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Canadian Rare Disease Network (CRDN) Profile
Canadian Rare Disease Network (CRDN)

@CanadianRDN

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Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.

Calgary, Alberta
Joined January 2024
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
3 days
🎉 Félicitations au Dr. Erkan Demirkaya pour sa nomination en tant que Président de la Société Internationale des Maladies Autoinflammatoires Systémiques (ISSAID)! Cette nomination souligne le rôle croissant du Canada dans la recherche mondiale sur les maladies rares. Apprendre👇
@LHSCRI
London Health Sciences Centre Research Institute
@LHSCRI
20 days
We’re thrilled to share that LHSCRI scientist Dr. Erkan Demirkaya has been appointed President of the International Society of Systemic Auto-Inflammatory Diseases. Congrats Dr. Demirkaya on this remarkable achievement and exciting new role! Learn more:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
3 days
🎉 Congrats to Dr. Erkan Demirkaya on his appointment as President of the International Society of Systemic Autoinflammatory Diseases (ISSAID)! This milestone underscores Canada’s growing role in advancing rare disease research globally. 🌍 Learn more 👇
@LHSCRI
London Health Sciences Centre Research Institute
@LHSCRI
20 days
We’re thrilled to share that LHSCRI scientist Dr. Erkan Demirkaya has been appointed President of the International Society of Systemic Auto-Inflammatory Diseases. Congrats Dr. Demirkaya on this remarkable achievement and exciting new role! Learn more:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
4 days
Le RCMR est ravi de participer au #SommetCanadienGénomique pour célébrer les 25 ans de @GenomeCanada! 🎉 Yasir Naqvi a annoncé la Stratégie Canadienne en Génomique avec un investissement de 175 M$. La recherche en génomique transforme le diagnostic et RDs:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
4 days
CRDN is excited to join the #CanadianGenomicsSummit celebrating 25 years of @GenomeCanada! 🎉 Yasir Naqvi announced the Canadian Genomics Strategy with a $175M investment. Genomics is transforming diagnostics, treatment & care for RDs. Read more:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
4 days
@UniteSoutien @CIUSSS_SLSJ Merci pour avoir mis en avant notre travail !
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
4 days
Appel à projets de recherche! @GBSCIDPCanada offre une bourse de 10 000 $ pour des études sur le diagnostic, le traitement et la réhabilitation du SGB, de la PIDC, de la MMN et leurs variantes. 📅 Date limite : 15 février 2025 🔗 Infos et candidature:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
4 days
🚨 Research funding alert! 🚨 @GBSCIDPCanada is offering a $10,000 grant for research on the diagnosis, treatment & rehab of GBS, CIDP, MMN & variants. 📅 Application deadline: February 15, 2025 🔗 Learn more and apply here:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
5 days
@raredisorders
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
5 days
Le combat de Wylder & Oakley pour une cure Les jumeaux Furber luttent contre l'ABCA3, une maladie pulmonaire génétique rare. Sans traitement actuel, la famille vise à collecter 3M$ pour financer une thérapie génique prometteuse à l'Hôpital d'Ottawa. Aidez:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
6 days
🌍 Le Consortium International de Recherche sur les Maladies Rares (@irdirc) recherche des experts pour cinq groupes de travail, chacun nécessitant des compétences spécifiques. 📅 Postulez avant le 9 Février 2025 :
@irdirc
IRDiRC
@irdirc
10 days
✍ Apply now to be part of the new IRDiRC activities 🌐 The call for members for one Working Group and four new Task Forces is ongoing! 🗓️ Have a look at the activities planned for 2025↘️ #IRDiRC #TaskForces #Roadmap2025 #rarediseases
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
6 days
🌍 The International Rare Diseases Research Consortium (@irdirc) is seeking experts for five working groups. Each activity requires specific expertise. Find more details on expert profiles here: 📅 Apply by Feb 9, 2025:
@irdirc
IRDiRC
@irdirc
10 days
✍ Apply now to be part of the new IRDiRC activities 🌐 The call for members for one Working Group and four new Task Forces is ongoing! 🗓️ Have a look at the activities planned for 2025↘️ #IRDiRC #TaskForces #Roadmap2025 #rarediseases
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
7 days
Le premier mois de 2025 est déjà dans les livres - plongeons dans le mois de février avec notre dernière édition de Rare Insights: 📢 Vous n'êtes pas encore abonné ? Inscrivez-vous ici:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
7 days
The first month of 2025 is already in the books - let’s dive into February with our latest edition of Rare Insights: 📢 Don’t miss it! Check your inbox for this month’s newsletter. Not a subscriber yet? Sign up here:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
10 days
Saviez-vous que le zèbre est le symbole mondial des maladies rares ? 🦓💙 Il représente l'unicité de chaque maladie, tout comme les rayures d’un zèbre. En ce Zébrier, #MontrezVotreZèbre, partagez votre histoire et sensibilisez pour de meilleurs soins et soutien. 💜 #MaladiesRares
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
10 days
Did you know the zebra is the global symbol for rare diseases? 🦓💙 It represents the uniqueness of each condition—just like a zebra’s stripes. This Zebruary, #ShowYourZebra, share your story, and help raise awareness for better care and support. 💜 #RareDiseaseAwareness
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
12 days
🚨 Attention aux chercheurs Canadiens! 🚨 Le Centre @OHRareDisease accepte désormais les candidatures pour la bourse 2025 des chercheurs sur les maladies rares. 🔗En savoir plus et postuler:
@OHRareDisease
Oxford-Harrington Rare Disease Centre
@OHRareDisease
26 days
We are pleased to announce that the 2025 Oxford-Harrington Rare Disease Scholar Award call is now open!​ The award accelerates breakthrough academic discoveries into new treatments for rare diseases. For more information and to apply:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
12 days
🚨 Attention Canadian researchers! 🚨 The @OHRareDisease Centre is now accepting applications for the 2025 Rare Disease Scholar Award. 🔗 Learn more and apply: #RareDiseaseResearch #FundingOpportunity
@OHRareDisease
Oxford-Harrington Rare Disease Centre
@OHRareDisease
26 days
We are pleased to announce that the 2025 Oxford-Harrington Rare Disease Scholar Award call is now open!​ The award accelerates breakthrough academic discoveries into new treatments for rare diseases. For more information and to apply:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
13 days
🔬Pourquoi les symptômes de la maladie de Huntington apparaissent-ils à l'âge adulte? Un défaut de réparation de l'DNA entraîne une lente accumulation dans les neurones. Une fois un seuil critique atteint, les symptômes apparaissent. Apprendre:
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@CanadianRDN
Canadian Rare Disease Network (CRDN)
@CanadianRDN
13 days
🔬Why do Huntington's symptoms appear in adulthood? Faulty DNA-repair causes decades of buildup in neurons. Once errors hit a tipping point, symptoms emerge. New research highlights DNA repair proteins as targets to delay progression:
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