🔉June is #LipedemaAwarenessMonth and we've been sharing information throughout the month to bring more attention to this disorder. Be sure to follow us on all of our social media channels. #FDRSLipedemaAwareness. #FatDisorders #adiposetissuedisorders

Dercum’s disease can be emotionally draining and it’s vital to find support. If you or someone you know is living with #Dercums consider joining an online support group. 💛💛 Let's keep building the Dercum's community.💛💛You'll find a few:

There's still so much to learn about #DercumsDisease. Let's spread the word for #DercumsAwareness2021. Look for more this weekend! Share your information. #fatdisorders #treatmentsinfatdisorders

While there's no cure for Dercum's, after years of research, there is a drug under study to treat the lipomas in #dercumsdisease. Read more about it in an interview with Dr. Karen Herbst: #DercumsAwareness2021 #Livingwithdercums

Thanks @ObesityAction for offering these great resources for everyone during these times. Wellbeing is a priority. #COVID19 #FDRS #lipedema #dercumsdisease

#DercumsAwarenessDay While not as common, YES, men do live with #dercumsdisease. Ray Wood is an advocate, writer, and brings attention to this disease and how it impacts men. In this @TheMightySite article, Wood addresses what doctors don't say to men:

#DercumsAwareness FDRS will keep bringing attention to #DercumsDisease as for those living with #Dercums, they deal with this chronic disease daily. Help us continue to fund research and raise awareness. Consider a donation: #adiposisdolorosa

This time is stressful for everyone. For those living with #fatdisorders like #lipedema and #Dercums disease, reducing stress is key. On this #DercumsAwarenessDay, take a moment for self care and revisit this session from Kathleen Lisson at #FDRS2019

Information on current clinical trials is posted at All studies receiving U.S. government funding, and some supported by private industry, are posted on this government web site. FDRS continues to advocate for fat disorders like #dercumsdisease.

Social distancing should not mean social isolation. FDRS has social media platforms to share resources, network, support and more. Let’s stay connected during these strange days – and throughout the year. #Livingwithfatdisorders #dercumsdisease #lipedema

#DercumsAwarenessDay There’s no cure for Dercum’s disease, but there are ways to manage pain. Revisit the presentation Integrative Methods of Pain Management from Linda Anne Kahn from #FDRS2019. What do you do to manage the pain of #Dercums disease?

As we continue featuring our popular #DercumsStories from 2019, we had to repost this piece, one of the most popular posts from last year. Yes, men do live with #DercumsDisease and Ray Wood is a vocal advocate and writes for Rare Disease on The Mighty.

FDRS is a proud member organization of @RareDiseases. NORD has updated the description of #Dercums disease with the latest information from Dr. Karen Herbst, PhD, MD. Read all about it: #DercumsAwareness #raredisorders #adiposisdolorosa

👏👏👏 On this #DercumsAwarenessDay -- Hear from one of the most popular #FDRS2019 speakers -- Susan Mortarelli presenting: Defying Dercum’s: A Patient’s Perspective on Living with Dercum’s – #Dercums #adiposisdolorosa #livingwithdercums

It’s #DercumsAwarenessDay. We’ll be sharing Dercum’s information throughout the day. Share our posts and let’s educate the public about this little known yet very painful disease. #Dercums #DercumsAwareness #adiposisdolorosa #livingwithdercums

If you have Medicaid or Medicare for your healthcare, visit this CMS page for fact sheets and information about your coverage should you be impacted by COVID-19.

We are announcing that FDRS 2020: Focus on Fat Disorders is officially canceled. The health and safety of our FDRS community is our priority at this time. For more information about refunds and hotel visit: Stay safe and follow @CDCgov recommendations.

We have an important update about the upcoming #FDRS2020 Conference next month in Cleveland. Read about it and sign up to receive the FDRS email updates:

For those of us with a #fatdisorder, it is imperative that we move as much as possible. Exercise will not only strengthen muscles, but will improve your body’s blood and lymphatic flow, help to manage stress and boost your mood and confidence. #FDRS2020

On this International Women's Day, we applaud those around the world working in research and treatment options to find solutions for those impacted by painful fat disorders like #lipedema and #dercumsdisease. #IWD2020 #EachforEqual #FDRS2020 #BeBoldForChange