Emma 🦋
@Emma40025133
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Following
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Chronically ill with MCAS, POTS & ME/CFS. All brought on by covid infection in January 2021.
Yorkshire
Joined March 2022
What I’ve learnt, the hard way. Look after your health. It is important. If you lose it nobody is coming to the rescue. People will watch you suffer, say a few cheap words & do nothing. Put yourself first always 💔
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@CovidSolidarit1 There’s lots of people on TikTok making recovery videos. They are usually out jogging & explaining how they healed from LC, maybe they are just grifters & trying to profit from it?
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@Dysautonomia If researchers started treating it like the autoimmune disease it is we might actually get somewhere. Like come on it comes on after an immune trigger. Stop messing about & think logically
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@dokter_Arf @Riemerville Wish I could get my hands of some of those treatments but I’m in the UK & doctors aren’t allowed to prescribe anything
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@PnoTuna I’m pleased for them too but at the same time super pissed off & confused that I’m still stuck in hell
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@Costness @HarryBoby4 It would only be a blessing if it fully went away. Yes it’s made me realise what’s important but I can’t live & do things that align with my new outlook on life
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@Catinmyfamily I totally get that. It’s the same for me. Some days (most days) I’m housebound but get the odd days I can go on a walk (then crash) but some I’ve spoke to are now out everyday going to the gym & everything. I just don’t get it? It’s fucking with my head why I can’t recover
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@Catinmyfamily I know I’m probably being horrible & a bitch but it’s just how I feel today. I don’t know who to trust anymore. I don’t know if people are just lying to me, grifting or what
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@RachelCDailey The pip assessor jobs should be going to disabled people. After all we are the experts
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