Dr. Dr. Helene Andrews-Polymenis,
@HPolymenis
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Bacteriologist. Veterinarian. Teacher. Mom. Wife. Daughter. Sister. Mentor. Fighter for social justice.PDAC survivor 4.5 yrs. @hpolymenis .bsky.social
Texas, USA
Joined November 2018
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Thank you
@DoloresHuerta
for block walking with us
@YoungDemsBCS
for affordable housing yesterday despite the rain. Your presence and encouragement were so inspiring to us!
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I'm just so tired of this shit. These are just the obvious ones- a thread lest we forget.
David Sabatini- 2021 MIT/Whitehead/HHMI
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How many of you all buy your own computer so as to bypass institutional IT?
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Can we talk about bullying in academia. Man, I’m just tired.
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One of the things that was so powerful about
@DrNadiaChaudhri
was that she didn’t let her illness steal her joy in life. I’m trying to live by her example. ❤️
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Two and a half years ago I hoped to live long enough to see my daughter graduate from high school. Today I moved her in for her sophomore year in college. ❤️
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I used to wonder as a scientist in academia married to another scientist in academia w two kids, how I was still standing. This year I’ve lost 6 family members, I myself have cancer and this brings the question of how I’m still standing to a whole new level.
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Tomorrow is my last day of chemotherapy. 3 more doses of meds to take but my head is already there.
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Tomorrow is the 5th anniversary of my pancreatic cancer diagnosis. I have lots of feelings about this. 🧵
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I’ve taken my last two pills. No more chemo for a while! 🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉
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@strauss_matt
Yeah. Nope. Veggies and bike lanes don’t prevent cancer and I’m living proof of that.
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Cancer stole my hopes and dreams for the future. At the same time it has made living in the present so vivid and acute. Hard to describe.
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My oncologist has a psychiatrist in her group that only works with cancer patients. He’s excellent and this should be the model everywhere.
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Sometimes I’m so mad that I got cancer and I just want my old life back. Some days are just harder than others.
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The path report from my Whipple says I had a complete response to chemo. That tumor was DEAD. 🎉
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Here is an I’m happy chemo is done but still have no hair photo from this morning.
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Nearly 3 years ago I was diagnosed with borderline resectable pancreatic adenocarcinoma. had every kind of treatment, in and out of stage 4, and am still here. I’m pretty sure docs did not expect that I would live this long, but no one gave me any numbers for life expectancy.
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Nov 2 marks 2 years since my Whipple surgery for pancreatic cancer, and just over a year since recurrence. 3.5 years since my initial diagnosis for a disease I thought would take me in less than a year... I'm here with... 1/3
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Apparently we did blast the crap out of that liver met. 🎉🎉🎉no other issues for the moment except a touch of osteoporosis from chemo. 🎉🎉🎉
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Why is it not enough anymore to have one R01 and do great work? We should all be asking ourselves this.
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A microbiologists nightmare.
EXTREME: Royal Caribbean is planning for what it calls the longest and most comprehensive world cruise ever. Passengers will be onboard the Serenade of the Seas for 274 nights - that's nine months!
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I’m sad to report that my dad passed away this evening. He was at home - surrounded by friends and family. I’m coping by telling my kids funny stories about like the time he dragged, us all the way to Heidelberg for world class schnitzel only to order the goulash. 💔
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So… my CT scan results were super boring! 🎉
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You can not beat cancer with positivity.
You can not beat cancer with strong will.
The reason I dislike these attitudes is that it makes cancer patients feel like they need to have a fucking smile on all the time, and if they only tried harder they would have survived. 1/3
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Had that talk with my daughter about moving from standard to experimental treatment. She broke my heart a little thinking the Whipple would be the cure. I hoped so too kid- I hoped so too.
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This week two years ago I went in for what we thought were gallstones that was actually a 4 cm tumor on my pancreas. Somehow I’m still here.
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My trainees nominated me for an award. I didn’t win… but I got something better. This folder containing all the letters they wrote on my behalf. Priceless.
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So I can’t ask my undergrads if they are vaccinated and can’t require them to wear masks- and therefore it’s fine for me to expose my vaccinated, mask wearing grad students and post docs to these folks. I think not.
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My boss didn’t recognize this- but my doctor did, and cared enough to send me this message. This week
@TaniguchiMD
has a paper in The Lancet AND one in Science, both will be life changing for patients. I’m out of words over our collective loss. 💔
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I’ve got a DVM and a PhD. You, Mr. Smith, can call me Dr. Dr. .
With all due respect to people with hard-earned, well-deserved PhDs, people who are not doctors of medicine should not call themselves Dr.
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Finally my Covid kid tested negative. After 13 days.
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"For active awards, NIH anticipates beginning to award the additional $2,500 in childcare costs per trainee slot at the time of the next continuation award starting in Fiscal Year 2022."
MY DUDES- that's one month of child care in any major city.
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For those playing along at home... CHEMO RADIATION is over...and I got to ring the bell today!
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Got new headshot today. After having no hair it now looks so bushy. 😂
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@angie_rasmussen
We are doomed. A similar scene is playing out here in college station. Not a mask in sight.
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4 weeks post op Whipple today. So far going as well as one can expect. Today they put me back on a regular diet 🎉🎉🎉 Beyond grateful to awesome surgeons and their awesome team members.
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Here we go to chemo number 5482341. 7 hours of poison laden fun. Please let me have Hope or Flower as my nurses today- they are so efficient and very kind.
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I sometimes find myself very angry at people complaining about crap that doesn’t matter. I have very deadly cancer. Think about who you are bitching to for just one second.
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Last year I hoped only to see my girls graduate. Today I helped the younger one move out of her first apartment and she’s about to be a college sophomore. 🎉
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I feel reasonably good and my disease looks stable for now. We just keep moving forward.
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Whipple completed! I feel like dirt after 8 hrs of surgery but will try Roget up and walk today,
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As of today everyone in my bubble is fully vaccinated. I’m so grateful for this, and just relieved.
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Chemo is done for today. Feel like dirt. Got to see my fave nurse Star. Please send dog, cat, goat… or any other pet picks of your choice.
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I’m a little bit speechless. Thank you
@TsolisRenee
for nominating me. And congratulations to
@SunnyShinLab
@BWFPATH
@BrianKCoombes
@TamayoLab
and others not on Twitter!!
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So my ct scan has a couple areas to watch but otherwise no evidence of any further issues. 🤞 for the next 3 months.
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Hi. My name is Helene and at the age of 51 I was diagnosed with Pancreatic adenocarcinoma. It’s
#PancreaticCancerAwarenessMonth
and lets bring attention to genetic testing and clinical trials for pancreatic cancer patients, in addition to general awareness!
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Tumor marker remains low. Relief washes over me. That makes 1 full year on Lynparza.
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Chemo day. Not complaining. Just have to get it done. Killing some cancer cells today. Like hopefully ALL of them.
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Insurance company denied my next treatment drug Lynparza for my pancreatic cancer.
@tamusystem
after nearly 3 years of fighting this disease, this is NOT ok.
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Look at this sweet gift from my student! If you know, you know!
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Cancer and menopause at the same time just feels fucking unfair.
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There is a deer 20 feet from me in the forest. My daughters are here and happy. I made it to 53. I feel quietly contented.
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We celebrated a PhD and papers accepted, three job offers, awards for best talk among other things, three undergrad graduations, and two new members of the lab. 🎉🎉🎉
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Off to chemo. Trying not to feel so down.
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Tomorrow we soldier on. Chemo 7 am. I know I will be well taken care of.
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This is the last email I received from Cullen
@TaniguchiMD
. It honestly made me feel like a million bucks. He was, as many have said, the best of us.
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I voted! 49 minutes start of line to leaving the building. One jackass voting official with no mask. I, of course, gave him one and a little lecture on how I had chemo yesterday.
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Would it be crazy to sequence and RNA seq my own tumor tissue. Qiagen has a kit for DNA/RNA extraction from FFPE tissue and the sequencing itself can not be that expensive.
@BioNTech_Group
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My daughter today ok this last night and it perfectly captures us.
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Had a Whipple on Monday. Get to go home today. 🎉🎉🎉
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7. I’m here for that though. Showing up for tomorrow - and all the joy and love and sometimes sorrow that comes with it. ❤️ I’ve gotten to see so many family milestones … and shortly there will be two more- a wedding, and a 22nd birthday- that I never thought I would see. ❤️❤️
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I’ll take dog, cat, goat, sheep or any other cute pet pictures you have this evening. Feeling kind of barfy, headachey, and just generally down after chemo today.
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I’m a little obsessed with Pavlov.
Took Pavlov to Gas Works Park for some fetch and a beautiful view! Making sure he celebrates his birthday with his favorite activities. Love you, Pavvy 🥰
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My girl graduates today! 🎉🎉🎉 so so proud of her!
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I heckle him a lot- but I know I’m the luckiest person alive to be so loved by this wonderful man. Roger that.
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A primer on genetic testing in pancreas cancer. Insist on it- it could save your life! It’s saving mine. Please retweet!
@letswinpc
@PanCAN
@Run4Purple
@DinoVPurple
@MPishvaian
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Checking in for chemo. front desk guy complains his mask is SO uncomfortable (an under the nose wearer) ...I wanted to scream that wearing a mask is THE most comfortable thing I’ve done here. For fucks sake... have you no idea what cancer patients endure in this building?!
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Well scans are unremarkable, I feel pretty good, and we get to space out the monitoring a little more… yay! 🎉
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Last 14 days of chemo starts tomorrow. After a total of 16 months of chemo, two surgeries, 6 hospitalizations and 5 weeks of chemo radiation in the last two years... LETS GET THIS DONE! 💪
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Instead of ringing the bell, we took a pic w all the awesome rad onc techs that delivered 50 gy to one tiny spot in my liver. These people made it easy!
@MDAndersonNews
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Also- 3 years ago this day, the radiologist told me I had a 4 cm mass on the head of my pancreas. I'm grateful for these three years of closeness with my family and friends, milestones for kids, and knowing the love that surrounds me. Whatever happens now is up to the universe.
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Ok that met is really tiny. Everyone cross your fingers that the interventional radiologist can hit it and get a good biopsy.
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Beautiful talk this morning by
@PeterHotez
about creating low cost vaccines and the anti vaccine movement and it’s truly devastating effects. The scientific community needs a wake up call and must act!
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I am the orchid whisperer. All my orchids are blooming!
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One more day of chemo in this cycle... then after a short break two more weeks. I’m dragging myself toward the finish line but I’m going to get there.
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New departmental t shirts are so cute!
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We should be sequencing all pancreatic tumors. We should have a giant database of sequences, and of gene expression profiles for these tumors. Docs will say WHY??? but I say- you need to get the data first to know what's in the data and how you can use the data.
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Totally.
@PeterHotez
is working tirelessly to get info out on this pandemic, and he has been correct at every step. And, as I have said previously, he walks on water.
Among the true heroes of 2020, I’d like to acknowledge Dr.
@PeterHotez
for his tireless
#scicomm
work, facing the public daily to provide the facts about COVID-19 and vaccines.
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I just read a bunch of stories of people who had Whipple s for PDAC and are long term survivors. I’m scared of this MF coming back on me - but those stories give me hope.
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Started Lynparza today. 🤞🤞🤞🤞 Scared about this plan but its the only plan we've got rn.
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Scans say shrinkage is happening. 🎉 trying to be positive and follow my friend
@SouzanneZ
‘s fine example.
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After a year of appointments, inpatient visits, and surgeries managed alone- it’s so awesome to get to have my husband come in with me again. Like awesomely awesome.
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Tomorrow is promised to no one. Remember that. Hug your loved ones extra tight. Make sure they know they are the only things that matter to you in his world. Be kind to others. You can’t even imagine what they are going through. Better to err on the side of grace.
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It’s
#worldpancreascancer
awareness day today. I made a short video so you recognize the signs. Two minutes could save your life.
@PanCAN
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My gosh this was a marathon to finish while also doing cancer:
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I’m pleased to report that I delivered the hour on bacterial structures without event this morning. 🎉🎉🎉
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My cousin, Paul Jensen, has been missing for the last two years. His remains were found yesterday. While closure is ...something... knowing how depressed he must have felt to take his own life is 💔💔💔💔.
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There will be a procedure nov 2. I won’t know what exactly is happening until I wake up from anesthesia. The best I could hope for rn.
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Chemo so much easier knowing my CT scan was clean. 🙏🤞🤞🤞
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Sometimes it’s hard for me to believe I have a deadly cancer because I feel great and I’m gaining weight. Never thought I’d be happy about that last bit, but I am.
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