disease and Neonatal Outcomes (PIANO) registry in 2007, the safety of #biologics in #pregnancy was unknown and the default was to stop medications. We're proud to support @UCSFMedicine in this important work.
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Helmsley's Global Access grantees are among those who support people living with #diabetes and health professionals all across the world through #DiabetesEducation. Collective action is the most effective pathway towards health #equity & #UHC!. #WorldDiabetesDay2022
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A new Helmsley-supported @UofGlasgow trial aims to improve patient outcomes in #CrohnsDisease by evaluating the combination of biologic therapies with a dietary intervention.
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2021 marks the 100th anniversary of the discovery of insulin. This year and every year, we’re proud of grantees like @LifeforaChild, with whom we’ve enabled the expansion of diabetes care, including insulin, to young people in 41 countries. #insulin100 #T1D
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Jean-Frederic Colombel (@JeanFredericCo1) recently sat down with us to outline research strategies aimed at preventing #CrohnsDisease. Learn more about his work in our latest insight post: #CrohnsAndColitisAwarenessWeek
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Today is #WorldIBDDay2024!. Inflammatory bowel disease (IBD) -- Crohn’s disease and ulcerative colitis -- affects 7 million people worldwide. It is characterized by chronic inflammation of the gastrointestinal tract, and often severely impact people’s lives and well-being. At.
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Point-of-care intestinal ultrasound is emerging as a low-cost, non-invasive, convenient tool to better monitor Crohn’s disease. The ability to discuss findings in real-time can be invaluable to help people with Crohn’s disease understand the condition, build trust with providers,
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Two new #RequestsForProposals #RFPs will fund collaborations to better understand how #Type1Diabetes develops — with the aim of identifying interventions that can prevent or delay #T1D onset.
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Around 25% of people living with IBD — which includes Crohn’s disease and ulcerative colitis — are diagnosed before they are 18 years old. To address their unique needs, @CCYANetwork produced a series of roundtables focused on Young Adults with Inflammatory Bowel Disease (IBD).
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Over 42 different factors can impact blood glucose levels!. Grantee @diaTribeNews' guide highlights why #T1D management is so complex: #DiabetesAwarenessMonth @asbrown1.
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At @DiabetesMine’s #DData19, Helmsley's #T1D Program will share Helmsley’s vision for a “Geek Squad” for #CGM. This virtual specialty clinic now being piloted is already making it easier to access and stay on CGM.
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There are many unanswered questions about the biology underlying #CrohnsDisease. For instance, what factors might lead to severe complications? Why do different people respond so differently to treatments?
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People who manage chronic illnesses like #Type1Diabetes need continuous access to medications and supplies during #humanitarian crises — such as floods, earthquakes, and violent political conflicts — but are often forgotten in humanitarian response efforts.
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Preliminary evidence suggests tighter monitoring with intestinal ultrasound may improve outcomes for people with #IBD, but few #gastroenterologists in the US are trained to perform and utilize point-of-care intestinal ultrasound for non-invasive monitoring of IBD patients.
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We partnered with @CUHKMedicine's @Siew_C_Ng to create a map for visualizing the evolution of #IBD around the world. The atlas will help new researchers better understand what is known and unknown about the epidemiology of the disease. #CCAwarenessWeek
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A diagnosis of #T1D brings with it a lifelong challenge of managing the disease. We're funding a study to investigate whether a probiotic can help protect children with elevated genetic risk from getting T1D:
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A recent publication from the #Fr1da study, supported by Helmsley, @HelmholtzMunich, @JDRF , and other partners, found that children diagnosed in early stages of #Type1Diabetes had milder clinical diabetes onset. This analysis adds evidence to support general population screening.
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In most low-and middle-income countries (LMICs), people pay out of pocket for the continuous glucose monitoring devices (CGMs) that can transform #diabetes care by enabling 24-hour monitoring of blood glucose levels.
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Our new $10M grant will support #GDC as it works towards a world where at least 80% of people with #diabetes have good glycemic control and everyone with #T1D has access to #insulin by 2030. These targets are a crucial step towards #HealthForAll:
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Dr. Roy Beck from grantee Jaeb Center for Health Research on why HbA1c shouldn’t serve as a sole outcome: “It is a measure of hyperglycemia and provides no indication of hypoglycemia or glycemic variability.” CGM is a crucial tool for all #T1D care to go beyond A1c!.
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CGMs improve outcomes in diabetes, but geography hinders access to them. We funded a pilot study conducted by Jaeb to explore the possibility of remote onboarding and support of #CGM. All 34 participants improved their glucose levels and quality of life:
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Our new $5M grant to the Jaeb Center for Health Research Foundation will support the study of a virtual clinic model with a goal to enable more people w/ #diabetes to access specialized diabetes and #mentalhealth care, #CGMs & insulin dosing support:
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Dedicating our 1,000th tweet to our amazing grantees and partners improving lives in the U.S. and around the world. Thank you for following us as we spread the word about their meaningful work!.
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We awarded @UMassMedical a $1.7 million grant to research and create a nutritional program tailored to Crohn’s disease patients in Puerto Rico that will provide potential dietary solutions to address the increasing prevalence of the disease on the island:
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100 years after the discovery of #insulin, quality diabetes care and supplies remain beyond the reach of many who need them. At Helmsley, we’re working hard to ensure that no one living with #type1diabetes gets left behind. #WorldDiabetesDay
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Point of care intestinal ultrasound is a valuable, non-invasive tool for the diagnosis and monitoring of #CrohnsDisease. #CCAwareness #IBDvisible.
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Helmsley is the largest private philanthropy dedicated to addressing the needs of people living with #CrohnsDisease, a complex, chronic inflammatory bowel disease (#IBD) that impacts millions globally. #IBDvisible Learn about our #CrohnsDisease Program:
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Glad that @NEStatePatrol will soon get their AEDs. We’ve seen firsthand the difference it makes when a trooper responds to a cardiac arrest. Thank you for rising to the challenge of saving a life.
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We’ve joined orgs across the world in a simple goal: tap in to the power of the global diabetes community to save lives. Together, we can lead the way in stopping the spread of #COVID19. Learn about the #BigLittleChanges you can make to save lives at
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We granted $26.4M towards ultrasounds and sonography training because, as Helmsley Trustee Walter Panzirer said, “our hospitals [. ] need to stay current with rapidly advancing technology to continue to provide top-notch healthcare close to home.”
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NEW RFPs: A better scientific understanding of #type1diabetes can lead to the discovery and development of interventions to prevent or delay its development. Today, we're announcing two RFPs in support of these goals. Learn more: #T1D #diabetes
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Helmsley is committed to advancing research in inflammatory bowel disease (IBD) through collaboration. Recent publications from the @CrohnsColitisFn highlight critical gaps and priorities for the IBD community. Nearly 100 stakeholders, including members of our Crohn’s disease.
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Data from the @T1Dexi study on the impact of #exercise on glucose in people with #Type1Diabetes are now accessible through @VivliCenter. Helmsley is seeking researchers and clinicians to use the data to improve real-world recommendations. Read more:
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José Ordovás–Montañés, PhD, from Boston Children’s Hospital, is a member of the Gut Cell Atlas Crohn’s Disease Consortium, supported by Helmsley, which aims to generate a cellular atlas for Crohn’s disease by cataloging the many cell types in the small and large intestines with
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This #NationalDiabetesMonth, we are proud of our many partners working diligently to improve the lives of all individuals affected by #T1D.
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We're partnering with @CZIscience to support the @HumanCellAtlas! . Helmsley will invite applications to create a #GutCellAtlas to understand how the gut’s cells function & interact in health and #Crohns disease. Learn more before applications open 9/18:
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At this week’s Helmsley-funded @BowelUlstrasound training session, 30 select #Gastroenterologists will learn the technique with @IBDMD at @UChicagoIBD
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The Helmsley-funded Mental Health Provider #Diabetes Education Program at #2018ADA provides training for licensed mental health professionals who recognize the importance of quality mental healthcare for people with diabetes: @ADA_DiabetesPro
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Today we kicked off our Annual Convening of the #GutCellAtlas Crohn’s Disease Consortium. These scientific leaders are collaborating to map the gut using single-cell technologies, with the aim of improving our understanding of #CrohnsDisease. Learn more about this extraordinary
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“We use the best technologies everywhere in our lives. Why not when you’re dosing with a drug that can kill you?” -Trustee David Panzirer, who was honored with the prestigious @ISPADorg Hero Award for his work making life better for young people with #T1D through CGM. #ISPAD2019.
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About a quarter of people with #CrohnsDisease experience perianal fistulization, which has limited treatment options and can severely impact quality of life.
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As Helmsley trustee Walter Panzirer noted, “access to life-saving, quality health care is a basic human right, regardless of where you live.” We’ve granted over $600M towards the 62M Americans living in rural communities, to level out the playing field. #NationalRuralHealthDay
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Even during a global #pandemic, it’s important to be aware of the warning signs of #type1diabetes to avoid a diagnosis coming too late. Grantee @BeyondType1 shares what you need to know here:
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We believe there are important outcomes for #T1D beyond A1c and have joined other T1D stakeholders to collectively define them here:
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Without treatment, #T1D can be a death sentence - an unfortunate reality for many in extreme poverty. On Sep. 15, join our T1D Program Director @GinaAgios at the #NCDIPoverty launch event to hear how we can mobilize resources for T1D & other #NCDs:
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Are you an @AADEdiabetes member? Be sure to explore DANA, which is AADE's new comprehensive #diabetes technology institute, supported by Helmsley. It is FREE for AADE members!
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Tonight, Helmsley Trustee Walter Panzirer accepted the @AmericanTelemed Humanitarian Award at #ATA18 for Helmsley efforts in improving rural access to care through #telemedicine. Read more about the award:
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Hypoglycemia and time in range are two #T1D outcomes beyond A1c that should be considered in research & development of new therapies:
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Today is #WorldIBDDay2022. Helmsley is committed to finding a cure for #Crohns and improving the lives of patients along the way. Learn about innovative cell-based therapy research that our grantees are leading:
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Are you registered for #AIDS2022?. Don’t miss our pre-conference meeting on Wed, 27 July with global leaders and advocates representing @NCDAlliance, @gnpplus, @STOPAIDS, @frontlineaids, @UNAIDs, @iasociety, @noradno and more: See you in Montreal!
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Helmsley-grantee @YaleMed is using a passive air sampler as a personal monitoring tool to characterize exposures to environmental contaminants from consumer products, building materials, and food, for people with #CrohnsDisease.
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Amped for #ADA2019 today, including 2 sessions from grantee @ProjectECHO. ECHO's telemedicine model resonates - geography shouldn't dictate access to quality #T1D care. There’s a dire need to increase access to T1D care & democratize specialty care in underserved communities.
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We're delighted to spend #WorldDiabetesDay and every day supporting innovative, resourceful, and creative efforts to combat #T1D.
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Great dialogue on the importance of outcomes #BeyondA1c at #AADE17 by @aaronjkowalski. @JDRF @AADEdiabetes.
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This #CrohnsAndColitisAwarenessWeek, we’re highlighting the work of our grantees dedicated to addressing the unmet needs of people with Crohn’s disease.
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"As a private foundation we have an obligation to fund risky projects that others cannot or will not fund." #MIGlobal
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Our grantee @T1DExchange recently released the preliminary results from a population health study of #T1D patients with #COVID19. Check out the findings here, including the most widespread presenting symptom for COVID patients with T1D:
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How coming together for a common goal helped to advance #diabetes technology: @bigfootbiomed @jdrf @t1dexchange.
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Helmsley is proud to continue our partnership with @BeyondType1 on their diabetic ketoacidosis (DKA) awareness campaign. Spread the warning signs for undiagnosed T1D, help save lives.
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Nearly 30,000 people are diagnosed with #T1D in the U.S. each year. We partner with innovative grantees who are equally devoted to reducing this number and mitigating the immense burden of T1D for those living with it. #DiabetesAwarenessMonth.
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We were #HereForDDW #DDW2023, where our #CrohnsDisease team connected with many outstanding partners working to improve outcomes for people living with #Crohns and find a cure.
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“Where you live should not determine the kind of care you receive, and yet in far too many places it does,” said Helmsley Trustee David Panzirer. “Closing this gap for the #Type1Diabetes community requires a multitude of parallel efforts including initiatives like the #GDC.".
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“Young adults do care for their diabetes - we just have to reconsider how we care for them.” @ChildrensLA’s Dr. Jennifer Raymond shared how providers can implement CoYoT1, a group #telemedicine appointment model that can make it easier for young people to manage #T1D. #ISPAD2019
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From one clinic to a continent-wide conference, the #PENPlus model has come a long way. This week, we were in Tanzania with @WHOAFRO and @NCDIpoverty, hearing from leaders on expanding noncommunicable disease care in Africa. Read more: #ICPPA2024.
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Cause for celebration: FDA approves closed-loop system that will vastly improve glucose control for type 1 #diabetes
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It’s 2020, and children are still dying from #NCDs like #T1D because they don’t have access to the resources they need to manage their disease. Thank you @BBCStoryWorks for documenting how @LifeforaChild is tackling this: #TurningtheTide #NCDs @NCDalliance.
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Helmsley is proud to partner with @EmpireStateBldg to light the NYC skyline blue for #WorldDiabetesDay. Read how our #Type1Diabetes Program is helping the global #T1D community live more fulfilling lives today while funding a better tomorrow:
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Kudos on this new effort to map the #microbiome and investigate how it affects our overall health.
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Tomorrow, we'll join the #T1D community to discuss how to improve care & outcomes at @T1DExchange Annual Meeting:
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If you’re at #ADA2019 and haven’t yet experienced an ADA Presidents’ Select Abstract Presentation, tomorrow is your day! Grantee @ChildrensLA will present “Shared Medical Appointments (SMA) Improve Psychosocial Outcomes in Adolescents with Type 1 Diabetes (T1D)” at 4:30 in S-208.
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Meet Jessica Langer, one of our #CrohnsDisease program officers! She helps manage the program’s #research #grants and identifies innovative strategies to improve treatment options for #IBD patients. #WomeninSTEM #CCAwarenessWeek
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“In the United States, we treat symptoms and we do so as cheaply as possible. We don’t treat the whole person.” - Trustee David Panzirer. Hear how #telehealth can enable holistic, personalized care by tuning into this recorded @CeceliaHealth webinar:
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