@scottjla @StClaireSuzanne @NateB_Panic Yes, @scottjla, this is one reason. Smell and taste have a different mechanism. Submitting follow-up manuscript today. Hopefully the Nature paper will make it easier to be taken seriously.

Happy to have taken part in Solve ME Advocacy Day in the Senate.

@ahandvanish Check out NCT05664711. Many long haulers meet criteria for ME/CFS

@mileswgriffis I'm so sorry it didn't work for you. We are running a pilot study to help us figure out why it works for some and not others.

@IppokratisAnge1 @PoliJunkie20 Due to Horner's syndrome after successful SGB, a placebo control is not possible. We are starting a pilot study with a formal protocol very soon, sponsored by Solve M.E.'s Ramsay Research grant.

@TheHazelBowden Hazel, you are correct- a case study is not research. Retrospective chart analysis study in progress. Preparing manuscript. Response bias to surveys is a big problem, but ~90% have very good results. Based on those results, I've received research funding

@Phermes54 Hi Peter. I'm conducting retrospective chart analysis (easier & cheaper for IRB approval than prospective study) of patients we have treated. Response bias to follow-up surveys is an issue, but many people have VERY good results. Manuscript is in preparation.

I am thrilled to announce that I have been awarded a Ramsay Research Grant by Solve M.E., whose sponsorship of basic research supports scientific breakthroughs for #MECFS and #LongCovid. Go #RamsayResearchers!

@MrkStdngr @MEActNOW @Phermes54 I'm so sorry for your experience with a willfully ignorant provider. We don't keep track of who is offering SGB. Find someone who uses bupivacaine, NO epinephrine or steroid. Schedule blocks within 24 hours of each other. I wish you the very best.

@ummeowyn @WorkBrightNZ @ctrssierra I am so sorry to hear of your suffering @ctrssierra. Please do not give up hope. I'm too busy writing grant applications for a clinical trial to write the follow-up to our case series. We are having good results. Please look into bilateral "SGB" (block the entire cervical chain).

@Nature Year of the Tiger!

@TimoStrotmann @EdoajoEric No. A rare side effect is a migraine the next day followed by improvement in symptoms.

@EdoajoEric Just have them call the clinic!

@FeredayJamey @EdoajoEric You might try getting blocks a week apart for a month to see if it helps. I'll be writing up another paper soon, with analysis of patients most likely to benefit.

@TimoStrotmann @EdoajoEric We are not aware of any, but not all patients respond to follow-up surveys so it is possible. Practitioner experience is paramount for SGB.

@Rea_ctor @Rivkatweets Hello Peter. It sounds like the last pain clinic was afraid that they could not deliver an accurate injection. There are structures in the area that would be very bad to inject with anesthetic, but with ultrasound guidance, experience, and skill, the risk is small.

@neuroversion Go, Libby, go!