CdLS UK & Ireland
@CdLSUKIreland
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CdLS Foundation UK & Ireland strives for diagnosis of CdLS, promotes research, and provides support to those with CdLS and their families.
Ripley, England
Joined February 2018
Participate in the Checklist Project. A tool for parents to understand behaviours that challenge. For parents of children aged 4-18 with a moderate-profound learning disability. #disabilityresearch #geneticsyndromes @warwickmed @uniofwarwick @NeuroRes_WMS @CerebraNetwork
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We would like to hear your views about our online teacher training resource: https://t.co/pBVseVqBr5. Please contact @DrKrellis at k.ellis@surrey.ac.uk for more information
findteacherresources.co.uk
Help us learn more on how to better support children with intellectual disability and genetic syndromes at school! For more information, please contact Dr Katherine Ellis (@DrKrellis) at k.ellis@surrey.ac.uk.
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IT's OUT! A gaze following paradigm w/ autistic ppts & ppts w/ genetic syndromes (#FXS #CdLS) w/ unique profiles of autism characteristics in @CORTEXjournal for the neurodevelopmental neurodiversity issue! 🥳 https://t.co/XjwVfJIfbK
@JoannaFMoss @Sarah_JWhite @malwinadziwisz 1/6
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Thank you, we hope you enjoyed your snacks!
Today is CdLS awareness day! This weeks lab meeting involved wearing purple and eating purple snacks to mark the day and raise awareness @CdLSUKIreland
@JoannaFMoss
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The aim of the BEOND study is to improve understanding and awareness of rare genetic syndromes like CdLS. We are now recruiting caregivers of children and adults with CdLS. You can take part by completing a survey (online or posted paper copy) via the link or QR code below:
So wonderful to see the posts from CdLS awareness day over the weekend! Parents and caregivers of children and adults with CdLS are invited to take part in a survey to help researchers better understand behaviour, wellbeing, emotion and health in CdLS https://t.co/yl0Aewkp54
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So wonderful to see the posts from CdLS awareness day over the weekend! Parents and caregivers of children and adults with CdLS are invited to take part in a survey to help researchers better understand behaviour, wellbeing, emotion and health in CdLS https://t.co/yl0Aewkp54
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A Signed Story for #InternationalCdLSAwarenessDay2023. Visit https://t.co/qdvSMQyxxr for the full story.
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#InternationalCdLSAwarenessDay2023 Attention Autism Session for CdLS Awareness Day. For the full session please visit our Facebook page https://t.co/qdvSMQxZHT
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If you are in Bolton today, why not pop in for an icream #internationalcdlsawarenessday2023 #cdlssupport #craftforcdls
instagram.com
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CdLS groups from all over the world join together today for the purpose of raising awareness of this rare syndrome. Watch the full video https://t.co/VFAk469U68
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Thank you @JoannaFMoss @DrKrellis @BethLJones93 for flying to Glasgow to join us. Your research and expertise is vital to us and all families on the CdLS journey.
Thank you @CdLSUKIreland for having us today. Was great to connect with families and share some new research findings. @DrKrellis @BethLJones93
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We want to learn more about social and emotional well-being among children and young people with CdLS. Please get in touch with Beth (b.l.jones@surrey.ac.uk) if you’re interested in taking part.
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We are saddened to hear of the passing of Her Majesty Queen Elizabeth II. Our thoughts tonight are with her family. #QueenElizabeth
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