Davina Rivers
@DavinaRivers
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My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
London
Joined January 2012
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Pinned Tweet
Going to pin this to my twitter feed so I can see Eric everyday💔❤️💔❤️💔
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The language used surrounding grief is so important. Remarks can be made without thinking but can be so hurtful.
Here are some helpful grief Literacy hints.
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Here is our legend.
My deceased husband Eric Rivers. He died from Motor Neurone Disease aged 49 in 2015.
He lived with the disease for 5 years and helped raise over £271,000 for the
@mndassoc
.
I am proud to be Eric’s wife.
Our love never dies.
#5RiversAlways
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So very life changing...we believe our
@DIYSOS
gave us 4 years longer with Eric...the team and trades helped breathe life back into his failing body...those extra years we were blessed with meant our youngest will always remember her daddy. Such a priceless gift .
#Gratitude
❤️
@DavinaRivers
@DIYSOS
It real is isn’t
@DavinaRivers
, you guys and us, are lucky enough to be part of the
@DIYSOS
family. I don’t think people realise the difference they make and what life is like when the cameras go home.
#LifeStarts
once the cameras go home.
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If I hear ‘he wouldn’t want to see you sad’ one more freaking time I will scream.
Instead how about saying ‘it must be hard without him. You are honouring his memory so well for all that you do to keep your family thriving. ‘
#GriefLiteracy
.
We all need to think b4 we speak
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@DIYSOS
@MrNickKnowles
@AmandaWorne
So lovely to see your beautiful home in the making Amanda💕 Thank you Nick for speaking so beautifully of our beloved Eric! I’m sure he’s smiling tonight 😘😘😘😘😘
Mega thanks to Hamish for brilliant edit 👍👍👍👍👍
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We really do need to change this narrative surrounding grief.
My neighbour’s wife has just died I hear ppl still saying things like:
‘she wouldn’t want you to be sad’, ‘she’s in a better place’.
‘Remember the good times’
STOP ✋
Let us grieve!
We can take as long as we need!
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Is it just me or does everyone feel that the whole
#MNDCommunity
feel the pain when another MNDWarrior dies from the disease? It resonates with us all in such a unique way? I’m not sure people get this.. or do they?
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The
#MNDFamily
have been hoping for this for SUCH a long time. Well deserved Kevin Sinfield and
@Rob7Burrow
HUGE Congratulations 🥳
My beloved Eric who died from MND in 2015 would be whooping right now and giving us one of his gorgeous smiles from ear to ear 🕊️🕊️🕊️🕊️🕊️
'He's been so brave and courageous fighting MND'
Kevin Sinfield told
#BBCBreakfast
he's humbled to receive a CBE in the New Year honours alongside his friend Rob Burrow - but it's his former Leeds Rhinos teammate who deserves the award
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I struggle with Eric’s death everyday.
Yes it’s been 7 years..do I miss him any less today? No , I miss him more in fact.
Hearing about the death of
@MNDoddie5
hits bang hard in the chest.
Why? Because we know how his family is feeling right now and how much they will miss him.
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7 years today since my love Eric died.
Contrary to popular belief it doesn’t get easier. We don’t just grieve our person, we grieve the future we should have shared together.
A friend just sent this pic of us in Cornwall c.2009 a year before MND. We had such happy times there 🕊
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Could you please reinstate my husband Eric Rivers Enfield DIYSOS from 2012? It was removed from your scheduling when he died from Motor Neurone Disease and I’d love to see it repeated occasionally to raise awareness of the disease. Thank you ❤️
Ready for an emotional rollercoaster? Get the tissues ready 😢 We have
#DIYSOS
all day today! 🏚️🛠️🏠
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When Eric was diagnosed with MND our youngest was 4. The week of her 5th Birthday Eric was in hospital and asked ‘Why does my Daddy have to die?’💔
She’s 18 now and has lived half her life without Eric alive.
My grieving Eric’s death involves the impact it has had on our 3 girls
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This lovely man makes me cry every time I see how much of himself he gives for his bestie
@Rob7Burrow
who is living with MND.
This brutal disease needs funding and needs eradicating.
The impact it has on families like ours when our children are young is just devastating 💔
“5,000 reasons why we should go again…”
This morning on
@BBCBreakfast
, MND Association patron, Kevin Sinfield, announced his latest challenge.
He’s running for the estimated 5,000 people living with
#MND
in the UK.
More details below 🏃♂️
#7in7in7
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There is no shame in admitting that you are still grieving the death of your person years later.
There is no shame in admitting you still struggle with their death.
Don’t let anyone try to shame you in how you are dealing with your persons death.
Your grief is yours alone. 🕊️
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We are allowed to feel sad when our person dies.. it’s human behaviour. Telling someone not to be sad is showing us how uncomfortable our expression of emotion is for you.
If I hear ‘he wouldn’t want to see you sad’ one more freaking time I will scream.
Instead how about saying ‘it must be hard without him. You are honouring his memory so well for all that you do to keep your family thriving. ‘
#GriefLiteracy
.
We all need to think b4 we speak
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So much to listen to and take away from this young creative Leigh-Anne from
@LittleMix
and her doc tonight on racism within the music industry.
If each one of us addresses racism within our work place.. imagine how impactful that would be for our young people of all ethnicities.
"Leigh Anne: Race, Pop, & Power" is now available on iPlayer. You can also watch tonight on BBC One at 9pm BST if you're within the UK.
Please watch, listen, and learn.
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Eric died on Saturday 07/11/2015
released from the confines of MND.
That evening the skies were alight with fireworks and I remember it gave me great strength as I imagined each burst of colour lighting up the sky was in celebration of him as his soul left earth side 💥💥💥💥💥
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It’s not ‘wallowing in it’ if you express your grief openly and honestly.
We don’t ‘move on’ when our person has died we move forward carrying our grief.
Grief is simply an expression of our love, we don’t stop loving them because they died.
Just saying 🙏🏼
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That single moment when you see your child beginning to emerge from the brutal past of losing an adored father to
#MND
.
Their lives progressing and emerging from the grief.
That glimpse of light in the long dark tunnel...
It’s everything
It’s HOPE✨
I’m grateful 🙏🏻
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Just putting it out there..
when your person dies from a long protracted illness like
#MND
it is still a massive shock. Despite the many episodes of choking and inability to breathe when you thought they were taking their last breath….IT IS STILL A SHOCK.
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#PrideOfBritain
Congratulating
@Rob7Burrow
+ his wife Lindsey.
Shout out to all us
#MNDWives
+
#MNDWidows
who work, look after husbands with MND+our children.
It’s a job and a half. We do it with love.
We HONOUR our husbands every minute of every day in the here and hereafter🕊️
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Guess what!!!
@rivooh
is using his Eyegaze!!!!! Yipeeeeeeee!!!!!! It's the first time for weeks.......
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How do you have the conversation about death?
It’s bloody hard. But from the day of diagnosis with
#MND
you have to think about it and you have to talk about it. It’s on the forefront of your mind. You have to face it. 😭
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So people think once your person has died that after time you should have moved on.
This week, my eldest graduated from uni and never has Eric’s absence been more deeply felt.
MND is a brutal disease and I need to tell you we move through life carrying Eric with us everyday. 1/2
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Wish I could wrap my arms around everyone who has lost their loves to
#MND
/ALS...........life without them is so very lonely!
#LoveUEric
💔
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@s_cafc
Perhaps you should watch it before commenting. It was a parking fine that became inflated beyond a young boy’s ability to pay as a zero hours courier. He was 19. He hung himself.
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Observation. If your husband dies someone will say ‘when will you start dating again?’
and ‘ you’ll meet someone else. ‘
If your mum dies people get it.
If your sibling dies people also get it.
WTF!
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Wish that you were here today my love to see the support for
#MND
#SirKevinSinfield
@Rob7Burrow
💙💙💙💙💙
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A precious moment shared whilst
@rivooh
is awake :))
#SoGrateful
#MNDWillNeverTakeOurLove
http://t.co/4VICnI6gNh
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Left feeling really pissed off this morning watching with viewers whinging about coverage of
#MND
on the BBC. If these people had experience of the disease they would cease their complaining. It’s about much needed awareness. TURN OFF if you don’t like it. YOU have a choice.
As
@BBCBreakfast
approaches its 40th birthday, does it have the right mix of news and features? Its editor
@BBCFrediani
speaks to
@SamiraAhmedUK
at 20.45 on the BBC News Channel, repeated 07.45 Sat on, er,
@BBCBreakfast
on BBC1. Or catch up here
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@mndassoc
Some of you may remember my husband Eric Rivers who died from
#MND
in 2015.
This is our daughter Summer flying off to Finland this morning as part of
#TeamGB
for the
#WorldChampionships
Women’s American Football.
#TeamGB
#40
@BAFAOfficiall
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27th November 2015.
Toughest day of my life having to say goodbye to you my love 💔😭
#HateNovember
#FuckYouMND
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Another massive milestone reached in the River's house-Summer's School Prom.
Proud Daddy!
@rivooh
@mndassoc
http://t.co/KvA0MMsCEK
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Happy 50th Birthday my darling
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
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Last night I dreamt of Eric for the first time since he died.
He was giving me the biggest hug and then I woke up.
It was the first time I have woken up without feeling anxious since before he was diagnosed on 07 July 2010.
Such is widow life
Such is
#MND
💙🙏🏼🌟🙏🏼💙
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Celebrating 16 years of marriage to my beloved
@rivooh
today! A day I feared we may not have shared!
#MNDMilestone
http://t.co/1oPg12WqcF
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Difficult to watch but my gut instinct is to raise awareness of MND.
This was my last birthday wish from Eric.
He died two weeks later.
Special days hit hard now, but everyday without my love.. well it’s hard. We miss him so much. 💙
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A massive conversation to be had on the impact MND has on the spouse and especially on the children of a person with MND.
Our children historically receive minimal support if any at all.
7 years after Eric’s death , our girls all suffer symptoms of PTSD.
More MUST be done 💙
Two families united by one cause.
Jo Slater and Lindsey Burrow spoke to
#BBCBreakfast
about caring for their husbands Ed and Rob who are living with MND
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Eric used to say that waiting in the dark non purpose built corridor to see his consultant at
#RFH
was like sitting on
#DeathRow
. So I am deeply heartened to hear of
@Rob7Burrow
’s purpose built
#MND
centre. We never saw one child.. our youngest was 4. It was so lonely.
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Oh my days.. we have been through so much since 2010.
My darling Eric.. these three beauties have given me the reason to keep fighting all that is thrown at us. Together we can do it. Always with you in our hearts. Always with you in our love ❤️❤️❤️❤️❤️
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USA World Champions Women’s American Football 42-14.
Our girl Summer Rivers is a Silver medalist GBAthlete.
Thanks to everyone who RT and sent messages of support. It means the 🌎
All Summer ever says is ‘ I just want to make Daddy proud.’
Well you CERTAINLY did that baby girl
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Something often not ‘seen’ in our grief is that YEARS after our person dies we experience flashbacks. Our body holds the score and trauma has a habit of resurfacing. It may be on the death anniversary but it can be at any time especially before and after significant dates.🕊️🕊️🕊️
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This week has taken everything out of me.
Without Eric, I have to work hard every day to remember I am worthy, I am deserving.
Long weekend off as the girls and I gather to honour him on his birthday this Valentine’s Day.
We will remember how much he loved us ❤️❤️❤️❤️❤️
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I continue to despair regarding conversations surrounding grief.
‘Don’t you find comfort in your children?’ I was asked.
OF COURSE!
But the duality of grief
means we can experience love +gratitude for our children, as well as feeling great loss at the death of their father. 🕊️
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The cold weather returning reminds me of how much Eric loved to ski. He always wanted to take us with him but MND meant we never got to share this passion with him.
Never put off something you really want to do. Do it NOW while your people are still alive. 🤍🖤🙏🏼💙🕊️
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The day we met
@lastofadying1
Mark Maddox. He became the first man with MND to complete the London Marathon and despite Eric not being well we waited for Mark to finish. It was an emotional meeting of two great men. My heart goes out to Jayne and the children. So sad 💙😭
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Beautiful photograph of the Big Man himself. Gutted 😭
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Do you believe in
#SuperHeroes
?
You will after watching all new
@DIYSOS
BBC 8pm tonight where the team revamp
@AmandaWorne
’s home after a catastrophic accident leaves her paralysed and unable to access her home + her life as a
#1inaMillionMum
! Prepare to be INSPIRED...
#BigTime
!
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Through to Phase 2 Olympic Trials GB Boxing!
Huge Congrats my
@SummerRivers
You are one determined lady!
#DaddyWouldBeSoProud
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#MNDWidow
Opening my heart and mind to all that is you.....please come visit in my dreams very soon........✨✨✨✨✨
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There’s something significant about the 7th year after death. I’m not sure what it is but it’s really fucking hard. Grief is really fucking hard.
The longing becomes more intense.
Societies pressure that you should have ‘moved on’ feels heavier.
#SayHisName
My beloved Eric 🖤
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Please RT if you agree..
Could we have an
@mndassoc
#PageOfRemembrance
on your website with photographs of loved ones we have lost...
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Listen up folks ...this is IMPORTANT!
Our
@DIYSOS
#DreamTeam
bringing the
#L
❤️VE back to East Barnet tonight for a Policeman catastrophically wounded in the
#WestminsterTerrorAttack
.
The trades enabled him to come home.
This is going to be emotional...tissues at the ready.
Tonight BBC1 8pm all new
@DIYSOS
Building for a Policeman injured in the Westminster Bridge attack 1 year ago
RT
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His ski boots. Just as he left them , socks stuffed inside.
Proof that he was once alive and he was once here with and married to me. 😢
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I think it’s time we opened up a convo about
#MENTALHEALTH
and
#MND
.
Behind the
#happysmileyfaces
on Twitter and FB lie broken families.
Two out of three of my children suffer ongoing mental health problems...
@mndassoc
..
#WeNeed2Talk
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Today in honour of you my love I must listen to my burnt out soul and rest.
🖤Eric Rivers
🖤07/11/15
🖤13.38
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#AskCareMinister
For Mum’s like me who have cared for my mum with terminal breast cancer then my husband for 5 years with
#MND
until his death, I would like to ask if measures could be put in place to help us recover financially, physically and emotionally.
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@normanlamb
#SelfieAgainstSilence
@mndcampaigns
@rivooh
is in final stages of
#MND
Don't let his death be in vain!
http://t.co/ceQGWpqmRO
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Don’t want
@bbcstrictly
to end this year .
Eric and I both loved to dance and we were going to start
#salsa
lessons but then he was diagnosed with
#MND
. We never got to do it.
Never put off what can be done today and all that. We never got round to making that time just for us.
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A diagnosis of MND will be the greatest challenge for any family.
A positive mental attitude can buy more time. However, It’s OK to cry and show your vulnerability.
This is grief. It’s NOT a weakness.
Give yourself permission to grieve.
It’s OK not to be OK💙
#MNDMentalHealth
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Off now to make GiantDreamCatchers with girls...
#spiritual
#love
#MissingMyBeloved
#LoveYouEric
#MeetYouInMyDreams
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I can not deny that with the escalation of the
#IceBucketChallenge4MND
, the love, the laughs, the generosity, there has been some HEALING :)
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For those of us deeply grieving the out of order death of our loved one from
#MND
..feelings are stirred that remain difficult and traumatising to process.
#MND
is a brutal disease. Our children see things that can not be unseen.Their young lives changed forever.
#Donate4ACure
🙏🏼
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This is what
#TeamGB
looks like 👊🏼
She’s so determined.
Goodness Eric would be so proud of our girl.
🖤🖤🖤🖤🖤
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Our girl Summer Rivers on her way to Finland representing
#TeamGB
for
#Women
’sAmericanFootball
#WorldChampionships2022
.
It doesn’t get much better than this.🖤
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Dayyyyyymmmmm this just finished me off 😭😭😭😭
Hey girl so proud of you Summer Rivers ❤️❤️❤️❤️❤️
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I have fallen in love all over again.....thank you dearest Lesley for this most beautiful image of my beloved Eric ❤️❤️❤️❤️❤️
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If you watched
@Rob7Burrow
Life with
#MND
on BBC2, you can see our
@DIYSOS
currently showing on Channel W. My darling Eric Rivers Enfield Series 23 Episode 3.
Eric died from MND 07/11/2015 aged 49 💔
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I feel the need to tell the world how wonderful you were every single day!
#MyTrueLove
💔
#MNDWidow
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#MNDGriefTalks
6 months on and only now am I grasping the full measure of the profound loss of my beloved Eric!
💔
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