FahrBeyond
@FahrBeyond
Followers
180
Following
648
Statuses
465
Official account for Fahr Beyond. We are a charity that supports people with #FahrsDisease & #Fahrs like conditions, to educate & research. #Parkinsons #PFBC
United Kingdom
Joined February 2017
RT @FraMagrinelli: Our commitment to people with Primary Familial Brain Calcification continues. A new webinar, an upcoming trial and the g…
0
5
0
We are delighted to share that our recent webinar can now be viewed on our YouTube channel, to make it easier to view we've broken the webinar down into 4 smaller videos. They can be found here: #Fahrs #Neurology #PFBC
0
2
5
All places for tomorrow's webinar on 29th January are now fully booked, but don't worry; you'll be able to watch the recording shortly after the event.
3 days since we announced this webinar, yet over 1/2 the places have already gone. If you would like to attend please register using the link below. We bring this event to the #fahrs community for free! Please #RT @FraMagrinelli @amitbatla @IonSynapse @UCLIoN @kailashbhatia
0
0
1
RT @FraMagrinelli: 📢 SAVE THE DATE - The next Queen Square Basal Ganglia Club Meeting on Movement Disorders and Autoimmmunity will host Pro…
0
14
0
A huge thank you to @WarksFreemasons for the kind donation to us. Very Generous! It means we can take the next step towards a counselling offer for newly diagnosed patients with #Fahrs Disease. Thank you @philhall43 @UGLE_GrandLodge @Masonic_Charity @WarksCharity
0
1
3
3 days since we announced this webinar, yet over 1/2 the places have already gone. If you would like to attend please register using the link below. We bring this event to the #fahrs community for free! Please #RT @FraMagrinelli @amitbatla @IonSynapse @UCLIoN @kailashbhatia
The webinar will be held online at 14:00-15:00 GMT (UK time). To attend please sign up via Eventbrite:
0
4
2
RT @NeuroAlliance: Over 1,300 people so far have written to their MP to invite them to attend the Parliamentary Neuro Reception tomorrow.…
0
5
0
RT @FahrBeyond: With thanks to @BrainAppeal & the support of @FahrBeyond clinicians and researchers at the National Hospital for Neurology…
0
2
0
RT @FahrBeyond: Wanted: German participants for medication study in Fahr's disease! The medication study is called the “CALCIFADE study”.…
0
2
0
RT @FahrBeyond: Deutsche Teilnehmer für Medikamentenstudie zur Fahr'schen Krankheit! Die Medikamentenstudie trägt den Namen CALCIFADE-Stud…
0
1
0
We wish everyone a festive winter break, we will get back to any enquiries in the new year.
1
0
2
Well done to @Adam_Tate1 our Founder on completing his PhD
I'm PhinisheD PhD in Education from @oxford_brookes ✅ I'm now Dr Adam Tate #PhD #PhinisheD
#AcademicChatter
0
0
2