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HAE International (HAEi) Profile
HAE International (HAEi)

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HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.

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Joined June 2011
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HAE International (HAEi)
2 days
In the latest Global Perspectives, HAE Argentina tells us about 2024, a challenging yet very productive year for the HAE community in the country with lots of activities and events: Find the fully online Global Perspectives here:
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HAE International (HAEi)
4 days
HAEi’s Coordinator, Global Advocacy and ACARE, Rachel Annals, looks back at a few key highlights from the last 12 months of working with the ACARE team. Read about a highly productive year with regular meetings and shared projects:
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HAE International (HAEi)
6 days
In the latest issue of Global Perspectives, we look back at 2024, an incredible year for the HAEi Youngsters’ Community, who met more often, in person or online, leading to a stronger community than ever before: Full magazine:
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HAE International (HAEi)
11 days
In the whirlwind of just a few short weeks, HAE Nepal became HAEi member country #101. Its driving force is Ganesh Dahal. Global Perspectives caught up with him and pioneering Nepalese immunologist Dr. Dharmagat Bhattarai:
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HAE International (HAEi)
14 days
Towards better diagnosis and care for HAE patients in Europe: HAEi participates in European Parliament Panel Debate. Read more in the latest issue of Global Perspectives: Full magazine with translation options at your fingertips:
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HAE International (HAEi)
16 days
New paper, Advocacy in Action: Intl Patient Group Improves HAE Diagnosis & Care Across Asia–Pacific shows patient groups significantly enhance medication availability & improve HAE diagnosis, esp in region countries classified as emerging economies:
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HAE International (HAEi)
18 days
2024 was HAEi’s 20th year of raising awareness of HAE, fiercely advocating for those with HAE and supporting our Member Organizations to address the unique needs of people with HAE and their families. Read highlights from our last 2 decades here:
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HAE International (HAEi)
23 days
In Global Perspectives #4-2024, each of our Regional Patient Advocates (RPAs) selected a few of the most important moments from 2024 and told us about their hopes for 2025. Fanny Schappler, RPA for South Asia, Germany, Austria, Switzerland, and Israel:
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HAE International (HAEi)
25 days
In 2024's last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) selected a few successes from 2024 and told us about their hopes for 2025. Here's Lim Yong Hao, our RPA for East Asia:
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HAE International (HAEi)
27 days
2024 Highlights and Hopes for 2025 – Central Eastern Europe and Middle East. Michal Rutkowski, our Regional Patient Advocate for this region, selects a few successes from 2024 and tells us about his hopes for 2025. Taken from Global Perspectives #4-2024
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HAE International (HAEi)
29 days
In 2024's last issue of Global Perspectives, each Regional Patient Advocate (RPA) selected a few successes from 2024 and told us about their hopes for 2025. Maria Ferron RPA for Mediterranean, North Africa, Benelux, and British Isles:
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HAE International (HAEi)
1 month
2024 Highlights and Hopes for 2025 – Nordics. Here, Jørn Schultz-Boysen, our RPA for Nordics, shares a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Taken from Global Perspectives #4-2024
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HAE International (HAEi)
1 month
In Global Perspectives 4-2024, each of our Regional Patient Advocates (RPAs) selected a few successes from 2024 and told us about their hopes for 2025. Read about the highlights and hopes from Patricia Karani, our RPA for Sub Sahara Africa:
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HAE International (HAEi)
1 month
In 2024's last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) selected a few of the most important moments and successes from 2024 and told us about their hopes for 2025. Here's Fiona Wardman, RPA for Oceania and South Africa:
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HAE International (HAEi)
1 month
In the last issue of Global Perspectives 2024, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments from 2024 and told us about their hopes for 2025. Javier Santana, RPA for Central America and Caribbean:
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HAE International (HAEi)
1 month
In 2024’s last issue of Global Perspectives, our Regional Patient Advocates (RPAs) selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2024. Here’s Natasa Angjeleska, our RPA for South Eastern Europe:
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HAE International (HAEi)
1 month
In 2024s last issue of Global Perspectives, each of our Regional Patient Advocates (RPAs) has selected a few of the most important moments and successes from 2024 and tells us about their hopes for 2025. Read Fernanda De Oliveira Martins highlights here
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HAE International (HAEi)
1 month
At the threshold of the new year, we want to send you our best wishes for a happy and healthy 2025! 🎉 🎊
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HAE International (HAEi)
2 months
Michal Rutkowski, HAEi's Director, Regional Patient Advocate Program, shares key achievements in our just-published Global Perspectives magazine. "2024 has been quite a year!… We have achieved a lot in 2024. Do we have more to do? Absolutely!”
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HAE International (HAEi)
2 months
HAEi Regional Patient Advocates and the whole HAEi Team send best wishes for the holiday season. We hope you share joy and laughter with your loved ones. We look forward to working with the HAE community in 2025 to continue expanding the global HAE advocacy movement.
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