We are now ERDERA! This new partnership builds on EJPRD achivements to continue advancing diagnosis, prevention, and treatment research for the 30+ million people living with a rare disease in Europe and beyond. 👉

👉 Key updates in clinical research & genomic data governance: 1️⃣ Ongoing revision of ICH E6 (R3) GCP guidelines for clinical trials. 2️⃣ WHO's new guidance on ethical human genome data use. Read all the information: #ClinicalResearch #PublicHealth #ERDERA

🚀 Working on your ERDERA 2025 JTC and need patient organisation partners? 🔍 Explore the Orphanet database: 🤝 Contact EURORDIS: 📧 Still stuck? Email Laura.benkemoun@fondation-maladiesrares.com or roseline.favresse@eurordis.org 🌟

⏳ Final Call for Registration! The RE(ACT) Congress & IRDiRC Conference 2025 is fast approaching! Regular registration and abstract submissions close at the end of this month. 👉 Register now at and 🧬 be part of the #RAREvolution! #RareDiseases

📢 The Online Submission Platform for ERDERA’s Joint Transnational Call 2025 is Now Live! 👉 All the details at: 📅 Deadline: 13th February, 2 PM (GMT). 💻 Visit the website and register to the platform today! #ERDERA

🌟 Why Attend the RE(ACT) Congress & IRDiRC Conference 2025? 🌍 Shape the future of rare disease research with cutting-edge talks, networking, and a patient-centred focus. ✨ Join the #Rarevolution! 📅 Register by month-end: @react_community

Rare disease patients often face years without answers. Thanks to @Solve_RD, 500+ new diagnoses were made by reanalysing data for 6,447 patients. 🚀 Now, ERDERA aims to analyse 100,000 cases with advanced tech! 📖 Read the article:

🚨 Call for experts: @irdirc seeks experts to support 5 new activities in rare diseases research: 1️⃣ Preventive Medicines 2️⃣ Regulatory Convergence 3️⃣ Youth Engagement 4️⃣ Stigma 5️⃣ Bridging Diagnostics & Therapies 📅 Apply by Feb 9, 2025 For details👉

🌍 Exciting News! The Ministry of Health of the Republic of Slovenia has joined ERDERA's JTC 2025 for Rare Disease Therapies! This boosts international collaboration on rare disease research 🧬 📄 Updated documents are live! Learn more: 💡 #ERDERA

🌟 Stay informed and join the journey to transform #raredisease research. 💙 Subscribe to #ERDERA's newsletter for: ✅ Updates on groundbreaking research ✅ Insights into cutting-edge innovations ✅ Opportunities to connect & collaborate 👉 Subscribe now:

🚀 Join ERDERA’s First Landmark Event! 🌟 Connect with global experts, explore groundbreaking research, and champion a collaborative, patient-centred approach to #RareDiseases🧬 Register now for the RE(ACT) Congress & IRDiRC Conference 👉 #RAREvolution

🌟 Welcome #RealiseD to the rare disease ecosystem! 🌟 We're excited to announce this innovative #IHI project, revolutionising clinical trials for rare and ultra-rare conditions. Together we’re transforming the future of #RareDiseases💡 🔗 Learn more at

📣 New speakers confirmed for the 8th RE(ACT) Congress & IRDiRC Conference! 🌍 Join world-renowned experts and emerging voices in rare disease research. Explore the full speaker list 👉 See you in Brussels! 🚀 #RAREvolution #RareDiseases #ERDERA

🌟 @Together4RD unites the European rare disease research community, driving innovation & collaboration. 📅 Join their 2nd webinar with #ERICA on 16 Jan to explore how industry partnerships accelerate research. 🚀 Register now: #RareDiseases

📢 The Extended Joint Transnational Call Webinar is on Tuesday, 14 January! 📅 Make sure to register to secure your spot: 🎥 Missed the 2025 JTC Webinar in December? No problem! 📝 Simply fill out the form to access it: #ERDERA

📢 Update: The #REACTCongress2025 & IRDiRC Conference 2025 have extended registration & abstract submission until the end of January! Join us in March for this landmark event in rare disease research! 🧬 👉 Register: #RAREvolution #OrphanDiseases #ERDERA

📣 Join ERDERA’s Extended Webinar on the JTC 2025! Given the success of our previous session, we're hosting another webinar on the upcoming call. 🔎 🗓️ 14 Jan 2025 | ⏰ 14:00–16:00 CET | 🔗 Register here: #RareDiseases #ResearchFunding #ERDERA

🚀 Working on your ERDERA 2025 JTC and need patient organisation partners? 🔍 Explore the Orphanet database: 🤝 Contact EURORDIS: 📧 Still stuck? Email Laura.benkemoun@fondation-maladiesrares.com or roseline.favresse@eurordis.org 🌟

🚀 Join ERDERA’s First Landmark Event! 🚀🌟 Connect with global experts, explore cutting-edge research, and embrace a collaborative, patient-focused approach.🧬 Register to the 8th RE(ACT) Congress & IRDiRC Conference 2025👉 #RAREvolution #RareDiseases

📢 Tomorrow is the Joint Transnational Call Webinar! 📢 Learn about the 2025 Joint Transnational Call for Proposals, including the application process, eligibility criteria, and tips to stand out. 🗓️ 17 Dec 2024 | ⏰ 14:00-16:00 CET Register now👉

Register for our upcoming JTC webinar 💡🚀 🗓️ 17 Dec 2024 | ⏰ 14:00-16:00 CET 👉 We’ll guide you through the application process, clarify eligibility criteria, and share tips to help your proposal stand out! 🔗 Register here: #ERDERA #RareDiseases