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The Haemophilia Society's Inquiry Team Profile
The Haemophilia Society's Inquiry Team

@HaemoSocUK_PI

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Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]

United Kingdom
Joined August 2018
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
1 month
Congratulations to Bill Wright, former chair of @HaemophiliaScot, on being awarded an OBE in recognition of his outstanding campaign work in support of the infected blood community.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
If implemented fully, @bloodinquiry recommendations will improve the safety and quality of healthcare for everyone in the UK. This is a positive start, but govt must do more to listen to those at the heart of this scandal, especially on compensation.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
An important step forward, but there remain serious concerns about parts of the govt’s infected blood compensation scheme that need addressing.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
Today the Haemophilia Society, along with 30 other groups, got four minutes to explain to Cabinet Office minister @NickTorfaen why there is so much concern and anxiety about the Infected Blood Compensation Scheme. Is the govt listening? We think not.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
RT @Clive_Smith_: For months we’ve been banging on governments door. This could all have been avoided if @NickTorfaen and the Cabinet Offic…
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
Warning to govt today from @bloodinquiry Chair over its handling of infected blood compensation. Sir Brian Langstaff says concern over the way it is being managed has developed to the extent that should make 'any objective observer deeply uncomfortable'.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
A year ago the government was forced by parliament to set up a compensation body for those infected and affected by contaminated blood. A year on, not enough has been achieved. Government must listen to the community and get the compensation scheme right.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
The Haemophilia Society, along with other charities and campaign groups, has written to @bloodinquiry over concerns that @cabinetofficeuk is damaging the compensation process by its lack of engagement with the infected blood community.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
The @IBCA_UK are holding a community event on Monday 9 December in Antrim, Northern Ireland. The IBCA leadership team will meet with members of the infected blood community to discuss the key issues affecting them. Find out more here
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
@BBCNews Thanks for highlighting this. It is hard to overstate the anxiety that any issue with an interim compensation payment has on the infected blood community as a whole. There is very little trust in government for historic reasons, and this confusion will not help to restore it.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
Bereaved families who've had their long overdue interim compensation claims approved and a payment date set, now face 'further checks' with no idea when they will get their compensation. Thanks @BBCNews and @jim_reed for highlighting this deeply concerning development.
@BBCNews
BBC News (UK)
2 months
Anger as some infected blood payouts put on hold
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
2 months
Today we think of everyone infected with HIV/AIDS as a result of receiving contaminated NHS treatment for haemophilia and other bleeding disorders. The stigma around this condition continues to blight lives and must end. @NAT_AIDS_Trust
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
Bereaved families who were told their long-awaited interim infected blood compensation payment was approved have now had their claims rejected following unpublicised guidance from @cabinetofficeuk. We want @NickTorfaen to tell us why.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
Clive Efford MP, co-chair APPG on Haemophilia and Contaminated Blood, highlighted the frustration of victims and their families who feel 'excluded' from the compensation process and 'enfeebled' by lack of resources for advice and advocacy.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
The 'need for speed' in delivering compensation to victims of the contaminated blood scandal is 'absolutely paramount' says @NickTorfaen, but was told by @IanLaveryMP in a Commons debate on @bloodinquiry that progress is still 'painfully, painfully slow'.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
‘I’ve made every second count’: ⁦Mark Ward’s inspirational search for justice through the infected blood scandal. His must-read new book is out soon. ⁦@Haemosexual
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
Thank you to David Foley, interim Chief Executive @IBCA_UK for spending the day at our Big Get-Together conference answering many questions about compensation. We're also grateful to the @SlickFilms team for showing us their powerful short film 'What We Wished We Could Be'.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
David Foley, @IBCA_UK interim Chief Executive, told our BGT conference today that his organisation has so far recruited 31 case managers to deal with compensation claims. They are 'problem solvers' not 'assessors', he said, and will be 'supportive and encouraging'.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
David Foley, interim chief executive @IBCA_UK is at our Big Get-Together to answer questions on compensation. He said offers of full compensation would start to be made to IBCA's first trial group of 20 from next week but is aware of 'frustration' about lack of progress.
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@HaemoSocUK_PI
The Haemophilia Society's Inquiry Team
3 months
Sir Brian Langstaff, chair of @bloodinquiry has criticised the government for excluding siblings who were over 18 when their brother or sister was infected from claiming compensation. In a letter to @NickTorfaen he said this was not what he recommended.
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